The Impact of Relationship Quality on Health-Related Outcomes in Heart Failure Patients and Informal Family Caregivers

Hooker, Stephanie Ann; Grigsby, Megan E.; Riegel, Bárbara; Bekelman, David B.

doi:10.1097/jcn.0000000000000270

Cited by 67 publications

(60 citation statements)

References 45 publications

(73 reference statements)

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“…Additionally, patients considering advanced therapies such as VADs and cardiac transplantation face additional anxieties as they anticipate or adjusting to a new life post-receipt. In addition to limitations in personal roles, patients experience wide variability in social support and the availability of informal caregivers (e.g., friends, spouses, children) (26,27). Regarding spirituality, patients with HF and poor health status report worse spiritual well-being compared to patients with metastatic lung and pancreatic cancer (28).…”

Section: Natural Opportunities To Integrate Palliative Domains In Hf mentioning

confidence: 99%

Palliative Care in Heart Failure

Kavalieratos

Gelfman

Tycon

et al. 2017

Journal of the American College of Cardiology

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229

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Patients with HF and their families experience stress and suffering from a variety of sources over the course of the HF experience. Palliative care is an interdisciplinary service and an overall approach to care that improves quality of life and alleviates suffering for those living with serious illness, regardless of prognosis. In this review, we synthesize the evidence from randomized clinical trials of palliative care interventions in HF. While the evidence base for palliative care in HF is promising, it is still in its infancy and requires additional high-quality, methodologically sound studies to clearly elucidate the role of palliative care for patients and families living with the burdens of HF. Yet, an increase in attention to primary palliative care (e.g., basic physical and emotional symptom management, advance care planning), provided by primary care and cardiology clinicians, may be a vehicle to address unmet palliative needs earlier and throughout the illness course.

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Section: Natural Opportunities To Integrate Palliative Domains In Hf mentioning

confidence: 99%

Palliative Care in Heart Failure

Kavalieratos

Gelfman

Tycon

et al. 2017

Journal of the American College of Cardiology

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229

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“…Several reviews have evaluated particular aspects of HF family caregiving, including general experiences [12], relationship quality [13], needs [14], burden [15, 16], roles in patient self-care [17–19] and left ventricular assist device management [20]. However, to our knowledge, the evidence-base of original research focused on HF family caregiving has yet to be assessed in its entirety in order to inform future research directions and priorities in HF palliative care.…”

Section: Introductionmentioning

confidence: 99%

Family caregiving for persons with heart failure at the intersection of heart failure and palliative care: a state-of-the-science review

et al. 2017

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Many of the 23 million individuals with heart failure (HF) worldwide receive daily, unpaid support from a family member or friend. Although HF and palliative care practice guidelines stipulate that support be provided to family caregivers, the evidence-base to guide care for this population has not been comprehensively assessed. In order to appraise the state-of-the-science of HF family caregiving and recommend areas for future research, the aims of this review were to summarize: 1) how caregivers influence patients, 2) the consequences of HF for caregivers, and 3) interventions directed at HF caregivers. We reviewed all literature to December 2015 in PubMed and CINAHL using the search terms “heart failure” AND “caregiver.” Inclusion criteria dictated that studies report original research of HF family caregiving. Articles focused on children or instrument development or aggregated HF with other illnesses were excluded. We identified 120 studies, representing 5,700 caregivers. Research on this population indicates that: 1) caregiving situations vary widely with equally wide-ranging tasks for patients to help facilitate their health behaviors, psychological health and relationships, and quality of life (QoL); 2) caregivers have numerous unmet needs that fluctuate with patients’ unpredictable medical status, are felt to be ignored by the formal healthcare system, and can lead to distress, burden, and reduced QoL; and 3) relatively few interventions have been developed and tested that effectively support HF family caregivers. We provide recommendations to move the science forward in each of these areas that moves beyond descriptive work to intervention development and clinical trials testing.

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“…Conversely, patient–carer dyads that had less satisfactory relationships to begin with may have had more trouble reaching consensus about CHF management roles and responsibilities after the diagnosis. Regardless of the direction of the association, other research has shown that better relationship quality has been associated with improved psychosocial and physical health outcomes among both members of the dyad across the CHF trajectory (Hooker, Grigsby, Riegel, & Bekelman, ). Thus, relationship quality generally, and dyadic congruence more specifically, should both be considered in future research investigating CHF outcomes.…”

Section: Discussionmentioning

confidence: 97%

Dyadic incongruence in chronic heart failure: Implications for patient and carer psychological health and self‐care

Cameron

Thompson

Szer

et al. 2017

Journal of Clinical Nursing

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Given the prevalence of dyadic incongruence and the possibility of further negative outcomes with disease progression, it is important to examine factors such as length of time since diagnosis or type of carer relationship. By implementing self-care education and management strategies that focus on the dyad, rather than the individual, nurses have the potential to improve both patient and carer outcomes.

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The Impact of Relationship Quality on Health-Related Outcomes in Heart Failure Patients and Informal Family Caregivers

Abstract: Relationship quality and communication seem to matter in the health and well-being of both HF patients and their informal family caregivers. More research is needed to elucidate mechanisms and to design effective relationship-focused interventions.

Cited by 67 publications

References 45 publications

Palliative Care in Heart Failure

Palliative Care in Heart Failure

Family caregiving for persons with heart failure at the intersection of heart failure and palliative care: a state-of-the-science review

Dyadic incongruence in chronic heart failure: Implications for patient and carer psychological health and self‐care

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