The impact of first episode psychosis on sibling quality of life

Bowman, Siann; Álvarez‐Jiménez, Mario; Wade, Darryl; Howie, Luke; McGorry, Patrick D.

doi:10.1007/s00127-013-0817-5

Cited by 26 publications

(55 citation statements)

References 65 publications

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“…In an Australian study with siblings of young people experiencing FEP, Bowman et al (2014) found that suicide attempts resulted in less satisfaction in the siblings’ quality of life. Sisters were more vulnerable to the effects of suicide with significant impact made to their quality of life.…”

Section: Discussionmentioning

confidence: 99%

“…It is difficult to conceive that family work can occur without the involvement of siblings both in terms of the unique importance of the relationship and the growing literature documenting the pervasive impact of FEP on sibling lives (Newman et al, 2011; Sin et al, 2011, 2013; Bowman et al, 2013, 2014, 2015). Qualitative studies in the United Kingdom with siblings of individuals with FEP show that common experiences include resentment, grief, loss, blame, stigma, fear of becoming ill themselves, shame, powerlessness, stop inviting friends home, keep their ill brother or sister’s secrets, provide support to their parents rather than the other way around, and provide a great deal of direct and indirect care within the family (Sin et al, 2008, 2011, 2013).…”

Section: Introductionmentioning

confidence: 99%

“…Qualitative studies in the United Kingdom with siblings of individuals with FEP show that common experiences include resentment, grief, loss, blame, stigma, fear of becoming ill themselves, shame, powerlessness, stop inviting friends home, keep their ill brother or sister’s secrets, provide support to their parents rather than the other way around, and provide a great deal of direct and indirect care within the family (Sin et al, 2008, 2011, 2013). Sisters have been found to have difference experiences to brothers (Newman et al, 2011; Sin et al, 2011; Bowman et al, 2014, 2015). …”

Section: Introductionmentioning

confidence: 99%

“…This can lead to long periods of untreated psychosis, which can impact upon the prospects of recovery (Perkins et al, 2005). Australian studies have shown that when the young person with FEP has attempted suicide and/or has a history of violence, there is a significant and negative impact on the sibling relationship and their quality of life (Bowman et al, 2013, 2014, 2015). …”

Section: Introductionmentioning

confidence: 99%

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The Positive and Negative Experiences of Caregiving for Siblings of Young People with First Episode Psychosis

et al. 2017

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Background: The impact of first episode psychosis (FEP) upon parents’ experience of caregiving has been well-documented. However, the determinants and nature of this remain poorly understood in siblings. It is hypothesized that siblings of young people with FEP are also impacted by caregiving and burden. This study aimed to characterize the experience of caregiving for siblings of young people with FEP.Method: Survey methodology was used to explore the experience of 157 siblings in the first 18 months of their brother or sister’s treatment for FEP. Participants reported on their appraisal of the negative and positive aspects of caregiving as measured by the Experience of Caregiving Inventory (ECI). Descriptive statistics were used to establish the results for the total sample as well as for gender and birth order differences. A series of multivariate regression analyses were conducted to determine the relationships between illness characteristics and siblings’ experience of caregiving.Results: Older brothers reported the lowest scores for negative experiences in caregiving and younger sisters reported the highest. Negative experiences in caregiving resulted in less warmth within the sibling relationship and impacted negatively upon quality of life. When the young person with FEP had attempted suicide and/or been physically violent, siblings experienced more caregiver burden. Multivariate analysis showed that female gender was a significant factor in explaining the impact of illness related variables on the experience of caregiving.Conclusion: Suicide attempts and a history of violence resulted in higher caregiving burden for siblings regardless of whether they lived with the young person experiencing FEP or not. Female siblings are at higher risk of negative experiences from caregiving resulting in a reduced quality of life and a changed sibling relationship. Suicide attempts and violence are indicators for intensive case management to improve outcomes for the individual with FEP which may in turn reduce the burden experienced by the sibling. Clinicians can use these findings to identify siblings, assertively intervene and provide increased psychological support, psychoeducation and practical problem solving to reduce the burden. The caregiving role that they already play for their ill brother or sister should be recognized.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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The Positive and Negative Experiences of Caregiving for Siblings of Young People with First Episode Psychosis

et al. 2017

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“…As a result, tensions may arise between members, and siblings may suffer reduced quality of life (Bowman et al, 2014) as parents need to invest more in the diagnosed relative.…”

Section: Introductionmentioning

confidence: 99%

Moderated Online Social Therapy: A Model for Reducing Stress in Carers of Young People Diagnosed with Mental Health Disorders

et al. 2017

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Family members caring for a young person diagnosed with the onset of mental health problems face heightened stress, depression, and social isolation. Despite evidence for the effectiveness of family based interventions, sustaining access to specialist family interventions is a major challenge. The availability of the Internet provides possibilities to expand and sustain access to evidence-based psychoeducation and personal support for family members. In this paper we describe the therapeutic model and the components of our purpose-built moderated online social therapy (MOST) program for families. We outline the background to its development, beginning with our face-to-face EPISODE II family intervention, which informed our selection of therapeutic content, and the integration of recent developments in positive psychology. Our online interventions for carers integrate online therapy, online social networking, peer and expert support, and online social problem solving which has been designed to reduce stress in carers. The initial version of our application entitled Meridian was shown to be safe, acceptable, and feasible in a feasibility study of carers of youth diagnosed with depression and anxiety. There was a significant reduction in self-reported levels of stress in caregivers and change in stress was significantly correlated with use of the system. We have subsequently launched a cluster RCT for caregivers with a relative diagnosed with first-episode psychosis. Our intervention has the potential to improve access to effective specialist support for families facing the onset of serious mental health problems in their young relative.

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