The Impact of Lupus Erythematosus Cutaneous on the Quality of life: The Brazilian–Portuguese Version of DLQI

Ferraz, Luci Biaggi; Almeida, Fernando Augusto de; Vasconcellos, Mônica Ribeiro Azevedo; Faccina, A. S.; Ciconelli, Rozana Mesquita; Ferraz, Marcos Bosi

doi:10.1007/s11136-005-2638-9

Cited by 66 publications

(73 citation statements)

References 13 publications

(8 reference statements)

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…22 Previous reports demonstrated a weak correlation between a poor QOL with younger age, 2 but no connection between the QOL and current age. 23 Unlike those reports, our results suggested that the older patients were more impaired in ''Symptoms'' before treatment. In rheumatic disorders including rheumatic arthritis, SLE, scleroderma and Sjo¨gren's syndrome, older patients experienced a more impaired QOL than younger patients, but pain also warranted attention, especially in younger patients.…”

Section: Evaluation Of Qol Of Le Patients With Cutaneous Lesions In Jcontrasting

confidence: 99%

Evaluation of the quality of life of lupus erythematosus patients with cutaneous lesions in Japan

Ishiguro

Hashizume

Ikeda

et al. 2013

Lupus

View full text Add to dashboard Cite

The quality of life (QOL) of lupus erythematosus (LE) patients with skin manifestations is impaired, but little is known about Japanese patients. We assessed whether the skin symptoms in LE are associated with the QOL using the Japanese versions of the Skindex-29 and Cutaneous Lupus Erythematosus Disease Area and Severity Index (CLASI). In all, 54 LE patients with cutaneous lesions completed the Japanese version of the Skindex-29, and physicians assessed the severity of their eruptions using the CLASI before and after treatment. The QOL of the LE patients was better after the therapeutic intervention using the Skindex-29 questionnaire. We tested several factors for an independent association with the QOL. A significant risk factor for a poor QOL was a female gender in "Functioning" before treatment. In addition, a poor QOL tended to be correlated with a female gender in "Emotions" and older current age in "Symptoms" before treatment, and with a longer duration of SLE in "Functioning" after treatment. In the CLASI analysis, skin manifestation activity in the acute phase correlated with a poor emotional and functional QOL rather than a symptomatic QOL. To the best of our knowledge, this is the first report evaluating the QOL of Japanese LE patients, despite the small cohort.

show abstract

Section: Evaluation Of Qol Of Le Patients With Cutaneous Lesions In Jcontrasting

confidence: 99%

Evaluation of the quality of life of lupus erythematosus patients with cutaneous lesions in Japan

Ishiguro

Hashizume

Ikeda

et al. 2013

Lupus

View full text Add to dashboard Cite

show abstract

“…17 Num estudo junto a pacientes com lúpus eritematoso cutâneo, foram encontradas médias superiores na capacidade funcional e no aspecto social e médias inferiores na saúde mental e no estado geral de saúde. 11 Na maioria dos estudos citados, então, a capacidade funcional apresenta o menor prejuízo.…”

Section: Resultados Dados Sócio-demográficosunclassified

Qualidade de vida e localização da lesão em pacientes dermatológicos

Ludwig

Oliveira

Müller

et al. 2009

An. Bras. Dermatol.

View full text Add to dashboard Cite

Resumo: FUNDAMENTOS -O aspecto visível das lesões de pele e seu impacto psicológico interferem na qualidade de vida dos pacientes. OBJETIVOS -Avaliar qualidade de vida e localização da lesão dermatológica, verificar associação entre variáveis e comparar níveis de qualidade de vida em pacientes com lesões na face/ou mãos e pacientes somente com lesões em outras regiões do corpo que não face e/ou mãos. MÉTODO -Estudo transversal, descritivo, de associação. Foram avaliados 205 sujeitos através do Questionário Genérico de Qualidade de Vida-SF-36 "The Medical Outcomes Study 36-item Short-Form Health Survey" (SF-36) e do Dermatology Life quality Index, fichas de dados sócio-demográficos e de localização da lesão. RESULTADOS -Não foram observadas diferenças significativas na qualidade de vida entre os dois grupos, mas o número de associações entre SF-36 e DLQI-BRA foi superior no grupo com lesões em face e/ou mãos. Diferenças significativas foram verificadas quando da divisão em cinco grupos. A diferença significativa (p=0,05) foi entre o grupo com lesões somente em face e/ou mãos e o grupo com lesões generalizadas, sendo que este último teve posto médio de 114,06 contra 69,1935 do outro grupo. CONCLUSÕES -Independente da localização da lesão, o sentimento de exposição e os prejuízos a que fica sujeito o paciente dermatológico são semelhantes. As doenças da pele, ao que parece, provocam sentimento de exposição e constrangimento, independente do local do corpo acometido, pois na aproximação mais íntima de outra pessoa está implicada certa exposição. Palavras-chave: Dermatologia; Psicologia; Qualidade de vida Abstract: Background -The visible aspect of skin lesions and its psychological impact interfere in the quality of life of patients. Objectives-To assess the quality of life and site of dermatological lesion; to check associations between variables and compare levels of quality of life in patients with lesions on the face and/or hands and patients with lesions in parts of the body other than face and/or hands. Methods -descriptive, association-based cross-sectional study. Two hundred and five subjects were assessed using SF-36 Generic Life Quality Questionnaire "The Medical Outcomes Study 36-item Short-Form Health Survey" (SF-36); the Dermatology Life Quality Index DLQI-BRA, and socio-demographical and lesion site data files. Results -No significant differences were observed in the results for quality of life between the two groups but the number of associations between SF-36 and DLQI-BRA was higher in the group with lesions on the face and/or hands. Significant differences were verified in a further detailed division into five groups. The significant difference (p=0.05) appeared between the group with lesions on the face and/or hands and the group with generalized lesions, being that the latter presented an average ranking of 114.06 compared with 69.1935 in the former group. Conclusion -Regardless of the site of lesion, the feeling of exposure and the damages to which the dermatological patients are exposed are simi...

show abstract

“…16,17 The SF-36 is a generic instrument that evaluates quality of life over the previous four weeks. The questionnaire was developed by Ware and Sherbourne in 1992.…”

Section: Methodsmentioning

confidence: 99%

“…To do so, two questionnaires were applied that had already been validated and culturally adapted for use in Brazil: the Medical Outcomes Study 36-item short-form health survey (SF-36), a generic instrument, and the Dermatology Life Quality Index (DLQI) a disease-specific instrument. 16,17 Whereas the DLQI deals with quality of life by directly addressing the components that are most likely to be affected in patients with skin diseases, the SF-36 deals with quality of life generically, incorporating all the domains considered important in measuring the general concept of quality of life.…”

Section: Introductionmentioning

confidence: 99%

Estudo da qualidade de vida nos pacientes com urticária crônica

Souza

Rotta

et al. 2011

An. Bras. Dermatol.

View full text Add to dashboard Cite

BACKGROUND: Chronic urticaria affects patients by interfering with their daily activities, damaging their self-esteem and negatively affecting their interpersonal relationships. Healthcare professionals may underestimate the impact of the condition on patients' quality of life. OBJECTIVES: To evaluate quality of life using one generic and one disease-specific health-related quality of life instrument; to compare quality of life between the different clinical types of chronic urticaria and to evaluate whether angioedema further impairs quality of life. METHODS: Sixty-two patients with chronic urticaria, who had had signs or symptoms of the disease within the preceding week, were divided into groups according to whether they had ordinary chronic urticaria, physical chronic urticaria or mixed chronic urticaria. RESULTS: There was a predominance of women in this study (72.6%). The mean age of patients was 39.8 years and angioedema was associated with chronic urticaria in 75.8% of cases. Associated angioedema was more commonly found in patients with ordinary chronic urticaria (p=0.011) and in women (p=0.024). With respect to the different clinical types, 32.3% of the patients had ordinary chronic urticaria, 27.4% had physical chronic urticaria and 40.3% had mixed chronic urticaria. Mean overall score for the disease-specific questionnaire was 10.4. In this questionnaire, the most affected domains were "symptoms and feelings" and "daily activities", while the most affected domains in the SF-36 were "physical role" and "vitality". Quality of life was found to be impaired in women, in patients of up to 30 years of age, in those attending a first consultation, in those with higher education levels, in patients who had had the disease for up to one year and in those with angioedema. CONCLUSIONS: Chronic urticaria affects quality of life, as measured using a disease-specific questionnaire and a generic questionnaire. There was no statistically significant difference between the clinical types. The presence of angioedema impaired patients' quality of life even further. There was a statistically significant correlation between the scores obtained using the disease-specific questionnaire and those obtained using the generic questionnaire. Keywords: Angioedema; Quality of life; Questionnaires; Sickness impact profile; Urticaria Resumo: FUNDAMENTOS: A urticária crônica compromete o doente por interferir nas atividades diárias, prejudicar a autoestima e as relações interpessoais. Os profissionais de saúde subestimam seu impacto na qualidade de vida dos doentes. OBJETIVOS: Avaliar a qualidade de vida com questionário específico e genérico. Compará-la entre os tipos clínicos de urticária crônica e avaliar se o angioedema piora a qualidade de vida. MÉTODOS: Participaram 62 doentes com urticária crônica, com sinais e sintomas da doença até 7 dias da consulta, que foram divididos em urticária crônica comum, urticária crônica física e urticária crônica mista. RESULTADOS: Observou-se predominância de mulheres (72,6%), idade m...

show abstract

The Impact of Lupus Erythematosus Cutaneous on the Quality of life: The Brazilian–Portuguese Version of DLQI

Abstract: The results suggest that the Brazilian-Portuguese version of the DLQI is a reliable and valid outcome measure to be used in LE clinical studies.

Cited by 66 publications

References 13 publications

Evaluation of the quality of life of lupus erythematosus patients with cutaneous lesions in Japan

Evaluation of the quality of life of lupus erythematosus patients with cutaneous lesions in Japan

Qualidade de vida e localização da lesão em pacientes dermatológicos

Estudo da qualidade de vida nos pacientes com urticária crônica

Contact Info

Product

Resources

About