The impact of social factors on outcomes in patients with bleeding disorders

Holstein, Katharina; Mackensen, Sylvia von; Bokemeyer, Carsten

doi:10.1111/hae.12760

Cited by 19 publications

(37 citation statements)

References 21 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…In line with these findings, perception of consequences has indeed been consistently associated with psychological distress in a variety of diseases . In the haemophilia field, the relevance of patients’ individual perceptions has also been emphasized, with the perceived impact of the disease having a strong effect on clinical and psychosocial outcomes …”

Section: Discussionmentioning

confidence: 66%

Emotional distress in haemophilia: Factors associated with the presence of anxiety and depression symptoms among adults

et al. 2018

View full text Add to dashboard Cite

show abstract

Section: Discussionmentioning

confidence: 66%

Emotional distress in haemophilia: Factors associated with the presence of anxiety and depression symptoms among adults

et al. 2018

View full text Add to dashboard Cite

show abstract

“…Although parentally administered prophylaxis gives the family more flexibility, the treatment is not without worries or challenges. Even when recommended treatment regimens are in place, hemophilia affects children's education and leisure activities . Parents find it stressful to have a child with hemophilia, and experience uncertainty relating to home treatment and parenting .…”

Section: Introductionmentioning

confidence: 99%

“…Even when recommended treatment regimens are in place, hemophilia affects children's education and leisure activities. 9 Parents find it stressful to have a child with hemophilia, 10 and experience uncertainty relating to home treatment and parenting. 11 Prophylactic home treatment may be time consuming or challenging, 12 and for the nonmedically trained, learning how to administer peripheral injections usually takes time.…”

Section: Introductionmentioning

confidence: 99%

Treatment of hemophilia: A qualitative study of mothers’ perspectives

Lippe

Frich

Harris

et al. 2016

Pediatric Blood & Cancer

View full text Add to dashboard Cite

show abstract

“…The patients with arthropathy diagnosis use problem‐avoidance as a coping strategy, that is, they avoid situations of risk to prevent difficulties. The symptoms of pain along with arthropathy are the most adverse effects for patient with haemophilia because they restrict the activities of daily living, conditioning their quality of life . Thus, it is relevant that professionals work to promote satisfactory coping strategies to adequately manage these negative consequences of the disease.…”

Section: Discussionmentioning

confidence: 99%

Coping strategies in young and adult haemophilia patients: A tool for the adaptation to the disease

et al. 2019

View full text Add to dashboard Cite

Introduction Chronic diseases, after diagnosis, involve changes that have to favour coping with the new situation. The resources used will help control, manage and adapt to the disease. The psychological aspects may be influencing how the individual faces the situation. Aim To assess whether perceptions or beliefs and illness behaviour influence the choice of coping strategies for young and adult patients with haemophilia. Methods Multicenter cross‐sectional descriptive study. We recruited 63 patients with haemophilia A and B, adolescents, young and adults, and both types of treatment. A clinical and sociodemographic data sheet, the Coping Strategies Inventory (CSI), the Illness Perception Questionnaire‐revised (IPQ‐R) and the Illness Behaviour Questionnaire (IBQ) were used. Results Patients with haemophilia use appropriate coping strategies, both cognitive and behavioural. Most of them are on‐demand treatment, and despite arthropathy, they perceive good control of haemophilia. However, patients in prophylactic treatment are those employed more maladaptive coping strategies, less perception of control and hypochondriacal behaviour to the disease. The age variable may be relevant but we did not find significant differences. Conclusions Coping strategies used by patients with haemophilia are adequate. Although it is noted that the perception of the disease, its controllability or not, affects illness behaviour and consequently how coping with haemophilia. These are based on personal characteristics, cognitive and attitudinal dispositions that the individual consciously use to solve or face adverse situations. The analysis of coping styles of patients could be a tool for professionals to manage properly the disease.

show abstract

The impact of social factors on outcomes in patients with bleeding disorders

Abstract: The perceived impact of haemophilia on patients' lives seems to have a stronger impact on clinical and psychosocial outcomes than patients' actual social status.

Cited by 19 publications

References 21 publications

Emotional distress in haemophilia: Factors associated with the presence of anxiety and depression symptoms among adults

Emotional distress in haemophilia: Factors associated with the presence of anxiety and depression symptoms among adults

Treatment of hemophilia: A qualitative study of mothers’ perspectives

Coping strategies in young and adult haemophilia patients: A tool for the adaptation to the disease

Contact Info

Product

Resources

About