The Impact of Cervical Cancer Education for Deaf Women Using a Video Educational Tool Employing American Sign Language, Open Captioning, and Graphics

Choe, Sun Yi; Lim, Rod Seung-Hwan; Clark, Karen; Wang, Regina; Branz, Patricia; Sadler, Georgia Robins

doi:10.1080/08858190802665245

Cited by 38 publications

(41 citation statements)

References 28 publications

(17 reference statements)

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“…However, these improvements in cervical cancer healthcare require knowledge of cervical cancer and screening. Deaf women face greater barriers to accessing health information and healthcare than hearing women, which places them at higher risk of decreased screening, later detection, and increased morbidity and mortality [2–4]. …”

Section: Discussionmentioning

confidence: 99%

“…For example, in one sample of Deaf women, 37% reported that they had no knowledge of cervical cancer [1]. Lack of knowledge has been associated with decreased screening and early detection rates, suggesting that Deaf women may be at a higher risk of discovering late stage cervical cancer and hence, at higher risk for needing more aggressive treatments and having higher rates of mortality [2–4]. …”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Cervical Cancer Control: Deaf and Hearing Women’s Response to an Educational Video

Yao¹,

Merz

Nakaji³

et al. 2011

J Canc Educ

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Cervical Cancer Control: Deaf and Hearing Women’s Response to an Educational Video

Yao¹,

Merz

Nakaji³

et al. 2011

J Canc Educ

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“…Though none have addressed genetic predispositions, efforts that address language-concordance by accounting for ASL as the first language for many deaf individuals have been found to increase their knowledge regarding a variety of cancers (3-8, 25, 26) and to promote cancer screening behaviors (6). Although conveying health information in ASL is key, these efforts also have included visual images and graphics and English language elements such as captioning or English text.…”

Section: Introductionmentioning

confidence: 99%

Bilingual approach to online cancer genetics education for Deaf American Sign Language users produces greater knowledge and confidence than English text only: A randomized study

Palmer

Boudreault

Berman

et al. 2017

Disability and Health Journal

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Introduction Deaf American Sign Language-users (ASL) have limited access to cancer genetics information they can readily understand, increasing risk for health disparities. We compared effectiveness of online cancer genetics information presented using a bilingual approach (ASL with English closed captioning) and a monolingual approach (English text). Hypothesis Bilingual modality would increase cancer genetics knowledge and confidence to create a family tree; education would interact with modality. Methods We used a block 2:1 randomized pre-post study design stratified on education. 150 Deaf ASL-users ≥18 years old with computer and internet access participated online; 100 (70 high, 30 low education) and 50 (35 high, 15 low education) were randomized to the bilingual and monolingual modalities. Modalities provide virtually identical content on creating a family tree, using the family tree to identify inherited cancer risk factors, understanding how cancer predisposition can be inherited, and the role of genetic counseling and testing for prevention or treatment. 25 True/False items assessed knowledge; a Likert scale item assessed confidence. Data were collected within 2 weeks before and after viewing the information. Results Significant interaction of language modality, education, and change in knowledge scores was observed (p=.01). High education group increased knowledge regardless of modality (Bilingual: p<.001; d=.56; Monolingual: p<.001; d=1.08). Low education group increased knowledge with bilingual (p<.001; d=.85), but not monolingual (p=.79; d=.08) modality. Bilingual modality yielded greater confidence creating a family tree (p=.03). Conclusions Bilingual approach provides a better opportunity for lower educated Deaf ASL-users to access cancer genetics information than a monolingual approach.

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“…However, use of culturally and linguistically sensitive approaches for providing health care has been shown to increase health knowledge in the deaf population regarding tobacco-related diseases (Berman et al 2011) and cervical cancer (Choe et al 2009), and to produce significant increases in understanding of prostate and testicular cancer that remained present two months after receipt of information (Folkins et al 2005). …”

Section: Introductionmentioning

confidence: 99%

Effect of Pre‐test Genetic Counseling for Deaf Adults on Knowledge of Genetic Testing

Baldwin

Boudreault²,

Fox³

et al. 2011

Journal of Genetic Counseling

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Empirical data on genetic counseling outcomes in the deaf population are needed to better serve this population. This study was an examination of genetics knowledge before and after culturally and linguistically appropriate pre-test genetic counseling in a diverse deaf adult sample. Individuals ≥18 years old with early-onset sensorineural deafness were offered connexin-26/30 testing and genetic counseling. Participants completed questionnaires containing 10 genetics knowledge items at baseline and following pre-test genetic counseling. The effects of genetic counseling, prior beliefs about etiology, and participant’s preferred language on genetics knowledge scores were assessed (n = 244). Pre-test genetic counseling (p = .0007), language (p < .0001), prior beliefs (p < .0001), and the interaction between counseling and beliefs (p = .035) were predictors of genetics knowledge. American Sign Language (ASL)-users and participants with “non-genetic/unknown” prior beliefs had lower knowledge scores than English-users and participants with “genetic” prior beliefs, respectively. Genetics knowledge improved after genetic counseling regardless of participants’ language; knowledge change was greater for the “non-genetic/unknown” beliefs group than the “genetic” beliefs group. ASL-users’ lower knowledge scores are consistent with evidence that ethnic and cultural minority groups have less genetics knowledge, perhaps from exposure and access disparities. Culturally and linguistically appropriate pre-test genetic counseling significantly improved deaf individuals’ genetics knowledge. Assessing deaf individuals’ prior beliefs is important for enhancing genetics knowledge.

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The Impact of Cervical Cancer Education for Deaf Women Using a Video Educational Tool Employing American Sign Language, Open Captioning, and Graphics

Cited by 38 publications

References 28 publications

Cervical Cancer Control: Deaf and Hearing Women’s Response to an Educational Video

Cervical Cancer Control: Deaf and Hearing Women’s Response to an Educational Video

Bilingual approach to online cancer genetics education for Deaf American Sign Language users produces greater knowledge and confidence than English text only: A randomized study

Effect of Pre‐test Genetic Counseling for Deaf Adults on Knowledge of Genetic Testing

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