The Impact of Inflammatory and Infectious Diseases of Vulvar on Quality of Life

Kelekci, Kiymet Handan; Özyurt, Selçuk; Özkan, Bülent; Karaca, Şemsettin; Karakuzu, Ali; Bilgin, İlgül

doi:10.6118/jmm.2016.22.3.131

Cited by 14 publications

(12 citation statements)

References 21 publications

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“…A first expected result of our study was the great efficacy of a topical potent corticosteroid, like MMF, in improving both symptoms and clinical signs of VLS ( Table 2) and DLQI median score decreased from 6 [3][4][5][6][7][8] to 2 [1][2][3][4][5] (P < .0001). It was particularly interesting that PRISM and DLQI sores showed greater coefficients of variation when compared with those referred to global symptoms (GSS), objective features (GOS) and dyspareunia (Table 3).…”

Section: Discussionmentioning

confidence: 80%

“…Vulvar chronic inflammatory diseases may be very distressing due to their symptoms, chronic course, involvement of intimate parts, sexual dysfunction, possible disfiguring anatomical changes and the response to treatment, which is often unsatisfactory 1‐5 . A recent study provided practical evidence of the suitability of the Pictorial Representation of Illness and Self‐Measure (PRISM) in capturing and quantifying the global burden of suffering in patients affected with these diseases, namely lichen sclerosus, lichen planus and lichen simplex chronicus 6 .…”

Section: Introductionmentioning

confidence: 99%

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Measuring perceived benefit and disease‐related burden in patients affected with vulvar lichen sclerosus after a standard topical corticosteroid treatment. Results from a cohort study using Pictorial Representation of Illness and Self‐measure and Dermatology Life Quality Index

Borghi

Odorici

Scuderi

et al. 2020

Dermatologic Therapy

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Improvement in suffering after treatment has been poorly investigated in women affected with vulvar lichen sclerosus (VLS). We performed an observational study on a cohort of VLS patients for assessing the effect of a 12-week topical corticosteroid treatment on their VLS-related burden, as measured with Pictorial Representation of Illness and Self-Measure (PRISM) and Dermatology Life Quality Index (DLQI). Demographics and disease-related subjective and objective scores (at baseline, T0, and at the control visit, T1) were recorded. The PRISM and DLQI were administered at T0 and T1. We assessed the variation of PRISM and DLQI at T1 compared to baseline and the relevance of several variables on these changes. Sixty-three patients were included. A significant improvement was found in both PRISM and DLQI after treatment. A higher coefficient of variations was observed for PRISM and DLQI as compared to subjective and objective scores. Improvement of global subjective score after treatment was the sole variable associated with PRISM and DLQI variations. The corticosteroid treatment led to a significant decrease in the impact of VLS on patients' well-being, in terms of suffering and quality of life impairment. PRISM seems a reliable instrument for integrating clinicians' and patients' perspectives for a comprehensive VLS management.

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Section: Discussionmentioning

confidence: 80%

Section: Introductionmentioning

confidence: 99%

Measuring perceived benefit and disease‐related burden in patients affected with vulvar lichen sclerosus after a standard topical corticosteroid treatment. Results from a cohort study using Pictorial Representation of Illness and Self‐measure and Dermatology Life Quality Index

Borghi

Odorici

Scuderi

et al. 2020

Dermatologic Therapy

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“…In another study it was found that the difference between the quality of life in urban and rural areas is related to socio-economic factors, lack of trust in health services, and lack of similar attitude to independence in villages that leads to growing dissatisfaction of quality of life in rural elderly menopause 23. In study Kelekçi et al24 found that vulvar dermatoses was particularly significantly associated with decreased quality of life. Another research on comparing urban and rural lifestyle in Chinese elderly population demonstrated that the quality of life in is lower in village than the city, and rural menopause have higher symptoms of depression due to solitude that consequently can lead to lower quality of life in these menopause 25.…”

Section: Discussionmentioning

confidence: 99%

Comparing Quality of Life of Elderly Menopause Living in Urban and Rural Areas

et al. 2019

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Objectives The present study aimed to compare the quality of life of elderly menopause living in urban/rural areas of Abadeh, Iran. Methods This descriptive and cross-sectional study was conducted on 312 urban and 68 rural elderly population using the two-stage (systematic random classification) and objective-based sampling methods. Data were collected by Leiden-Padua questionnaire for assessment of quality of life in elderly menopause. SPSS software (version 21) and descriptive-analytical tests were used for data analysis. Results The results showed that the overall quality of life was 37.5 and 34.2 in rural and urban areas, respectively, and no statistically significant difference was observed between them. However, there was statistically significant difference in the mean score of depression and anxiety, cognitive function, social function, life satisfaction, and sexual activity in urban and rural elderly menopause ( P < 0.001). Conclusions It seems necessary to pay more attention to the elderly menopause to improve their quality of life and consider proper planning for their empowerment and coping skills training.

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“…Other vulvar inflammatory conditions have been studied marginally from this point of view. 11,12 Some remarks could be made with respect to the methodological approach of these studies. First, some tools used for measuring patients' self-appraised health status, especially the questionnaires assessing quality of life, may be difficult to understand or not intuitive, especially for elderly subjects or those with low educational levels.…”

Section: Introductionmentioning

confidence: 99%

“…From these studies, it emerged that vulvar LS and LP can negatively affect patients' daily lives and significantly impair their physical and social activities, mental health and intimate relationships. Other vulvar inflammatory conditions have been studied marginally from this point of view 11,12 …”

Section: Introductionmentioning

confidence: 99%

Pictorial Representation of Illness and Self‐Measure to assess the perceived burden in patients with chronic inflammatory vulvar diseases: an observational study

Corazza

Virgili

Toni

et al. 2020

Acad Dermatol Venereol

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Background Chronic inflammatory vulvar diseases can have a huge detrimental impact on patient welfare. A few studies have addressed this issue so far, mainly measuring patients' quality of life or sexual dysfunction. Objective To assess the burden of suffering in patients with chronic inflammatory vulvar diseases using the Pictorial Representation of Illness and Self-Measure (PRISM), a visual, non-verbal instrument. We also assessed (i) the concordance between PRISM and the Dermatology Life Quality Index (DLQI), (ii) whether some variables, both patient-related and disease-related, affect the patient's suffering and quality-of-life impairment. Methods We evaluated for inclusion in this cross-sectional study all patients who attended our Vulva Unit over a 9month period with histologically proven lichen sclerosus (LS), lichen planus (LP), lichen simplex chronicus (LSC), eczema, plasma cell vulvitis and psoriasis (at least five for each disease). Demographics and disease-related subjective and objective scores were recorded. The PRISM and DLQI were administered. Results We included 87 patients affected with LS, 13 with LSC and seven with LP. Median PRISM values (0-273 mm) ranged from 95 to 120 mm, depending on the disease, and median DLQI scores (0-30) were five for all three groups. Neither PRISM nor DLQI scores differed significantly among the three groups. Moderate coherence was found between PRISM and DLQI (q = 0.5455, P < 0.001). Global subjective score was the only variable significantly associated with the degree of suffering and quality-of-life impairment. Conclusions Pictorial Representation of Illness and Self-Measure proved to be a valuable, highly reliable tool for measuring the perceived burden in these patients. In spite of a moderate correlation, PRISM resulted more sensitive in capturing patient distress than DLQI.

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The Impact of Inflammatory and Infectious Diseases of Vulvar on Quality of Life

Cited by 14 publications

References 21 publications

Measuring perceived benefit and disease‐related burden in patients affected with vulvar lichen sclerosus after a standard topical corticosteroid treatment. Results from a cohort study using Pictorial Representation of Illness and Self‐measure and Dermatology Life Quality Index

Measuring perceived benefit and disease‐related burden in patients affected with vulvar lichen sclerosus after a standard topical corticosteroid treatment. Results from a cohort study using Pictorial Representation of Illness and Self‐measure and Dermatology Life Quality Index

Comparing Quality of Life of Elderly Menopause Living in Urban and Rural Areas

Pictorial Representation of Illness and Self‐Measure to assess the perceived burden in patients with chronic inflammatory vulvar diseases: an observational study

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