The impact of COVID-19 on community integration, quality of life, depression and anxiety in people with chronic spinal cord injury

García-Rudolph, Alejandro; Saurí, Joan; Carballo, Jaume López; Cegarra, Blanca; Wright, Mark Andrew; Opisso, Eloy; Tormos, J.

doi:10.1080/10790268.2021.1922230

Cited by 19 publications

(13 citation statements)

References 46 publications

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“…Several studies proposed some suggestions for the protection of PWDs in the COVID-19 epidemic [9][10][11]. Garcia et al reported that people with chronic spinal cord injury (SCI) showed signi cantly decreased social integration during the COVID-19 pandemic compared to pre-pandemic scores, while the prevalence of depression was signi cantly higher than before COVID-19 [12]. Another study revealed that the lockdown restrictions had a negative impact on the physical activity and mental health of children and young people with disabilities [13].…”

Section: Introductionmentioning

confidence: 99%

WITHDRAWN: The overall impact on the daily life of people with disabilities in Mainland China: two cross-sectional studies

Wang

Yan

Xie

et al. 2023

Preprint

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Background COVID-2019 has become a public health crisis, and as a vulnerable group, people with disabilities (PWDs) might be more seriously affected. However, the overall impact of COVID-19 on PWDs is unclear in Mainland China. Thus, we aimed to analyze the overall impact on PWDs from the early remission stage to the regular control stage of the COVID-19 pandemic in Mainland China. Methods In March 2020 and March 2021, anonymous questionnaires were distributed in the WeChat group of the PWDs using a convenient sampling method. The personal and family characteristics, perceived risk of COVID-19 infection, and the overall impact of COVID-19 on daily life and medical services needs were collected. The descriptive analysis, chi-square test, and multiple logistic regression analysis were used. Results 311 and 1083 PWDs were enrolled in 2020 and 2021, respectively. In 2020, 82.0% of the participants reported a negative impact on their daily life, and the proportion of big impact was 20.3%. In 2021, 73.1% of PWDs reported a negative impact on their daily life. Multivariate analysis found the impact on medical services needs was the common associated factor of the overall impact on daily life in 2020 and 2021, and PWDs with lower annual household income or chronic diseases were more likely to suffer bigger negative effects in 2020, while being in quarantine or not at work, having items in shortage and with less disability severity (without multiple disabilities or spinal cord injury) were the associated factors in 2021. Based on the matching method, we found that the overall impact on the daily life of PWDs decreased in 2021. Conclusions A majority of the PWDs reported a negative impact on their daily life in Mainland China at the early remission stage of the COVID-19 pandemic, and the impact has significantly weakened during the normal control period in 2021. It is recommended to fulfill the medical service needs of PWDs in a timely manner, and those being in quarantine or not at work, without SCI or multiple disabilities, and reporting some items in shortage suffered a bigger major overall COVID-19 impact on daily life.

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Section: Introductionmentioning

confidence: 99%

WITHDRAWN: The overall impact on the daily life of people with disabilities in Mainland China: two cross-sectional studies

Wang

Yan

Xie

et al. 2023

Preprint

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“…Similarly, in response to an online survey, individuals with SCI in the United Kingdom reported feeling anxiety and social isolation as a result of the pandemic (Hearn et al, 2021). Other work found that individuals with SCI experienced decreased social integration and increased depression during the pandemic compared with their prepandemic self-reported scores on validated instruments (García-Rudolph et al, 2021). In another study, almost half of SCI health care providers (45%) reported depression or anxiety due to the pandemic in their patients with SCI (Gustafson et al, 2021).…”

Section: Discussionmentioning

confidence: 99%

“…With regard to psychosocial outcomes, reports from a mailed survey of newly injured individuals with SCI in Japan showed that 40% of individuals experienced low health-related quality of life during the pandemic (Matsuoka & Sumida, 2021) and an online survey showed lower quality of life after the pandemic versus before (Elaraby et al, 2022). Other survey studies (mostly online, one by telephone) reported that individuals with SCI experienced anxiety (Gustafson et al, 2021; Hearn et al, 2021; Vives Alvarado et al, 2021) and depression (García-Rudolph et al, 2021; Gustafson et al, 2021; Vives Alvarado et al, 2021) during the pandemic. In addition, individuals with SCI were at risk of feeling socially isolated in response to the pandemic (Hearn et al, 2021; Mikolajczyk et al, 2021; Monden et al, 2021).…”

Section: Introductionmentioning

confidence: 99%

The impact of the COVID-19 pandemic on individuals living with spinal cord injury: A qualitative study.

LaVela¹,

Wu²,

Nevedal³

et al. 2023

Rehabilitation Psychology

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Purpose/Objective: To explore the impact of the COVID-19 pandemic as experienced and reported by individuals living with a spinal cord injury (SCI). Research Method/Design: Descriptive qualitative design using in-depth semistructured interviews with individuals with SCI (n = 33) followed by thematic analysis. Results: Three main themes described impacts of the COVID-19 pandemic. (a) Impact on health care use; subthemes elaborated that this was attributable to in-person health care facility restrictions or individual decisions to delay care. Individuals with SCI experienced lapses in primary and SCI-specialty care, rehabilitation/therapy services, and home care, but some made use of telehealth services. (b) Impact on weight and/or weight management lifestyle behaviors; subthemes discussed that engagement in physical activity declined because of fitness center closures, recreational activity cancellations, and safety precautions limiting community-based and outdoor activities. The pandemic disrupted participants’ independence in purchasing and making preferred food selections which impacted healthy eating. Participants ate due to boredom, at nonmealtimes, and consumed unhealthy foods during the pandemic. (c) Impact on psychosocial factors; included subthemes noting reduced social interactions, social participation, and ability to pursue pastimes with family, friends, and groups they belonged to. The pandemic also triggered emotional reactions such as worry, fear, doubt, demotivation, and feelings of social isolation. Conclusions: Our findings highlight the magnitude of consequences faced by individuals with SCI when restrictions to health care, healthy lifestyle endeavors, and social participation occurred during the COVID-19 pandemic. Findings may inform SCI health care providers on what is needed in response to future public health or natural disaster crises.

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“…In a study of the elderly's experiences during quarantine, Gholamzad et al found that one of the main extracted themes was negative outcomes, including illness anxiety disorder, social isolation, mood problems, interpersonal conflicts, and death anxiety (24). In a study, García-Rudolph et al showed a high rate of anxiety and depression among SCI patients (25), which is consistent with the results of the present study suggesting the fear of death and fear of loneliness among the patients.…”

Section: Discussionmentioning

confidence: 99%

Challenges of Patients with Spinal Cord Injury During the COVID-19 Pandemic: A Qualitative Study

2021

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Background: Spinal cord injury (SCI) is a chronic condition leading to physical and psychological problems along with numerous economic burdens for patients. In late 2019, an unknown disease called COVID-19 broke out, which quickly spread throughout the world. Objectives: The aim of the present study was to determine the challenges of SCI patients during the COVID-19 pandemic. Methods: This was a qualitative study performed among SCI patients after obtaining the code of ethics from the Research Ethics Committee of Ilam University of Medical Sciences in 2021. Data were collected using semi-structured, face-to-face individual interviews, in accordance with health protocols, in a safe environment without stress until reaching data saturation. Data were saturated after interviewing nine patients; to ensure data saturation, two additional interviews were conducted. Each interview lasted between 30 and 45 minutes, depending on the condition of each patient. The written files of the interviews were analyzed using MAXQDA software. Results: The mean age of the participants was 54 years, and 68% of the participants were male. After analyzing the data obtained from in-person interviews, three main themes, including expectations (need for financial support, need for social support, and need for physical support), concerns (fear of loneliness and fear of death), and health needs (health literacy, access to services and how to transmit the disease), were extracted. Conclusions: Considering the challenges in the three areas of expectations, concerns, and health care, it is necessary to take some measures to reduce these challenges.

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The impact of COVID-19 on community integration, quality of life, depression and anxiety in people with chronic spinal cord injury

Cited by 19 publications

References 46 publications

WITHDRAWN: The overall impact on the daily life of people with disabilities in Mainland China: two cross-sectional studies

WITHDRAWN: The overall impact on the daily life of people with disabilities in Mainland China: two cross-sectional studies

The impact of the COVID-19 pandemic on individuals living with spinal cord injury: A qualitative study.

Challenges of Patients with Spinal Cord Injury During the COVID-19 Pandemic: A Qualitative Study

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