The impact of caregiving on caregivers of older persons and its associated factors: a cross-sectional study

Aman, Zuzana; Liew, Su May; Ramdzan, Siti Nurkamilla; Philp, Ian; Khoo, Ee Ming

doi:10.11622/smedj.2019100

Cited by 14 publications

(18 citation statements)

References 23 publications

(40 reference statements)

Supporting

Mentioning

Contrasting

Order By: Relevance

“…This study found that ethnicity was associated with negative consequences on low-intensity caregivers’ daily activities and on high-intensity caregivers’ social activities, with non-Malay caregivers more affected than Malay caregivers. The results of this study are consistent with local studies conducted among dementia caregivers in Malaysia, which reported that Chinese caregivers had higher levels of burden than Malay caregivers [ 46 , 47 ]. Many studies have also found that filial obligation and ethnocentric societal norms were components of socio-cultural differences that influenced the caregiving process [ 4 , 5 , 47 – 53 ].…”

Section: Discussionsupporting

confidence: 91%

The impacts of caregiving intensity on informal caregivers in Malaysia: findings from a national survey

Jawahir

Tan

et al. 2021

BMC Health Serv Res

View full text Add to dashboard Cite

Background Provision of informal care may adversely affect health, daily and social activities of the informal caregivers, but few studies have examined these effects in relation to caregiving intensity. This study examined the predictive factors associated with the effects of caregiving roles on health, daily and social activities of informal caregivers, accounting for caregiving intensity. Methods Data of adults aged 18 years and over from the National Health and Morbidity Survey 2019 were used. Respondent’s demographic, socioeconomic, health, and caregiving-related characteristics were described using complex samples analysis. Logistic regression analysis was performed to examine the factors affecting health, daily and social activities of caregivers, accounting for caregiving intensity. Results Five point one percent of adults in Malaysia provided informal care. High intensity caregivers were more likely to be actively employed and provided longer duration of care compared with low intensity caregivers. For low intensity caregiving, females, those aged 35–59 years, and those with long-term condition were more likely to have negative effects on health. Daily activities of non-Malays were more likely to be affected, while no factor was found significantly associated with effect on social activities. For high intensity caregiving, caregivers aged 60 and over, those received training and those without assistance were more likely to have negative effects on health. Daily activities of those without assistance were more likely to be affected. Social activities of non-Malays, those received training and those providing care for 2 years or more were more likely to be affected. Conclusions Our study indicates that both low- and high-intensity caregivers have common features, with the exception of employment status and care duration. Caregiving, regardless of intensity, has a significant impact on caregivers. In order to reduce the negative consequences of caregiving responsibilities, all caregivers need assistance from the community and government, that is customised to their needs. By addressing the factors contributing to the negative effects of caregiving, a continuation of informal caregiving can be sustained through policies supporting the growing demand for informal care necessitated by an ageing population and higher life expectancy in Malaysia.

show abstract

Section: Discussionsupporting

confidence: 91%

The impacts of caregiving intensity on informal caregivers in Malaysia: findings from a national survey

Jawahir

Tan

et al. 2021

BMC Health Serv Res

View full text Add to dashboard Cite

show abstract

“…By gaining exposure and experience to enhance organizational collaboration and communication in managing interdisciplinary client health issues, centralized coordination to manage and monitor patient care continues due to long-term care. [22][23][24] Moreover, these findings were congruent with appraisal support which significantly related that the supportive environments also have an important influence on the development, and maintenance of healthy behaviors and enabling families were essential to them, despite losses in capacity in caregiving. 25 In addition to managing a holistic health-care system, health professionals must strengthen the involvement of caregivers in the transition between care and health care.…”

Section: Discussionmentioning

confidence: 64%

Section: Discussionmentioning

confidence: 99%

Factors Associated with Quality of Care Among Dependent Older Persons in the Community

Kittipimpanon¹,

Wangpitipanit²

2021

JMDH

View full text Add to dashboard Cite

Introduction Dependent older persons who are limited in their daily activities affect physical, mental, social ability needs help in the family and the community caregiving. Objective The study aimed to analyze the relationship between caregivers’ characteristics and health conditions, social support, the burden of care, and the quality of respect for the dependent older persons. Methods The descriptive study design applies in using a Donabedian framework, including structure, process, and outcome with House’s social support. The sample consists of 102 family caregivers currently caring older people with dependency in Bangkok, Thailand. Data were collected through questionnaires, semi-structured interviews, and care quality assessments through tested content validity from 3 health experts, which received a score of 0.97. Descriptive statistics and correlation coefficients were used to analyze the information and tested using Spearman’s rank correlation; acceptable criteria were obtained before collecting the actual data. Results The results showed that they were statistically significantly related to social support and quality of care. When considering each aspect, social support was associated with the quality of physical and psychological care. Resource social support was to relate the quality of medical and financial aspects. Social support of acceptance and appreciation is associated with quality, environmental, physical, psychological, human rights, and economic elements; information social support was significantly related to information supervision quality. Discussion This study found that personal factors in age and comorbidity affect the burden of care in family caregivers. In addition, good social support will affect the quality of respect for the dependent older persons in psychological, medical, human rights, and financial dimensions. In particular, the appraisal support, incredible care, attentiveness, and dedication to care will result in a good quality of care in all areas except the quality of physical dimensions.

show abstract

“…A recent study reports there to be approximately 12 public, 454 non-government organizations (NGO) and 1,019 private nursing homes in Malaysia ( 17 ). NGOs also provide some day care services for particular groups, but day to day care for older people /people living with dementia (pwd) is primarily provided by female family members at home, with or without assistance from maids or paid caregivers ( 18 , 19 ).…”

Section: Introductionmentioning

confidence: 99%

A Qualitative Study on Formal and Informal Carers' Perceptions of Dementia Care Provision and Management in Malaysia

Goodson

McLellan

Rosli

et al. 2021

Front. Public Health

View full text Add to dashboard Cite

Background: The number of people living with dementia worldwide is increasing, particularly in low- and middle-income countries (LMICs) where little is known about existing post-diagnostic care and support. This study aimed to better understand healthcare provision for people living with dementia in Malaysia, and to identify priorities for providing timely, quality, and accessible care and support to all.Methods: This is a qualitative interview study on care providers and facilitators (health and community care professionals, paid carers, traditional medicine practitioners, faith healers, community leaders, non-governmental organisations). A topic guide, piloted in Malaysia and peer reviewed by all LMIC partners, elicited the understanding of dementia and dementia care and barriers and facilitators to care for people living with dementia and carers, and perceptions of key priorities for developing efficient, feasible, and sustainable dementia care pathways. Verbatim transcription of audio-recorded interviews was followed by iterative, thematic data analysis.Results: Twenty interviews were conducted (11 healthcare professionals, 4 traditional medicine practitioners, and 5 social support providers). The findings indicate that dementia care and support services exist in Malaysia, but that they are not fully utilised because of variations in infrastructure and facilities across the country. Despite a locally recognised pathway of care being available in an urban area, people with dementia still present to the healthcare system with advanced disease. The interviewees linked this to a public perception that symptoms of dementia, in particular, are normal sequelae of ageing. Earlier detection of dementia is commonly opportunistic when patients present to GPs, government clinic staff, and general physicians with other ailments. Dementia may only be identified by practitioners who have some specialist interest or expertise in it. Workforce factors that hindered early identification and management of dementia included lack of specialists, overburdened clinics, and limited knowledge of dementia and training in guideline use. Post-diagnostic social care was reported to be largely the domain of families, but additional community-based support was reported to be available in some areas. Raising awareness for both the public and medical professionals, prevention, and more support from the government are seen as key priorities to improve dementia management.Conclusions: This qualitative study provides novel insight into the availability, delivery, and use of post-diagnostic care and support in Malaysia from the perspective of care providers. The respondents in this study perceived that while there was a provision for dementia care in the hospital and community settings, the different care sectors are largely unaware of the services each provides. Future work should explore how care provision across different service sectors and providers can be supported to better facilitate patient access and referral between primary, secondary, and social care. The importance of supporting families to understand dementia and its progression, and strategies to help them care for relatives was emphasised. There is also a need for broad workforce training and development, at both the postgraduate and undergraduate levels, as well as improved general awareness in the community to encourage earlier help-seeking for symptoms of dementia. This will enable the use of preventive strategies and access to specialist services to optimise care and quality of life for people living with dementia in Malaysia.

show abstract

The impact of caregiving on caregivers of older persons and its associated factors: a cross-sectional study

Cited by 14 publications

References 23 publications

The impacts of caregiving intensity on informal caregivers in Malaysia: findings from a national survey

The impacts of caregiving intensity on informal caregivers in Malaysia: findings from a national survey

Factors Associated with Quality of Care Among Dependent Older Persons in the Community

A Qualitative Study on Formal and Informal Carers' Perceptions of Dementia Care Provision and Management in Malaysia

Contact Info

Product

Resources

About