The IMPACT Survey: the economic impact of osteogenesis imperfecta in adults
Tracy Hart,
Ingunn Westerheim,
Taco van Welzenis
et al.
Abstract:Background
The IMPACT survey aimed to elucidate the humanistic, clinical and economic burden of osteogenesis imperfecta (OI) on individuals with OI, their families, caregivers and wider society. Research methodology, demographics and initial insights from the survey have been previously reported. The cost of illness (healthcare resource use, productivity loss, out-of-pocket spending) and drivers of the economic impact of OI are reported here.
Methods
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