The Importance of Digital Health Literacy in an Evolving Parkinson’s Disease Care System

Esper, Christine D.; Valdovinos, Blanca Y.; Schneider, Ruth B.

doi:10.3233/jpd-230229

Cited by 6 publications

(4 citation statements)

References 62 publications

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“…Numerous studies have shown that neurosurgical patients, particularly those from marginalized racial, gender, or socioeconomic groups, have a limited understanding of procedure-associated risks [76][77][78]. Furthermore, inequities in access to digital health technologies and low digital health literacy pose a unique challenge to PD patients as this disease impacts cognition and disproportionately affects the elderly [79]. Multiple studies have found that low digital literacy is a barrier to the use of digital health resources, particularly in underrepresented racial or socioeconomic groups [80,81].…”

Section: Patient-level Interventionsmentioning

confidence: 99%

Disparities in Access to Deep Brain Stimulation for Parkinson’s Disease and Proposed Interventions: A Literature Review

Bishay,

Hughes,

Zargari

et al. 2024

Stereotact Funct Neurosurg

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Background: Deep brain stimulation (DBS) is an effective therapy for Parkinson’s disease (PD), but disparities exist in access to DBS along gender, racial, and socioeconomic lines. Summary: Women are underrepresented in clinical trials and less likely to undergo DBS compared to their male counterparts. Racial and ethnic minorities are also less likely to undergo DBS procedures, even when controlling for disease severity and other demographic factors. These disparities can have significant impacts on patients’ access to care, quality of life, and ability to manage their debilitating movement disorders. Key Messages: Addressing these disparities requires increasing patient awareness and education, minimizing barriers to equitable access, and implementing diversity and inclusion initiatives within the healthcare system. In this systematic review, we first review literature discussing gender, racial, and socioeconomic disparities in DBS access and then propose several patient, provider, community, and national-level interventions to improve DBS access for all populations.

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Section: Patient-level Interventionsmentioning

confidence: 99%

Disparities in Access to Deep Brain Stimulation for Parkinson’s Disease and Proposed Interventions: A Literature Review

Bishay,

Hughes,

Zargari

et al. 2024

Stereotact Funct Neurosurg

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“…Larger randomized controlled trials are needed to provide more robust results on effectiveness. In addition, consideration of factors that may affect the usability of the mHealth app, such as disease severity and digital literacy [22] of patients from the recruitment stage, would be useful to evaluate the potential for introducing this app to a broader PD population.…”

Section: Limitations and Future Directionsmentioning

confidence: 99%

Feasibility, Satisfaction and Effectiveness of a Smartphone Application-based Voice and Speech Training Program for Parkinson’s Disease: Single Arm Pretest-Posttest Study (Preprint)

Lee,

Kim,

Kim

2024

Preprint

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BACKGROUND The majority of people with Parkinson's disease experience difficulties with voice and speech with disease progression, which leads to speech therapy. However, given their increasingly limited mobility, face-to-face speech therapy might be inaccessible. These accessibility issues can be addressed by an mHealth app. OBJECTIVE This study was conducted to examine the feasibility, satisfaction, and effectiveness of a smartphone-based application for voice and speech therapy in patients with Parkinson's disease. METHODS A single-arm, rater-blinded, pretest-posttest study was conducted between September to November, 2023. PD patients with voice and speech problems who have no problem with using Android smartphone were recruited. Participants downloaded the researcher-developed mHealth app on their smartphone and participated in a patient-tailored 5-week home-based speech training program. To verify feasibility, adherence was monitored and satisfaction was assessed by a phone survey at the end of the app use. Acoustic analysis and auditory-perceptual assessments were evaluated for effectiveness. RESULTS Thirty patients were initially recruited, but two of them withdrew. Twenty-five participants completed all the training sessions while three dropped out. The adherence was above 90% in twenty participants, 70-90% in four and below 70% in four. Satisfaction was 75% among the twenty-four people who participated in the survey. Significant improvement were observed in all acoustic measures and in the speech -language pathologist’s auditory-perceptual assessments after app use. The maximum phonation time increased from 11.15 seconds before use to 14.01 seconds after use (P =.003). The average vocal intensity increased from 71.59dB before use to 73.81dB after use in both sustained phonation and reading tasks (P<.001). Improvements in voice quality were observed in all components of the GRBAS(P <.001). In addition, 58.33% of participants in the survey reported improved voice after app use. CONCLUSIONS This study demonstrates that home-based, self-training speech therapy provided through an mHealth app can be a feasible solution for patients with Parkinson's disease.

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“…What should be kept in mind is that many of these treatments could be delivered digitally. While digital health technology for PwPD is developing rapidly [18] (e.g. in the context of telehealth, deep brain stimulation, wearable sensors, and smartphone applications), health literacy may be lagging behind, yet is indispensable for adherence.…”

Section: Mental Perspectivesmentioning

confidence: 99%

Non-Pharmacological Interventions for People with Parkinson’s Disease: Are We Entering a New Era?

Kalbe,

Bloem,

Kalia

et al. 2024

JPD

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The Importance of Digital Health Literacy in an Evolving Parkinson’s Disease Care System

Cited by 6 publications

References 62 publications

Disparities in Access to Deep Brain Stimulation for Parkinson’s Disease and Proposed Interventions: A Literature Review

Disparities in Access to Deep Brain Stimulation for Parkinson’s Disease and Proposed Interventions: A Literature Review

Feasibility, Satisfaction and Effectiveness of a Smartphone Application-based Voice and Speech Training Program for Parkinson’s Disease: Single Arm Pretest-Posttest Study (Preprint)

Non-Pharmacological Interventions for People with Parkinson’s Disease: Are We Entering a New Era?

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