The impact of surgical treatment for penile cancer – Patients' perspectives

Witty, Karl; Branney, Peter; Evans, Julie; Bullen, Kathryn; White, Alan; Eardley, Ian

doi:10.1016/j.ejon.2013.06.004

Cited by 45 publications

(66 citation statements)

References 17 publications

(36 reference statements)

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“…These studies indicate a marked decrease in sexual function while health-related quality of life (HRQoL) remains relatively stable in penile cancer patients. It is therefore a topic of interest to investigate rather than to state that "psychological support is very important for penile cancer patients" as the EAU guidelines do without providing viable alternatives, which is an enormous understatement [7,9,10].…”

Section: Introductionmentioning

confidence: 99%

Health-Related Quality of Life and Sexual Function in Patients Treated for Penile Cancer

2018

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Purpose: To assess the impact of primary surgery, partial and total penectomy, and of inguinal lymphadenectomy on health-related quality of life (HRQoL) and the sexual function of penile cancer patients. Materials and Methods: We invited 15 patients surgically treated for penile cancer in the Regional Hospital of Specialized Medicine of the Yucatan Peninsula between 2012 and 2016 to complete the SF-36 quality of life and International Index of Erectile Function (IIEF-5) sexual function questionnaires. We evaluated the impact of primary surgery type and inguinal lymphadenectomy on the outcome of HRQoL and sexual function. Results: A total of 10 patients (66%) completed the SF-36 questionnaire. Surgery type and extent of resection were overall not associated significantly with worse outcomes on the assessed domains of quality of life. However, men treated with partial penectomy reported significantly more pain (p = 0.0547) than men treated with total penectomy. Similarly, men who underwent lymphadenectomy reported significantly more pain (p = 0.0547) than those who were spared from the procedure due to the primary tumor´s stage and grade. Sexual function was severely affected (IIEF mean = 6.5) in patients treated with partial penectomy. Conclusions: Although partial penectomy and lymphadenectomy were significantly associated with more postoperative pain, no differences were observed in other HRQoL domains. Sexual function was severely affected in patients treated with partial penectomy.

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Section: Introductionmentioning

confidence: 99%

Health-Related Quality of Life and Sexual Function in Patients Treated for Penile Cancer

2018

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“…Fato visível já na fase de recrutamento, e por este motivo a importância do investigador repassar ao possível participante confiança, anonimato e confidencialidade de suas informações e, sobretudo estar preocupado com a saúde e bem-estar de ambos durante a entrevista (WITTY et al, 2013 Recordo-me da minha primeira abordagem, eu estava muito ansioso, pensava que seria a única forma possível de seleção. Compareci no dia e hora marcada para a consulta e obtive meu primeiro "sim", foi entusiasmante!…”

Section: Antropologia Médica E Das Masculinidadesunclassified

“…Há novamente a ideia da prática sexual como um pilar do relacionamento conjugal. Então, os homens tendem a dedicar-se a satisfazer a parceira para que ela não o rejeite (BULLEN et al, 2010;GORDON;LOBIONDO-WOOD;MALECHA, 2016;WITTY et al, 2013 Ao ser diagnosticado com o câncer de próstata o homem preocupa-se com a funcionalidade do seu pênis, principalmente relacionado à possibilidade de impotência sexual (OLIFFE, 2005). Enquanto que os sobreviventes do CP preocupam-se além da funcionalidade, com discursos focados na manutenção da estrutura peniana, na sua relação sexual, na ameaça aos seus relacionamentos conjugais e na sua imagem social e corporal perante sua sociedade, principalmente com outros homens.…”

Section: A Sexualidade Pós-tratamentounclassified

“…Enquanto que os sobreviventes do CP preocupam-se além da funcionalidade, com discursos focados na manutenção da estrutura peniana, na sua relação sexual, na ameaça aos seus relacionamentos conjugais e na sua imagem social e corporal perante sua sociedade, principalmente com outros homens. Esse universo de inquietações nos mostra que a retirada parcial ou total do pênis sai do campo biológico e torna-se social, como já dito, o pênis é símbolo da masculinidade (BULLEN et al, 2010;MESQUITA;MALISKI, 2011;WITTY et al, 2013). Por isso, é melhor ter pênis, independente de sua funcionalidade sexual.…”

Section: A Sexualidade Pós-tratamentounclassified

“…Há uma desconexão entre ser homem, mas não apresentar o que é necessário para ser identificado como um. Para ser homem, então, não basta entender-se masculino, mas há necessidade que os outros também o enxerguem com tal (BULLEN et al, 2010;GORDON;LOBIONDO-WOOD;MALECHA, 2016;STAPLETON;PATTISON, 2014;WITTY et al, 2013 Como descrito por Gray et al (2002), as preocupações do homem ao adoecerem por algum tipo de câncer urológico parecem estar relacionadas diretamente à prática sexual, o que mostra que o sexo é uma característica importante a ser experimentada pelo homem; além de ser a base para a relação conjugal. Se solteiro e jovem ou apenas solteiro, o homem terá dificuldades de cumprir com os ciclos masculinos esperados para sua idade.…”

Section: Um Homem Inteiro Ou Meio Homem: a Ressignificação Das Masculunclassified

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A experiência do câncer peniano e seus tratamentos na perspectiva dos adoecidos

Conceição¹

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Penile cancer is a disease of low incidence, and its manifestation is associated with intrinsic and extrinsic factors, and its main form of treatment is the penectomy. Due to the fact that the disease occurs in the male genital organ, I sought to know how the ill men deal with their masculinities in the disease situation. Thus, I proposed the thesis that culture influences in the way as the penile cancer survivors deal with their masculinities. The aim of this study is to interpret the meanings attributed to the experience with penile cancer and its treatments by the ill men. The theoretical framework adopted was medical anthropology and masculinities, since both considered culture as an important element in the social world. In order to understand the culture of the other people is necessary to experience it closely, for this reason I chose to develop the narrative ethnography. This method proposes to the researcher the use of techniques such as participant observation, multiple interviews, the use of field diary, thematic analysis and the presentation of results in the structure of narratives that contain the story of participants' experiences. I emphasize that the narrative has as main objective to show the transformations lived by the deponents, considering the common and divergent aspects of the interviewees. We selected 18 men with the diagnosis of penile cancer in the uro-oncology clinic of a hospital in the interior of São Paulo. The social and clinical characteristics of the interviewees are similar to the national and international data regarding the low incidence of the disease, age group and the treatments used. From the process of analysis it was possible to construct eight thematic syntheses: Penile cancer and its itinerary; The body after disease and its treatments; Cancer and its social repercussions: work, leisure and social relations; Behind the visible: the confidentiality of the disease; The sexuality post-treatment; The whole man or half man: resignification of masculinities; Social support resources; The today and expectations for the future. Through narrative syntheses it was possible to comprehend the meaning attributed by the patients, what they assigned to illness and how that disease affected their masculinity. These findings allowed us to achieve the meaning of being a man penile cancer survivor and its treatments, which can be understood by the expression "being half man". From the onset of diagnosis up to life post-treatment, men negotiate their masculinities with the social world, and realize that some characteristics acquired during illness make them different from other men, such as, to assume themselves as sickness, the fact that they have total or partial penile extirpation, reduction of physical strength, impossibility of working and changes in sexual practice. I then show that culture influences the way men deal with their masculinities, since the ill men are constantly revisiting their cultural patterns of masculinity to obey or re-signify it. Nurses can use the findings of ...

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