The impact of food allergy on the daily activities of children and their families

Bollinger, Mary E.; Dahlquist, Lynnda M.; Mudd, Kim; Sonntag, Claire; Dillinger, Lindsay; McKenna, Kristine

doi:10.1016/s1081-1206(10)60908-8

Cited by 328 publications

(318 citation statements)

References 16 publications

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“…Findings from six studies indicated that restrictions affected patients and their caregivers differently (30,35,44,54,55,69). Patients expressed their restrictions in terms of limitations on social activities such as birthday parties, sleepovers, and field trips (30,54), and the feeling of sadness from having to abstain from certain foods (55).…”

Section: Theme 3: Quality Of Lifementioning

confidence: 99%

Gaps in anaphylaxis management at the level of physicians, patients, and the community: a systematic review of the literature

Kastner

Harada

Waserman

2010

Allergy

116

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To cite this article: Kastner M, Harada L, Waserman S. Gaps in anaphylaxis management at the level of physicians, patients, and the community: a systematic review of the literature. Allergy 2010; 65: 435–444.AbstractDiagnosis and management of anaphylaxis can be a challenge because reactions are often unexpected and progress quickly. The focus of anaphylaxis management has mostly been on the acute episode, with little attention given to the long‐term management of patients at risk. This is compounded by conflicting information in current guidelines and a general lack of agreement among clinicians about which management strategies are the most appropriate. We systematically reviewed the literature to identify and summarize studies that investigated gaps in anaphylaxis management. Our search included MEDLINE, EMBASE, CINAHL, and Evidence‐Based Medicine Reviews. Studies were included if they addressed an outcome describing gaps in anaphylaxis knowledge, education, anaphylaxis management, and quality of life (QOL). Populations of interest were health care professionals involved in the care of patients at risk for anaphylaxis, and patients of any age, their parents, caregivers, and teachers in primary care, hospital or community settings. Of 5014 citations that were identified, the final 59 studies (selected from 75 full‐text articles) met the inclusion criteria. Two hundred and two gaps were identified and classified according to major themes: gaps in knowledge and anaphylaxis management (physicians and patients); gaps in follow‐up care (physicians); and QOL of patients and caregivers. Findings from this systematic review revealed gaps in anaphylaxis management at the level of physicians, patients, and the community. Findings will be used to provide a basis for developing interventional strategies to help address these deficiencies.

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Section: Theme 3: Quality Of Lifementioning

confidence: 99%

Gaps in anaphylaxis management at the level of physicians, patients, and the community: a systematic review of the literature

Kastner

Harada

Waserman

2010

Allergy

116

View full text Add to dashboard Cite

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“…Apesar da importância do tema, ainda existem poucos estudos neste sentido, sendo que a maioria aborda grupos de pacientes com alta prevalência de alergia a amendoim e/ou frutas oleaginosas [3][4][5][6][7][8][9] . Por outro lado, em nosso país, o leite de vaca é um dos principais alérgenos nesta faixa etária e sua exclusão é extremamente difícil, por sua ampla distribuição em produtos alimentícios e sua importância nutricional na alimentação da criança e mesmo assim, não se encontram trabalhos onde se abordem os problemas relacionados a essa restrição.…”

Section: Introductionunclassified

Perceptions of Caregivers of Patients With Cow’s Milk Allergy Regarding the Treatment

Yonamine

Contim²,

Castro³

et al. 2013

J. Hum. Growth Dev.

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Journal of Human Growth and Development 2013; 23(1): 58-64 ORIGINAL RESEARCH Resumo:Este estudo qualitativo teve como objetivo compreender as percepções de familiares de crianças e adolescentes com alergia à proteína do leite de vaca (APLV) em relação à doença e seu tratamento. Foram realizadas nove entrevistas e foi utilizado o método de análise de conteúdo. Surgiram três categorias com subcategorias: tratamento e educação do paciente e familiares (experiências vividas, base do tratamento e como lidar com a doença), resolução da doença (expectativa e melhora gradativa), qualidade de vida (inclusão social, cotidiano familiar e custo dos alimentos). Os familiares vivenciaram dificuldades durante o início do tratamento, mas revelaram que as orientações fornecidas no seguimento tornaram as adaptações à doença mais fáceis. Comentaram sobre as dificuldades em obter a colaboração de outros membros da família em relação à dieta de exclusão, suas experiências frente a uma reação alérgica, dúvidas quanto ao tratamento e lacunas do conhecimento sobre a doença entre outros médicos e na população em geral. Alguns deles acreditavam que não havia tratamento para a APLV, porque não existiam medicamentos ou vacinas, mas mantinham a esperança da descoberta de uma cura. A maioria dos familiares estava satisfeita com a melhora gradativa dos seus filhos, percebida pela redução da gravidade dos sintomas e tolerância a traços de leite. Também comentaram sobre os esforços em proporcionar uma vida normal para seus filhos, as mudanças em suas vidas e a dificuldade em comprar alimentos especiais. Em conclusão, os familiares de crianças e adolescentes com APLV sentem grande impacto da doença.Palavras-chave: pesquisa qualitativa; hipersensibilidade alimentar; criança; hipersensibilidade a leite. Abstract:The aim of this qualitative study was to understand the perceptions of caregivers of children and adolescents with cow's milk allergy regarding the disease and its treatment. Nine caregivers were interviewed and content analysis method was used. Three categories with subcategories emerged: treatment and education of the patient and their caregivers (life experiences, bases of treatment, coping with the disease), resolution of the disease (hope, gradual improvement), quality of life (social inclusion, family daily activities, costs of dietary treatment). Caregivers experienced difficulties during the initial treatment but pointed out that the guidance given during follow-up made the adjustments easier. Family members commented on the difficulties about lack of cooperation from other family members regarding the restrictive diet, their experience coping with the allergic reaction, doubts about the treatment and gaps on knowledge about the disease by other physicians and people. Some of them believed that there is no treatment for the disease, because there are no drugs or vaccines, but they were waiting for cure. The majority of relatives were satisfied with the gradual improvement of patients observed by reduction on the severity of sympt...

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“…The only proven therapy is careful avoidance of the causal food(s) and provision of medication for emergency treatment [3]. Consequently, patients often fear an allergic reaction and are continuously faced with dietary and social restrictions in their daily lives, which can have a negative impact on quality of life [4][5][6][7][8][9][10][11].…”

Section: Introductionmentioning

confidence: 99%

Test–retest reliability of the Food Allergy Quality of Life Questionnaires (FAQLQ) for children, adolescents and adults

et al. 2009

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Objective The self-administered Food Allergy Quality of Life Questionnaire-Child Form (FAQLQ-CF), -Teenager Form (FAQLQ-TF) and -Adult Form (FAQLQ-AF) were recently developed within EuroPrevall, a multi-centred study of food allergy in Europe. The primary aim of this study was to evaluate the test-retest reliability of the FA-QLQ-CF, -TF and -AF. Methods One hundred and one Dutch patients (31 children, 34 adolescents and 36 adults) completed the FAQLQ twice with a 10-14 day interval. The intraclass correlation coefficient (ICC), Lin's concordance correlation coefficient (CCC) and Bland-Altman plots were used to assess testretest reliability. Results Test-retest reliability was excellent with ICCs and CCCs above 0.907, 0.975 and 0.951 for the FAQLQ-CF, -TF and -AF, respectively. Bland-Altman plots showed that the mean differences of the test and re-test were all close to zero for the FAQLQs. Conclusions The FAQLQs are reliable over a short time interval. The FAQLQs are not only excellent tools for group comparison studies, but also for monitoring individual patients.

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The impact of food allergy on the daily activities of children and their families

Cited by 328 publications

References 16 publications

Gaps in anaphylaxis management at the level of physicians, patients, and the community: a systematic review of the literature

Gaps in anaphylaxis management at the level of physicians, patients, and the community: a systematic review of the literature

Perceptions of Caregivers of Patients With Cow’s Milk Allergy Regarding the Treatment

Test–retest reliability of the Food Allergy Quality of Life Questionnaires (FAQLQ) for children, adolescents and adults

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