The impact of including carers in museum programmes for people with dementia: a realist review

Kinsey, Debbie; Lang, Iain; Orr, Noreen; Anderson, Rob; Parker, Daisy

doi:10.1080/17533015.2019.1700536

Cited by 16 publications

(16 citation statements)

References 43 publications

(127 reference statements)

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“…j. There can be mismatch in the way the carer and the person with dementia wants to use the session, which can cause tension or distress One of the common aims of these programmes is an 'enjoying together' for the dyad, and one of the key positive outcomes outlined in the review (Kinsey et al, 2019) was the idea of shared respitea break, together, away from dementia and their roles as carer and cared-for, which also appeared to be the case for some dyads in this study. However, it was also apparent dyads use the session in different ways.…”

Section: Session Functionmentioning

confidence: 99%

“…There is a need for more theoretically-informed work which considers the role of the dyad specifically in arts interventions ( Bourne et al, 2020 ). Kinsey et al’s (2019) realist review developed 16 theory statements on the impact of including carers in museum programmes within four themes of outcomes: seeing the person with dementia in a new way and building relationships, shared respite, excess disability, and reduced social isolation. The review suggested including carers can have both positive and negative impacts on the carer, the person with dementia, and the relationship between them.…”

Section: Introductionmentioning

confidence: 99%

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A conceptual model of the impact of including carers in museum programmes for people with dementia

et al. 2022

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Background Research has highlighted a need for more theoretical work in arts interventions, including the role of the dyad. This study aimed to test theories from a literature review on the impact of including carers in museum programmes for people with dementia, and develop a model which can be used in other programmes to consider the impact of including carers more broadly. Methods Using a realist evaluation approach, theory was developed through interviews and participant-observation at six museums in the UK. Findings The impacts of including carers fell into seven broad areas – caring responsibility, session function, controlling access, preventing engagement, comparisons and losses, long-term impact of in-the-moment activities, and reducing social isolation and opening up the museum. Conclusions Including carers may have both unanticipated benefits and negative consequences, and greater attention is needed on how both carers and people with dementia can be supported in shared sessions. Carers should be viewed as participants of programmes, and can even be the main beneficiaries, even where the programme is ostensibly ‘for’ the person with dementia – it’s not simply that carers are the enablers of, or barriers to, the impacts on the person with dementia.

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Section: Session Functionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

A conceptual model of the impact of including carers in museum programmes for people with dementia

et al. 2022

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“…For some, it may not be feasible to attend museum programmes without the participation of carers, whilst for others, doing an activity on their own may prove beneficial and enjoyable. Future research comparing the processes during object handling sessions with and without carers could be an interesting avenue to explore the themes identified here such as active participation and group collaboration , as carer’s participation in museum interventions for PLWD has been found to have both positive and negative impacts ( Kinsey et al ., 2021 ). Likewise, giving participants a choice if they wanted PLWD-carer groups or preferred only PLWD groups would provide more opportunities for co-decision making.…”

Section: Discussionmentioning

confidence: 99%

Subjective wellbeing in people living with dementia: exploring processes of multiple object handling sessions in a museum setting

et al. 2021

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Background: Dementia care guidance highlights the importance of supporting people living with dementia to access engaging and meaningful activities to promote their quality of life. There is a growing evidence base for the efficacy of heritage settings and arts-based interventions to provide social prescribing opportunities to help support wellbeing in this population. This study extended previous research and explored the potential processes underlying this effect in multiple small group object handling sessions in a museum setting. Methods: A mixed-methods design was used comprising a measure of subjective wellbeing and thematic analysis to explore in-the-moment session content across multiple sessions. Four people with dementia participated in three, one-hour group object handling sessions led by two facilitators. Results: Pre-post wellbeing scores showed increases after each session though this was largely not significant. Qualitative findings provided more compelling results, however, and identified four key themes: facilitating, interest in exploring objects, active participation, and group collaboration; interpretations were made around the dynamic interaction of themes and subthemes over the course of three sessions. Conclusions: This is the first study we are aware of that has taken an in-depth look at multiple museum-based group object handling sessions for people living with dementia. Findings offer ways to optimise object handling sessions for people with dementia by providing in-depth information about the processes involved across multiple object handling sessions facilitated by museum/heritage professionals in a museum setting. This has useful implications for community-based activities as part of dementia care planning and public health programming. The study contributes to a deeper understanding and elucidates the processes that enhance wellbeing for this population who participate in such sessions. It also helps to develop further theoretical understanding about why these types of activities are helpful in community-based dementia care. Limitations and implications for future research are discussed.

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“…Recruitment continued until all participant categories were covered and themes saturated. Specifically, two focus groups (FG1, FG2) were formed from two separate cohorts enrolled in Dance to Health, a falls prevention programme that combines evidence-based Otago and Falls Management Exercise components in dance routines [ 49 , 50 ]; these groups contained high and low risk service users. Two further groups (FG3, FG4) were formed from a Patient and Public Involvement group meeting regularly at the Northern General Hospital and a social group meeting at Zest Community, a local social enterprise offering leisure, health and work support services to diverse age groups; these contained high and low risk service non-users.…”

Section: Methodsmentioning

confidence: 99%

Qualitative research to inform economic modelling: a case study in older people’s views on implementing the NICE falls prevention guideline

Kwon

Lee

Young

et al. 2021

BMC Health Serv Res

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Background High prevalence of falls among older persons makes falls prevention a public health priority. Yet community-based falls prevention face complexity in implementation and any commissioning strategy should be subject to economic evaluation to ensure cost-effective use of healthcare resources. The study aims to capture the views of older people on implementing the National Institute for Health and Care Excellence (NICE) guideline on community-based falls prevention and explore how the qualitative data can be used to inform commissioning strategies and conceptual modelling of falls prevention economic evaluation in the local area of Sheffield. Methods Focus group and interview participants (n = 27) were recruited from Sheffield, England, and comprised falls prevention service users and eligible non-users of varying falls risks. Topics concerned key components of the NICE-recommended falls prevention pathway, including falls risk screening, multifactorial risk assessment and treatment uptake and adherence. Views on other topics concerning falls prevention were also invited. Framework analysis was applied for data analysis, involving data familiarisation, identifying themes, indexing, charting and mapping and interpretation. The qualitative data were mapped to three frameworks: (1) facilitators and barriers to implementing the NICE-recommended pathway and contextual factors; (2) intervention-related causal mechanisms for formulating commissioning strategies spanning context, priority setting, need, supply and demand; and (3) methodological and evaluative challenges for public health economic modelling. Results Two cross-component factors were identified: health motives of older persons; and professional competence. Participants highlighted the need for intersectoral approaches and prioritising the vulnerable groups. The local commissioning strategy should consider the socioeconomic, linguistic, geographical, legal and cultural contexts, priority setting challenges, supply-side mechanisms spanning provider, organisation, funding and policy (including intersectoral) and health and non-health demand motives. Methodological and evaluative challenges identified included: incorporating non-health outcomes and societal intervention costs; considering dynamic complexity; considering social determinants of health; and conducting equity analyses. Conclusions Holistic qualitative research can inform how commissioned falls prevention pathways can be feasible and effective. Qualitative data can inform commissioning strategies and conceptual modelling for economic evaluations of falls prevention and other geriatric interventions. This would improve the structural validity of quantitative models used to inform geriatric public health policies.

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The impact of including carers in museum programmes for people with dementia: a realist review

Abstract: The version presented here may differ from the published version. If citing, you are advised to consult the published version for pagination, volume/issue and date of publication 1The impact of including carers in museum programmes for people with dementia: A realist review

Cited by 16 publications

References 43 publications

A conceptual model of the impact of including carers in museum programmes for people with dementia

A conceptual model of the impact of including carers in museum programmes for people with dementia

Subjective wellbeing in people living with dementia: exploring processes of multiple object handling sessions in a museum setting

Qualitative research to inform economic modelling: a case study in older people’s views on implementing the NICE falls prevention guideline

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