The impact of epilepsy on quality of life: a qualitative analysis

Bishop, Malachy; Allen, Charles E.

doi:10.1016/s1525-5050(03)00111-2

Cited by 106 publications

(76 citation statements)

References 23 publications

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“…The psychosocial impact of epilepsy is not always related to its medical severity, since epilepsy is a stigmatizing condition (Baker, 2001;Bishop & Allen, 2003). However, there is also evidence that the negative repercussion of pediatric epilepsy depends on its characteristics and associated cognitive and behavioral difficulties (Campos Castello, 2006;El Sabbagh et al, 2006;Elger, Helmstaedter, & Kurthen, 2004;Herranz, 2007;Krishnamoorthy et al, 2007;Lee & Chan, 2002;Trimble, 1995).…”

mentioning

confidence: 99%

Behavioral problems, cognitive difficulties and quality of life in children with epilepsy: An analysis of parental concerns

Soria

Escolano

Sabbagh

et al. 2012

Child Neuropsychology

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In cognitively impaired or young children with epilepsy, only proxy-report can be used for the assessment of Quality of Life (QOL) and behavior. The present study aims to propose proxy QOL tools applicable in all children with epilepsy and to examine the impact of epilepsy characteristics (e.g., age of onset of epilepsy, epilepsy syndrome) and child's age and situation (in mainstream school or in special institution). We studied 219 children with various types of epilepsy with and without cognitive impairment. The study adapted published QOL scales and used a new parental QOL questionnaire. Selected items concerned 6 "domains" of QOL: global QOL, illness impact, depression/anxiety, hyperactivity/disrupting behavior, sociability, and parental QOL. School situation, epilepsy syndrome, and age were significantly and differentially related to the QOL domains. The proposed QOL tools are applicable to all children with epilepsy independently of comorbid conditions and can be used in a clinical context and for research studies of QOL in children with epilepsy. Epilepsy syndromes in children and their associated factors have a crucial impact on parental concerns and QOL.

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mentioning

confidence: 99%

Behavioral problems, cognitive difficulties and quality of life in children with epilepsy: An analysis of parental concerns

Soria

Escolano

Sabbagh

et al. 2012

Child Neuropsychology

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“…However, a small number of studies were conducted in Canada, Sweden, and Australia [3]. According to Kerr et al [3], the adult perspective, which underpins the focus of our paper (because of our concentration later on in the paper on surgical treatment for adults who have had repeated seizures), presents experiential impact in relation to stigma [4], QoL [5], patient decision-making [6], access to care [7,8], psychosocial adjustment to personal life [9], attitudes to epilepsy [10], emotional impact of treatment [11], and professional intervention [12].…”

Section: The Research Literaturementioning

confidence: 99%

Qualitative research and its methods in epilepsy: Contributing to an understanding of patients' lived experiences of the disease

Rapport

Clement

Doel

et al. 2015

Epilepsy & Behavior

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This review paper makes the case for the usefulness of qualitative research methods in the context of epilepsy research. It begins with an assessment of the current state of epilepsy literature and identifies gaps especially in the following: research in 'developing' countries and research around surgery for adults with epilepsy. It makes the case that disclosure of people's behaviors, actions, and reactions in different, often complex health-care situations can indicate how they bring meaning to their disease experiences and support needs. It shows the value of encouraging work that clarifies how patients manage their illness and how they understand changes in their health and well-being over the life course of their illness and how health-care professionals and other stakeholder groups care for those with epilepsy. The paper suggests a range of methods for addressing gaps in the literature and highlights a range of data collection, data analysis, and data interpretation and synthesis techniques that are appropriate in this context. It pays particular attention to the strengths of qualitative applications in mixed-methods research using an example from a recent ulcerative colitis drug trial that indicates how they can be integrated into study findings, add rich description, and enhance study outcomes. Ethnographic methodology is also presented, as a way of offering rare access to the 'lived experience' dimension, before the paper concludes with an assessment of the qualitative criteria of credibility, dependability, transferability, and confirmability for judging a study's 'trustworthiness'. The criteria evidence not only the trustworthiness of data and findings but also the ways in which a study has approached any challenges inherent in its research design.

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“…The life satisfaction of women with epilepsy is affected by many factors including their health status, society's attitude towards them [11], and the chronic illness's impact on their perception, self-esteem, and mental health [12]. Various studies indicate that women with epilepsy have various psychosocial problems and are in a less favorable condition in the areas of occupational status, physical health, education, interpersonal relations, and mental health [5,[13][14][15][16].…”

Section: Women With Epilepsy's Life Satisfactionmentioning

confidence: 99%

Beyond medical diagnosis: Factors contributing to life satisfaction of women with epilepsy in Israel

Sulimani‐Aidan

Rimmerman

2015

Epilepsy & Behavior

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The impact of epilepsy on quality of life: a qualitative analysis

Cited by 106 publications

References 23 publications

Behavioral problems, cognitive difficulties and quality of life in children with epilepsy: An analysis of parental concerns

Behavioral problems, cognitive difficulties and quality of life in children with epilepsy: An analysis of parental concerns

Qualitative research and its methods in epilepsy: Contributing to an understanding of patients' lived experiences of the disease

Beyond medical diagnosis: Factors contributing to life satisfaction of women with epilepsy in Israel

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