The impact of person-centred care on patient safety: An umbrella review of systematic reviews

Rossiter, Chris; Levett‐Jones, Tracy; Pich, Jacqueline

doi:10.1016/j.ijnurstu.2020.103658

Cited by 26 publications

(35 citation statements)

References 37 publications

(38 reference statements)

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“…Recent research has shown that healthcare professionals often utilize a clinician-centered approach to patient care as they address the challenges and varying health care needs of families (Dudley et al, 2015;Rossiter et al, 2020;Ulin et al, 2015). This research also suggests that parent experiences, narratives, and perspectives can be undervalued as clinicians work with families.…”

Section: Family-centered Carementioning

confidence: 99%

Exploring the Stories of Parents’ Experiences with Infant Hearing-Loss Screening and Diagnosis in the United States

Barker¹

2022

Preprint

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Objectives. For the past 20 years, birthing hospitals in the United States have required newborns to undergo a hearing loss screening prior to leaving the hospital. Since the initial newborn hearing screening mandates, there has been much outcome research documenting the successes and barriers of the program. However, little research has worked to identify and understand the parents’ experiences during this process. We propose that elucidating the parents’ experiences with newborn hearing loss screening and diagnosis is a first step toward understanding their varied experiences and has the potential to ultimately improve hearing healthcare for both children and their families. Thus, to better understand parents’ subjective experience, we asked the following research question: what are parents’ experiences with the early hearing loss screening and diagnosis of their infants in the United States? Design. The current study used a prospective, cross-sectional qualitative design utilizing semi-structured narrative interviews. Specifically, we used snowball sampling and recruited 13 hearing parents with a child with hearing loss born in the United States and diagnosed with hearing loss no later than 14 months of age between the years of 2016 to 2020. We used thematic analysis to uncover common themes across parent experiences. Saturation was reached at Interview #4, thus no further sampling was needed.Findings. Two major themes emerged from the data: (1) hearing healthcare experiences and (2) parents’ early experiences with their child’s HL. Subthemes were also uncovered. Three emergent subthemes related to healthcare experiences included: (1) downplayed newborn hearing screening referrals, (2) clinician-centered care, and (3) medical expenses and health coverage. The three subthemes of the second theme were: (1) parent-to-parent support, (2) “mom guilt”, and (3) a new reality.Conclusion. The present study’s subjective accounts from parents about their infants’ early hearing detection experiences revealed several different subthemes that emerged from the same, mandated newborn experience in US families across the country. Themes uncovered in these narratives support the need for a family-centered approach to the hearing screening and hearing loss diagnosis process in the United States. Action steps such as encouraging clinicians to create opportunities for parent-to-parent support for hearing parents affected by newborn hearing loss could move the field of pediatric hearing health care closer toward a family-centered approach. Specifically, such steps could address families’ concerns and expectations surrounding newborn hearing screening and hearing loss while simultaneously working toward the Joint Commission on Infant Hearing’s goals of the earliest hearing loss detection, diagnosis, and intervention for these infants.

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Section: Family-centered Carementioning

confidence: 99%

Exploring the Stories of Parents’ Experiences with Infant Hearing-Loss Screening and Diagnosis in the United States

Barker¹

2022

Preprint

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“…At the time data were collected, a call was made for a patient revolution, where patients play a leading role in their care (Richards, Coulter, & Wicks, 2015). Since that time, there has been increasing evidence for the influence of patient participation interventions on patient outcomes, with a systematic review of 16 studies showing encouraging results for the impact of patient-centered interventions on fall rates and appropriate medication use (Rossiter, Levett-Jones, & Pich, 2020), yet these interventions have yet to be integrated into practice (Sharma et al, 2018). Given the time it takes to implement evidence © 2021 Sigma Theta Tau International into practice, and the systematic approach to implementation required, it is likely that our dataset still provide valuable insights for practice today.…”

Section: Limitationsmentioning

confidence: 99%

Comparing Perceptions of Patient Nonparticipation in Nursing Care: A Secondary Analysis

Tobiano

Marshall

Chaboyer

2021

J of Nursing Scholarship

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Purpose Patient participation is characterized by dyadic patient–nurse interactions that enable patients to passively or actively participate in communicative and physical care activities. Less research has been conducted on nonparticipation. Examining this phenomenon may highlight issues to address and identify strategies that may ultimately promote patient participation and move the rhetoric of patient participation to a reality. The aim of this secondary analysis was to explore hospital patients’ and nurses’ perceptions of nonparticipation in nursing care specifically focused on communication and self‐care. Design Secondary supplementary analysis of qualitative data. We collated original transcripts from one dataset that included 20 patient and 20 nurse interviews conducted at two hospitals in Australia, in November 2013 to March 2014. Methods Interviews were arranged into units of analysis dependent on group (patient/nurse) and setting (public/private hospital) and were reanalyzed using manifest, inductive content analysis. Findings Two categories were found: (a) nurses impeding two‐way clinical communication; and (b) patients and nurses disregarding patients’ self‐care efforts. These categories describe that nonparticipation occurred when nurses inhibited communication, and when patients were not involved in self‐care while hospitalized or during discharge planning. Conclusions Perceptions of nonparticipation differ across settings, having implications for how patient participation recommendations are enacted in different contexts. Clinical Relevance There is no one‐size‐fits‐all approach; nurses need to identify common instances of nonparticipation within their setting and develop and implement strategies to promote patient participation that are suited to their context.

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“…Recovery is therefore closely related to the wider, global phenomenon person-centred care which affects a panorama of healthcare settings (Rossiter et al, 2020;Stewart et al, 2014).…”

Section: Introductionmentioning

confidence: 99%

Escalating complexity and fragmentation of mental health service systems: the role of recovery as a form of moral communication

Weaver

2021

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PurposeTheoretical generalisation provides the basis for tackling problems of service complexity, fragmentation and disrupted care pathways.Design/methodology/approachRecent mental health service transformation in Wales, United Kingdom, has been stimulated by a policy programme underpinned by person-centred recovery values. This paper offers analysis informed by the perspectives of Niklas Luhmann and other noted theorists to examine escalating service system complexity related to this transformation. Analysis builds upon the findings of a qualitative study employing thematic discourse analysis of talk of people with mental illness and associated workers.FindingsIn total, three themes were constructed in participants' talk: “Competing versions of recovery”, “Misaligned service expectations” and “Disrupted care pathways.” Recovery may be understood as a form of moral communication and autopoietic meaning-making activity, according to Luhmann's radical constructionist epistemology. This has the potential to generate competing versions of recovery, a key contributor to escalating complexity.Research limitations/implicationsFindings could be developed further by continued investigation of the relationship between recovery implementation and service fragmentation.Social implicationsA more judicious, balanced policy-implementation may cultivate optimal conditions for recovery pluralism by avoiding polarisation towards either top-down, policy-based recovery implementation or a proliferation of approaches at the grassroots level. Findings have implications for healthcare settings beyond the scope of mental healthcare, given the prevalence of person-centred care internationally.Originality/valueA simplistic view of recovery implementation should be challenged. Recovery should not be considered a “magic bullet” for mental healthcare delivery. Haphazard recovery-implementation may have detrimental effects of escalating complexity, service fragmentation and disrupted care pathways.

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The impact of person-centred care on patient safety: An umbrella review of systematic reviews

Cited by 26 publications

References 37 publications

Exploring the Stories of Parents’ Experiences with Infant Hearing-Loss Screening and Diagnosis in the United States

Exploring the Stories of Parents’ Experiences with Infant Hearing-Loss Screening and Diagnosis in the United States

Comparing Perceptions of Patient Nonparticipation in Nursing Care: A Secondary Analysis

Escalating complexity and fragmentation of mental health service systems: the role of recovery as a form of moral communication

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