The Impact of Transmissible Microbes: How the Cystic Fibrosis Community Mobilized Against Cepacia

Abstract

and colleagues in the departments of History and Sociology of Science and Medical Ethics and Health Policy, as well as the Masters Program in Genetic Counseling at the University of Pennsylvania. This paper was made possible by the broader cystic fibrosis community, especially the 47 people with CF who granted interviews for a broader historical project on CF. Interviews for the broader project were conducted under an IRB protocol (#829309) approved by the Office of Regulatory Affairs at the University of Pennsylvania, and Cystic-L posts were reviewed under a separate protocol that was deemed exempt from IRB review (#812206).