The impact of organized community capacity building on health risk practices in an African American community

LaVigne, Donna Antoine; Addison, Clifton; Jenkins, Brenda W. Campbell; Smith, Chris; Thigpen, Darcel; Stewart, Alyce; Smith, Alice H.; Sarpong, Daniel F.

doi:10.5455/jbh.20130217103823

Cited by 6 publications

(9 citation statements)

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“…The DCC provided three online and five onsite workshops, developed/distributed more than 250 copies of the booklet and posted instructions on the RTRN website to facilitate the data utility. Five related manuscript proposals, eleven presentations, seven published papers [ 46 , 47 , 48 , 49 , 50 , 51 , 52 ] and two R01 and two small (R03 and R21) grant proposals were supported.…”

Section: Discussionmentioning

confidence: 99%

User-Friendly Data-Sharing Practices for Fostering Collaboration within a Research Network: Roles of a Vanguard Center for a Community-Based Study

Lee

Sung

Barnett

et al. 2015

IJERPH

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Although various attempts have been made to build collaborative cultures for data sharing, their effectiveness is still questionable. The Jackson Heart Study (JHS) Vanguard Center (JHSVC) at the NIH-funded Research Centers in Minority Institutions (RCMI) Translational Research Network (RTRN) Data Coordinating Center (DCC) may be a new concept in that the data are being shared with a research network where a plethora of scientists/researchers are working together to achieve their common goal. This study describes the current practices to share the JHS data through the mechanism of JHSVC. The JHS is the largest single-site cohort study to prospectively investigate the determinants of cardiovascular disease among African-Americans. It has adopted a formal screened access method through a formalized JHSVC mechanism, in which only a qualified scientist(s) can access the data. The role of the DCC was to help RTRN researchers explore hypothesis-driven ideas to enhance the output and impact of JHS data through customized services, such as feasibility tests, data querying, manuscript proposal development and data analyses for publication. DCC has implemented these various programs to facilitate data utility. A total of 300 investigators attended workshops and/or received training booklets. DCC provided two online and five onsite workshops and developed/distributed more than 250 copies of the booklet to help potential data users understand the structure of and access to the data. Information on data use was also provided through the RTRN website. The DCC efforts led to the production of five active manuscript proposals, seven completed publications, 11 presentations and four NIH grant proposals. These outcomes resulted from activities during the first four years; over the last couple of years, there were few new requests. Our study suggested that DCC-customized services enhanced the accessibility of JHS data and their utility by RTRN researchers and helped to achieve the principal goal of JHSVC of scientific productivity. In order to achieve long-term success, the following, but not limited to these, should be addressed in the current data sharing practices: preparation of new promotional strategies in response to changes in technology and users’ needs, collaboration with the Network statisticians, harmonization of the JHS data with the other local-based heart datasets to meet the needs of the potential users from the broader geographical areas, adoption of the RTRN comprehensive data-sharing policy to broaden the variety of research topics and implementation of an ongoing monitoring program to evaluate its success.

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Section: Discussionmentioning

confidence: 99%

User-Friendly Data-Sharing Practices for Fostering Collaboration within a Research Network: Roles of a Vanguard Center for a Community-Based Study

Lee

Sung

Barnett

et al. 2015

IJERPH

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“…The CPO planned energetic, sustainable participant/community engagement. To ensure the continued success of the JHS and sustainability of its health education/health promotion agenda, the CPO implemented five CHANs in the JHS study area (communities of Bolton/Edwards, Mississippi, USA, Canton, Mississippi, USA, Clinton, Mississippi, USA, Pearl, Mississippi, USA, and Jackson, Mississippi, USA) and organized health promotion/health activities to train the CHAN members to acquire the capacity to facilitate the JHS goals of reducing health disparities and promoting health education within their respective communities [ 32 ].…”

Section: Methodsmentioning

confidence: 99%

“…The participants were exposed to Community Health Awareness Training, General Health Education Training, CHAN Training, Know Your Numbers Training (KYN), and CHAN Sustainability Training, while receiving informal counseling and social support. They attended activities monthly to build capacity and promote healthy lifestyles, behaviors, and personal responsibility [ 32 ].…”

Section: Methodsmentioning

confidence: 99%

Twenty Years of Leading the Way among Cohort Studies in Community-Driven Outreach and Engagement: Jackson State University/Jackson Heart Study

Addison

Jenkins

White

et al. 2021

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Background: History has recorded the tremendous concerns and apprehension expressed by African Americans about participating in research studies. This review enumerates the collaborative techniques that were utilized by the Jackson State University (JSU) Jackson Heart Study (JHS) community-focused team to facilitate recruitment and retention of the JHS cohort and to implement health education and health promotion in the JHS communities. Methods: This review describes the evolution of the JSU JHS community initiatives, an innovative community-driven operation, during the period 1999–2018. Results: JSU JHS community-focused investigators published approximately 20 manuscripts, including community-led research and publications with community lead authors and co-authors, research and publications in collaboration with other JHS staff, through other JSU-funded projects. The JSU JHS community-focused unit also initiated the JHS Community Training Activities, developed the Community Health Advisory Network (CHAN), and trained and certified 137 Community Health Advisors. In addition, the JSU JHS community-focused unit developed the Collaborative Community Science Model (CCSM) that symbolized its approach to community engagement and outreach, and a Trust Scale for ascertaining African Americans’ willingness to engage in biomedical research collaborations. Conclusion: This review offers educators, public health professionals, and research investigators a useful starting point for the development, selection, or improvement of techniques to motivate, inspire, and engage community residents in a community–academia partnership that yielded maximum benefits in the areas of health education, health promotion and interventions, and biomedical research. Substantial, meaningful community engagement is possible when prioritizing elimination of health disparities and long-term improvement in health care access in the target populations.

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“…Th e Celebration of Life (COL) is an annual event designed to celebrate the life and legacies of the African American family and highlight the importance of the Jackson Heart Study (JHS). 4 It is the largest JHS participatory event. At the COL, internationally recognized speakers present information relevant to African American health status.…”

Section: List Of Corc Working Groups and Responsibilities Corc Working Groupsmentioning

confidence: 99%

“…In order to measure success in meeting project objectives and intended outcomes, and to facilitate the assessment of intervention impacts, 7 the CORC developed an evaluation framework or model that incorporated lessons learned from 15 years of experience in developing recruitment, retention, health education, and health promotion strategies and activities for the Jackson Heart Study community and its 5301 cohort. 4 Th e CORC elements that are evaluated include Community Health Advisors activities, activities involving the JHS community partners, and JHS events requiring community/ participants involvement. For this evaluation, CORC has developed guiding questions for the evaluation, identifi ed the method or procedure for collecting information, specifi ed the measurements for the outcomes, established the timeline for data collection and report preparation, and indicated the responsible parties.…”

Section: List Of Corc Working Groups and Responsibilities Corc Working Groupsmentioning

confidence: 99%

Operational and Management Structure of the Jackson Heart Study Community Outreach Center

Addison¹,

Jenkins²,

White³

et al. 2020

Journal of Health Care for the Poor and Underserved

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The impact of organized community capacity building on health risk practices in an African American community

Cited by 6 publications

References 0 publications

User-Friendly Data-Sharing Practices for Fostering Collaboration within a Research Network: Roles of a Vanguard Center for a Community-Based Study

User-Friendly Data-Sharing Practices for Fostering Collaboration within a Research Network: Roles of a Vanguard Center for a Community-Based Study

Twenty Years of Leading the Way among Cohort Studies in Community-Driven Outreach and Engagement: Jackson State University/Jackson Heart Study

Operational and Management Structure of the Jackson Heart Study Community Outreach Center

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