The impact of the implementation of the Dutch combined Meeting Centres Support Programme for family caregivers of people with dementia in Italy, Poland and UK

Evans, Siân; Evans, Simon; Brooker, Dawn; Henderson, Catherine; Szczęśniak, Dorota; Atkinson, Teresa; Bray, Jennifer; Rehill, Amritpal; Saibene, Francesca Lea; d’Arma, Alessia; Scorolli, Claudia; Chattat, Rabih; Farina, Elisabetta; Urbańska, Katarzyna; Rymaszewska, Joanna; Meiland, Franka; Dröes, Rose-Marie

doi:10.1080/13607863.2018.1544207

Cited by 51 publications

(30 citation statements)

References 26 publications

(24 reference statements)

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“…The benefits of such communitybased initiatives are now being recognised. [12][13][14][15][16] There is evidence that regular social activity, where people are able to leave their homes and gather together in a communal setting on a frequent and ongoing basis, can be helpful both for people living with dementia and the people who care for them. 12 13 17-19 With care systems unprepared for the forecasted UK doubling of the number of people living with dementia (1.6 million) and tripling of social care costs by 2040, 20 improving provision of evidencebased community initiatives for people with dementia, and their families, is imperative.…”

Section: Strengths and Limitations Of This Studymentioning

confidence: 99%

“…The research question was developed during the authors' previous work with community interventions (eg, but not limited to, Meeting Centres) 12 13 and the practical problems encountered with sustaining such interventions expressed both by personnel and by members of the public attending. This review mainly involved the gathering of secondary data so did not involve patients or public directly as study participants.…”

Section: Patient and Public Involvementmentioning

confidence: 99%

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Sustaining community-based interventions for people affected by dementia long term: the SCI-Dem realist review

et al. 2021

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ObjectivesCommunity-based support for people with earlier-stage dementia and their care partners, such as regularly meeting groups and activities, can play an important part in postdiagnostic care. Typically delivered piecemeal in the UK, by a variety of agencies with inconsistent funding, provision is fragmented and many such interventions struggle to continue after only a short start-up period. This realist review investigates what can promote or hinder such interventions in being able to sustain long term.MethodsKey sources of evidence were gathered using formal searches of electronic databases and grey literature, together with informal search methods such as citation tracking. No restrictions were made on article type or study design; only data pertaining to regularly meeting, ongoing, community-based interventions were included. Data were extracted, assessed, organised and synthesised and a realist logic of analysis applied to trace context–mechanism–outcome configurations as part an overall programme theory. Consultation with stakeholders, involved with a variety of such interventions, informed this process throughout.ResultsAbility to continually get and keep members; staff and volunteers; the support of other services and organisations; and funding/income were found to be critical, with multiple mechanisms feeding into these suboutcomes, sensitive to context. These included an emphasis on socialising and person-centredness; lowering stigma and logistical barriers; providing support and recognition for personnel; networking, raising awareness and sharing with other organisations, while avoiding conflict; and skilled financial planning and management.ConclusionsThis review presents a theoretical model of what is involved in the long-term sustainability of community-based interventions. Alongside the need for longer-term funding and skilled financial management, key factors include the need for stigma-free, person-centred provision, sensitive to members’ diversity and social needs, as well as the need for a robust support network including the local community, health and care services. Challenges were especially acute for small scale and rural groups.

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Section: Strengths and Limitations Of This Studymentioning

confidence: 99%

Section: Patient and Public Involvementmentioning

confidence: 99%

Sustaining community-based interventions for people affected by dementia long term: the SCI-Dem realist review

et al. 2021

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“…This combined form of support is highly appreciated by people with dementia and informal caregivers, and both benefit from it. This is evident not only from the great increase in the number of Meeting Centers over the past 25 years (there are now 163 centers across the Netherlands and about 25 in other countries in and outside Europe) but also from repeated scientific research 10–16. Several studies have shown that the users of the Meeting Centers are almost unanimously (very) satisfied with the offer13,17 and that compared to regular day care, the participants with dementia using MCSP have fewer behavioral and mood problems and higher self-esteem,10,11,15 their informal caregivers feel more competent, nursing home admission is postponed,12 and lonely informal caregivers have fewer health complaints 14.…”

Section: Introductionmentioning

confidence: 99%

<p>Utilization, effect, and benefit of the individualized Meeting Centers Support Program for people with dementia and caregivers</p>

Dröes¹,

Rijn²,

Rus³

et al. 2019

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PurposeThere are few interventions on an individual basis to support community-dwelling people with dementia to continue to fulfill their potential in society and to support their informal caregivers via e-Health. This study explored the effectiveness of the individualized Meeting Centers Support Program (iMCSP) consisting of DemenTalent (people with dementia work as volunteers in a society based on their talents), Dementelcoach (telephone coaching), and STAR e-Learning for caregivers, compared to regular MCSP and No day care support.MethodAn explorative randomized controlled trial with pre/post measurements (M0-M6) and two groups (iMCSP and regular MCSP). In addition, a comparison was made between iMCSP and a reference No day care control group. Standardized questionnaires were administered on self-esteem, neuropsychiatric symptoms, experienced autonomy and quality of life of the person with dementia, and on caregiver’s sense of competence, quality of life, and happiness.ResultsThe iMCSP interventions resulted in a broader group of participants utilizing the Meeting Centers. Compared to regular MCSP, DemenTalent had a moderate positive effect on neuropsychiatric symptoms, which also proved less severe. Positive affect of participants improved within the DemenTalent and regular MCSP group after six months. Caregivers of DemenTalent participants experienced less emotional impact of neuropsychiatric symptoms. No differences were found in experienced burden, sense of competence, or quality of life in caregivers using iMCSP or regular MCSP. Compared to those receiving No day care support, caregivers of DemenTalent participants and caregivers using Dementelcoach or STAR e-Learning proved happier. Post-hoc analyses, accounting for potential between-group differences in outcome measures at baseline, generally showed results in the same direction. People with dementia and caregivers highly appreciated iMCSP and regular MCSP.ConclusioniMCSP can be effectively applied as alternative or additional support via regular Meeting Centers for people with dementia and caregivers who prefer individualized activities/support. DemenTalent decreased the severity of neuropsychiatric symptoms of people with dementia and emotional burden of caregivers. All iMCSP interventions tended to result in caregivers being happier compared to those receiving no support. Larger-scale studies are needed to investigate the effect of iMCSP on other domains of quality of life of participants.

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“…Higher attendance levels were associated with greater neuropsychiatric symptom reduction and increased feelings of support 14. Carers experienced less burden than those receiving usual care 15…”

Section: Introductionmentioning

confidence: 97%

Sustainability of community-based interventions for people affected by dementia: a protocol for the SCI-Dem realist review

et al. 2019

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IntroductionWith numbers set to increase globally, finding ways to better support people with dementia and their families is a matter of growing concern. Community-based interventions can play a key role in supporting people with early to moderate stage dementia postdiagnosis, helping delay decline and hospitalisation. However, provision of such interventions is fragmented, with significant gaps and no reliable funding model, hence innovative groups and schemes catering for a genuine need can struggle long term and frequently fold.Methods and analysisThis realist review aims to expand our understanding of how best to implement and facilitate community-based interventions to run sustainably, focusing on contextually relevant explanations. We will gather and synthesise literature using a realist approach designed to accommodate and account for the complexity of ‘real life’ programmes, as implemented under different conditions in different settings, aiming to draw transferable conclusions about their sustainability that explain how and why context can influence outcomes. Our review will iteratively progress through five steps: (1) locate existing theories; (2) search for evidence (using Academic Search, AMED, CINAHL, EMBASE, MEDLINE, ProQuest, PsycINFO, PubMed, Scopus and Social Care Online, between May and September 2019); (3) article selection; (4) extracting and organising data; (5) synthesising the evidence and drawing conclusions. Data analysis will use a realist logic to explain what works, for whom, in what circumstances, in what respects, how and why. A stakeholder group will provide guidance and feedback throughout.Ethics and disseminationEthical approval was not required. Recommendations drawn from results are likely to be of interest to a range of stakeholders including those commissioning, planning, running, supporting or attending such interventions, as well as policymakers, healthcare professionals and researchers. We will draw on the expertise of our stakeholder group regarding tailoring dissemination to each audience using a variety of materials, formats and channels.

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The impact of the implementation of the Dutch combined Meeting Centres Support Programme for family caregivers of people with dementia in Italy, Poland and UK

Cited by 51 publications

References 26 publications

Sustaining community-based interventions for people affected by dementia long term: the SCI-Dem realist review

Sustaining community-based interventions for people affected by dementia long term: the SCI-Dem realist review

<p>Utilization, effect, and benefit of the individualized Meeting Centers Support Program for people with dementia and caregivers</p>

Sustainability of community-based interventions for people affected by dementia: a protocol for the SCI-Dem realist review

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