The impact of child, family, and professional support characteristics on the quality of life in families of young children with disabilities

Davis, Kate; Gavidia-Payne, Susana

doi:10.1080/13668250902874608

Cited by 231 publications

(232 citation statements)

References 40 publications

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“…Research focusing within families is critical for developing an understanding of how to best support families living with ASD. Furthermore, there is limited research focusing on the influence of support from extended family, despite preliminary research highlighting the unique contributions of such support on family functioning (Blackledge and Hayes, 2006;Davis and Gavidia-Payne, 2009;Hastings, 2003b;Rao and Beidel, 2009). For example, Davis and Gavidia-Payne (2009) found extended family member's support influenced parenting satisfaction and quality of family interactions.…”

Section: Family-focused Asd Research To Date and Its Limitationsmentioning

confidence: 99%

Family-focused autism spectrum disorder research: A review of the utility of family systems approaches

Cridland

Jones

Magee

et al. 2013

Autism

133

113

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A family member with an autism spectrum disorder presents pervasive and bidirectional influences on the entire family system, suggesting a need for family-focused autism spectrum disorder research. While there has been increasing interest in this research area, family-focused autism spectrum disorder research can still be considered relatively recent, and there are limitations to the existing literature. The purpose of this article is to provide theoretical and methodological directions for future family-focused autism spectrum disorder research. In particular, this article proposes Family Systems approaches as a common theoretical framework for future family-focused autism spectrum disorder research by considering theoretical concepts such as Boundaries, Ambiguous Loss, Resilience and Traumatic Growth. We discuss reasons why these concepts are important to researching families living with autism spectrum disorder and provide recommendations for future research. The potential for research grounded in Family Systems approaches to influence clinical support services is also discussed. Family-focused autism spectrum disorder research: A review of the utility of family systems approaches Elizabeth K Cridland, Sandra C Jones, Christopher A Magee and Peter Caputi Abstract A family member with an autism spectrum disorder presents pervasive and bidirectional influences on the entire family system, suggesting a need for family-focused autism spectrum disorder research. While there has been increasing interest in this research area, family-focused autism spectrum disorder research can still be considered relatively recent, and there are limitations to the existing literature. The purpose of this article is to provide theoretical and methodological directions for future family-focused autism spectrum disorder research. In particular, this article proposes Family Systems approaches as a common theoretical framework for future family-focused autism spectrum disorder research by considering theoretical concepts such as Boundaries, Ambiguous Loss, Resilience and Traumatic Growth. We discuss reasons why these concepts are important to researching families living with autism spectrum disorder and provide recommendations for future research. The potential for research grounded in Family Systems approaches to influence clinical support services is also discussed.

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Section: Family-focused Asd Research To Date and Its Limitationsmentioning

confidence: 99%

Family-focused autism spectrum disorder research: A review of the utility of family systems approaches

Cridland

Jones

Magee

et al. 2013

Autism

133

113

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“…In addition, other variables may be related to the quality of life of participants in this study, as the intensity of behavioral problems presented by the child 8,29 , the support of other family members 29 and professionals, offered to the children and their families 6-8,10,29,30. Another aspect shows that the instrument used in this study proved to be effective in raising important data on the burden of children caregivers with autism spectrum disorders and language disorders. However, it should be considered the relevance of other studies with a higher amount of participants, in order to confirm whether or not there statistically significant differences between the populations studied.…”

Section: Resultsmentioning

confidence: 99%

Sobrecarga familiar e crianças com transtornos do espectro do autismo: perspectiva dos cuidadores

et al. 2015

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OBJETIVO: avaliar a sobrecarga de familiares cuidadores de crianças com transtornos do espectro do autismo, segundo a percepção dos próprios cuidadores. MÉTODOS: participaram 20 sujeitos, de ambos os gêneros, com idades entre 22 e 60 anos (Média= 32,6), sendo dez familiares de crianças com transtornos do espectro do autismo e para compor o grupo controle dez familiares de crianças com transtornos de linguagem. As crianças apresentavam entre três e dez anos de idade (Média= 5,8). O grupo controle foi selecionado a partir do pareamento de idade, escolaridade e gênero das crianças. Todas as crianças encontravam-se em atendimento fonoaudiológico. Para avaliar a sobrecarga dos cuidadores foi utilizada a Escala Burden Interview e foram coletados dados sociodemográficos dos participantes. A análise estatística dos dados foi realizada a partir do teste de Mann-Whitney e da análise da Correlação Spearman (p< 0,05). RESULTADOS: a média do índice de sobrecarga do familiar cuidador de ambos os grupos foi 28, portanto, não foi observada diferença estaticamente significante e indicou que os G1 e G2 estavam moderadamente sobrecarregados. As características dos participantes também não foram significantes no índice de sobrecarga. CONCLUSÃO: cuidar de crianças com transtornos do espectro do autismo pode sobrecarregar seus familiares de modo semelhante ao de familiares de crianças com outros transtornos do desenvolvimento.

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“…Problem behaviors have been found to negatively affect parents' social relationships, increase their negative feelings about parenting, and negatively impact the quality of their marriages and relationships with the affected child's siblings (Sikora et al, 2013). Such findings are particularly concerning because family functioning has been shown to be correlated with the prognosis of a child with ASD (Davis & Gavidia-Payne, 2009;King, King, Rosenbaum, & Goffin, 1999;Park, Turnbull, & Turnbull, 2002).…”

mentioning

confidence: 87%

Practice Recommendations for Addressing Problem Behaviors in Siblings with Autism Spectrum Disorder

Mevers

Call

Miller

2017

Behav Analysis Practice

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Children with autism spectrum disorder (ASD) display an increased prevalence of problem behavior, relative to the typically developing population. Given the heritability of ASD and its growing prevalence, clinicians who implement behavioral treatments are likely to encounter families with siblings with ASD who exhibit problem behavior. Thus, there is a need for guidance for treatment of problem behavior for these families. This paper presents strategies for conducting behavioral assessments, developing treatments for problem behaviors, caregiver training, and generalization strategies when there are multiple affected children in one family. A case study is presented to illustrate the key clinical decisions made to increase the likelihood of a successful treatment outcome for these families.

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The impact of child, family, and professional support characteristics on the quality of life in families of young children with disabilities

Cited by 231 publications

References 40 publications

Family-focused autism spectrum disorder research: A review of the utility of family systems approaches

Family-focused autism spectrum disorder research: A review of the utility of family systems approaches

Sobrecarga familiar e crianças com transtornos do espectro do autismo: perspectiva dos cuidadores

Practice Recommendations for Addressing Problem Behaviors in Siblings with Autism Spectrum Disorder

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