The Impact of Being a Support Provider to a Person Living in the Community With a Spinal Cord Injury.

Boschen, Kathryn A.; Tonack, Mark; Gargaro, Judith

doi:10.1037/0090-5550.50.4.397

Cited by 59 publications

(57 citation statements)

References 29 publications

(34 reference statements)

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“…2,21 This study did not find any significant relationship between the level of injury and the caregiver burden, and is similar to the findings reported in other nonWestern countries. 7,22 This could be because of the fact that the majority of the paraplegic persons, who were expected to be independent in self-care and mobility, suffered from moderate-to-severe disability requiring assistance in many ADL.…”

Section: Discussionsupporting

confidence: 90%

“…The duration of the injury ranged from 1.5 to 18 years, with a mean of 7.4 years No statistically significant differences were found between ethnicity (F (2, 27) ¼ 2.39, P ¼ 0.11)) and the employment status of the caregivers (F (3, 26) ¼ 2.10, P ¼ 0.12). Although a significant difference was found between the marital status of the caregivers (F (2,27) , P ¼ 0.03), post hoc comparison did not reveal any significant differences between the groups. A statistically significant difference among the mean scores on IPWB was found for the various relationships to the care recipient group (F (4, 25) ¼ 5.…”

Section: Resultsmentioning

confidence: 65%

“…Caregivers meeting the following inclusion criteria were recruited to participate in the study: (1) cared for a person with SCI who was at least at 1 year after injury and 418 years of age; (2) provided care for at least 1 year period; (3) was an unpaid caregiver who was aged 418 years; and (4) was a Fiji citizen who was able to speak and understand English, Hindi or Fijian language.…”

Section: Participantsmentioning

confidence: 99%

“…1 SCI occurs predominantly among young adults. 2 The effects of SCI are catastrophic not only to the once active, independent person but also to the family and the society as a whole. 3 With advances in the medical and rehabilitation services, the life expectancy of persons with SCI has markedly increased, and in many cases it has approached that of the general population, [3][4][5] requiring varied levels of assistance over their lifespan.…”

Section: Introductionmentioning

confidence: 99%

“…11,12 Low levels of life satisfaction and marital adjustment, 4 ill-health and poor quality of life in caregivers has also been reported. 2,6 Much of the available research on caregivers of SCI persons is mainly from developed countries. Very little information is available on the caregivers of SCI persons in developing countries.…”

Section: Introductionmentioning

confidence: 99%

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Psychological impact and the burden of caregiving for persons with spinal cord injury (SCI) living in the community in Fiji

Gajraj-Singh

2011

Spinal Cord

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Study design: This study was designed as a cross-sectional one. A set of structured questionnaires was administered. Objectives: The purpose of the study was to explore the psychological response of the caregivers of people with spinal cord injury (SCI) and to assess the burden of caregiving for SCI persons living in the community in Fiji. Setting: Fiji, South Pacific. Methods: A total of 30 primary caregivers of persons with SCI. The Index of Psychological Well-Being (IPWB) was used to assess the psychological impact of care giving, and Caregiver Burden Inventory (CBI) was used to evaluate the burden associated with caregiving for persons with SCI. Barthel Index (BI) scale was used to measure the functional abilities of the care recipients. Results: The majority of the participants (n ¼ 20) were women, who had an ethnic Fijian background (n ¼ 18) and were married (n ¼ 18), and were spouses (n ¼ 13). Mean BI of the persons with SCI was 7.1 (s.d. ¼ 5.23) on a 0-20 scale, with 90% (n ¼ 27) suffering from moderate-to-very severe disability (BIo15). The mean duration of caregiving was 6.1 years (s.d. ¼ 4.23). On average, the caregivers provided 6.1 h (s.d. ¼ 2.19) of caregiving per day. The experiences of caregiving adversely affected the caregiver psychological well-being. Participants demonstrated high levels of time-dependent and development burden. Caregiving was significantly related to the number of hours spent providing care (r s ¼ 0.35, Po0.05), and the older caregiver age (r s ¼ 0.46, Po0.01). Conclusion: Being a primary caregiver of a SCI person contributes to caregiver burden and psychological distress. The findings indicate that the contributions of these people should be recognized and interventions should be tailored not only toward the needs of the care recipients but also to the needs of the caregivers.

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Section: Discussionsupporting

confidence: 90%

Section: Resultsmentioning

confidence: 65%

Section: Participantsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Psychological impact and the burden of caregiving for persons with spinal cord injury (SCI) living in the community in Fiji

Gajraj-Singh

2011

Spinal Cord

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Brief problem‐solving training for family caregivers of persons with recent‐onset spinal cord injuries: a randomized controlled trial

Elliott

Berry

2009

J Clin Psychol

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Our objective was to examine the effectiveness of a brief individualized problem-solving intervention for family with caregivers of persons with recent-onset spinal cord injury (SCI). Family caregivers were randomly assigned to a usual care control group (N=30) or an intervention group (N=30) in which participants were to receive three face-to-face problem-solving training sessions (PST), educational materials, and telephone contacts as requested over the first year of caregiving. The participants included 60 caregivers (49 women, 11 men). The Social Problem-Solving Inventory-Revised, the Inventory to Diagnose Depression, and the SF-36 were administered at baseline, 6 months and 12 months. Caregivers in the intervention group reported a significant decrease in dysfunctional problem-solving styles scores over time; there were no observable effects for PST on caregiver depression. There was also some indication that the intervention had beneficial effects on caregiver social and physical functioning. An intervention for new caregivers featuring brief PST, education, and contact may be associated with lower dysfunctional problem-solving styles over time and may promote certain aspects of caregiver quality of life. We also discuss limitations and implications of the present study.

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Aging and the Use of Pedestrian Facilities in Winter—The Need for Improved Design and Better Technology

Hsu

Fernie

2012

J Urban Health

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Walking outdoors is often difficult or impossible for many seniors and people with disabilities during winter. We present a novel approach for conducting winter accessibility evaluations of commonly used pedestrian facilities, including sidewalks, street crossings, curb ramps (curb cuts and dropped curbs), outdoor stairs and ramps, building and transit entrances, bus stops, and driveways. A total of 183 individuals, aged 18-85 completed our survey. The results show that cold weather itself had little impact on the frequency of outdoor excursions among middle-aged and older adults while the presence of snow and/or ice on the ground noticeably kept people, especially older adults at home. The survey found that the key elements decreasing winter accessibility were icy sidewalks and puddles at street crossings and curb ramps. While communities have recognized the need to improve snow and ice removal, little attention has been paid to curb ramp design which is especially ineffective in winter when the bottom of the ramps pool with rain, snow, and ice, making it hazardous and inaccessible to nearly all users. We conclude that investigations of alternative designs of curb ramp are needed.

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The Impact of Being a Support Provider to a Person Living in the Community With a Spinal Cord Injury.

Cited by 59 publications

References 29 publications

Psychological impact and the burden of caregiving for persons with spinal cord injury (SCI) living in the community in Fiji

Psychological impact and the burden of caregiving for persons with spinal cord injury (SCI) living in the community in Fiji

Brief problem‐solving training for family caregivers of persons with recent‐onset spinal cord injuries: a randomized controlled trial

Aging and the Use of Pedestrian Facilities in Winter—The Need for Improved Design and Better Technology

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