The Impact of Critical Illness on Perceived Health-Related Quality of Life During ICU Treatment, Hospital Stay, and After Hospital Discharge

Hofhuis, José G.M.; Spronk, Peter E.; Stel, Henk F. van; Schrijvers, Guus; Rommes, Johannes H.; Bakker, Jan

doi:10.1378/chest.07-1217

Cited by 162 publications

(122 citation statements)

References 33 publications

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“…In common with other research, findings highlight the enormous emotional and physical impact of critical illness, [32][33][34][35][36][37] which affects information delivery at this time.…”

Section: Discussionsupporting

confidence: 80%

Involving Users in the Development of Effective Critical Care Discharge Information: A Focus Group Study

Bench

Day

Griffiths

2011

American Journal of Critical Care

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Background Discharge from critical care to a general care unit is a difficult period, and more effective information is needed to support patients and their families at this time. Objectives This study sought the views of patients, relatives and health care staff on (1) the most effective methods of delivering critical care discharge information, (2) the required information content of any proposed strategies, (3) the benefits and limitations of any existing strategies, and (4) potential resource implications. Methods In this qualitative focus group study, 11 adult patients, 8 family members, and 23 health care staff in England took part in 8 focus group interviews at 2 hospitals. The computer software program NVIVO7 was used for thematic analysis of the data. Results Three key themes were identified from the data: (1) considerations related to effective discharge information, (2) goals of critical care discharge information, and (3) resource implications. Conclusions This focus group study provides unique user insight into what influences successful and unsuccessful information giving. Based on real experiences, it adds to the limited international body of current evidence. Findings will be of value in designing future critical care discharge information and identifying the related resource implications.

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“…In common with other research, findings highlight the enormous emotional and physical impact of critical illness, [32][33][34][35][36][37] which affects information delivery at this time.…”

Section: Discussionsupporting

confidence: 80%

Involving Users in the Development of Effective Critical Care Discharge Information: A Focus Group Study

Bench

Day

Griffiths

2011

American Journal of Critical Care

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“…The data collected by filling out the questionnaires allowed us to calculate the scores on two numeric scales: the Karnofsky scale; and a scale to assess activities of daily living (ADLs). (13)(14)(15) …”

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confidence: 99%

“…(6,9,(16)(17)(18)(19) The reintegration of such patients into society, in terms of their ability to maintain adequate social interaction or perform their activities satisfactorily, has yet to be thoroughly investigated. (12)(13)(14)(15) There are few data regarding the need for hospital readmissions, the degree of dependence, the ability to remain self-sufficient, and the ability to resume work activities. The principal sequelae in individuals who survive critical disease are cognitive impairment, (20,21) neuromuscular weakness, polyneuropathy, (22) end-stage renal failure, (23) and ventilatory support dependence.…”

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confidence: 99%

Exacerbação aguda da DPOC: mortalidade e estado funcional dois anos após a alta da UTI

et al. 2011

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Objective: To assess ICU patients with COPD, in terms of in-hospital characteristics, two-year mortality and two-year functional status of survivors. Methods: A prospective cohort study involving patients with acute exacerbation of COPD admitted to the ICUs of two hospitals in the city of Porto Alegre, Brazil, between July of 2005 and July of 2006. At two years after discharge, survivors were interviewed by telephone in order to determine Karnofsky scores and scores on a scale regarding activities of daily living (ADL). Results: The sample comprised 231 patients. In-hospital mortality was 37.7%, and two-year post-discharge mortality was 30.3%. Of the 74 survivors, 66 were interviewed (89%). The mean age at ICU admission was 74 ± 10 years, and the mean Acute Physiology and Chronic Health Evaluation II score was 18 ± 7. Two or more comorbidities were present in 87.8% of the patients. Of the 66 interviewees, 57 (86.3%) lived at home, 58 (87.8%) were self-sufficient, 12 (18.1%) required oxygen therapy, and 4 (6.1%) still required ventilatory support. There was a significant reduction in the quality of life and autonomy of the survivors, as evidenced by the Karnofsky scores (85 ± 9 vs. 79 ± 11, p = 0.03) and ADL scale scores (29 ± 5 vs. 25 ± 7; p = 0.01), respectively. Conclusions: In this patient sample, two-year mortality was quite high. Although there was a noticeable reduction in the functional status of the survivors, they remained self-sufficient.Keywords: Pulmonary disease, chronic obstructive/mortality; Quality of life; Intensive care units. ResumoObjetivo: Determinar a taxa de mortalidade de pacientes com DPOC e avaliar o estado funcional dos sobreviventes dois anos após a alta da UTI. Métodos: Estudo de coorte prospectiva realizada nas UTIs de dois hospitais na cidade de Porto Alegre (RS) com pacientes com exacerbação aguda de DPOC e internados em UTI entre julho de 2005 e julho de 2006. Dois anos após a alta, os sobreviventes foram entrevistados via telefone. Os dados obtidos foram utilizados na determinação dos escores da escala de Karnofsky e de uma escala de atividades de vida diária (AVD). Resultados: Foram incluídos 231 pacientes. A mortalidade hospitalar foi de 37,7% e a mortalidade extra-hospitalar foi de 30,3%. Dos 74 sobreviventes, foram entrevistados 66 (89%). A média de idade dos pacientes no momento da internação na UTI era de 74 ± 10 anos e a do escore Acute Physiology and Chronic Health Evaluation II era de 18 ± 7. Tinham duas ou mais comorbidades 87,8% dos pacientes. Dos 66 entrevistados, 57 (86,3%) viviam em suas casas, 58 (87,8%) eram capazes de realizar seu autocuidado, 12 (18,1%) utilizavam oxigenoterapia, e 4 (6,1%) necessitavam suporte ventilatório. Houve uma significante redução na qualidade de vida e na autonomia, segundo os escores da escala de Karnofsky (85 ± 9 vs. 79 ± 11; p = 0,03) e de AVD (29 ± 5 vs. 25 ± 7; p = 0,01), respectivamente. Conclusões: A mortalidade desta amostra de pacientes foi muito elevada nos primeiros dois anos. Embora houvesse evidente redução do esta...

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“…The recovery pathway for survivors of critical illness is not uniform across all elements of outcome, with some elements being more compromised or returning to normal levels more rapidly than others, for example physical function may improve more quickly than psychological function (Hofhuis et al, 2008, Berkius et al, 2013.…”

Section: When Should We Monitor Outcomes?mentioning

confidence: 99%

Monitoring and optimising outcomes of survivors of critical illness

Aitken

Marshall

2015

Intensive and Critical Care Nursing

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The Impact of Critical Illness on Perceived Health-Related Quality of Life During ICU Treatment, Hospital Stay, and After Hospital Discharge

Cited by 162 publications

References 33 publications

Involving Users in the Development of Effective Critical Care Discharge Information: A Focus Group Study

Involving Users in the Development of Effective Critical Care Discharge Information: A Focus Group Study

Exacerbação aguda da DPOC: mortalidade e estado funcional dois anos após a alta da UTI

Monitoring and optimising outcomes of survivors of critical illness

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