The impact of awareness of terminal illness on quality of death and care decision making: a prospective nationwide survey of bereaved family members of advanced cancer patients

Ahn, Eun‐Mi; Shin, Dong Wook; Choi, Jin Young; Kang, Jina; Kim, Dae Kyun; Kim, Hye-Suk; Lee, Eunil; Hwang, Kwan Ok; Oh, Byung Hwan; Cho, Belong

doi:10.1002/pon.3346

Cited by 29 publications

(56 citation statements)

References 36 publications

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“…This highlights the level of awareness of a terminal illness not only improves the quality of life but also the quality of death as it gives the patient control over the future, allowing them to make choices and prepare for death [66]. This was emphasised in prospective nationwide survey of bereaved family members of advanced cancer patients that measured the impact of awareness of terminal illness on quality of death and care decision-making [67].…”

Section: Discussionmentioning

confidence: 99%

Factors influencing palliative care in advanced dementia: a systematic review

Mataqi

Aslanpour

2019

BMJ Support Palliat Care

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Background: Dementia is a progressive neurodegenerative life-limiting disease. The international literature indicates that patients with advanced dementia may benefit from palliative care provided during the end of life phase. However, evidence indicates that currently many fail to access such provision despite the increased recognition of their palliative needs. Aim: To investigate the factors influencing provision of palliative care services for people with advanced dementia. Method: A systematic review of mixed method studies written in English was undertaken. 11 electronic databases including Embase, Medline, PubMed, CINHAL and Scopus from 2008 to 2018 were searched.Narrative synthesis and content analysis were used to analyse and synthesise the data. Key findings:In total, 34 studies were included. 25 studies providing qualitative data, 6 providing quantitative data and 3 mixed methods studies. The findings identified organisational, healthcare professionals and patients related barriers and facilitators in provision of palliative care for people with advanced dementia from perspective of stakeholders across different care settings. The most commonly reported barriers are lack of skills and training opportunities of the staff specific to palliative care in dementia, lack of awareness that dementia is a terminal illness and a palliative condition, pain and symptoms assessment/management difficulties, discontinuity of care for patients with dementia and lack of co-ordination across care settings, difficulty communicating with the patient and the lack of advance care planning. Conclusions: Even though the provision of palliative care was empirically recognised as a care step in the management of dementia, there are barriers that hinder access of dementia patients to appropriate facilities. With dementia prevalence rising and no cure on the horizon, it is crucial that health and social care regulatory bodies integrate a palliative approach into their care using the identified facilitators to achieve optimal and effective palliative care in this population.

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Section: Discussionmentioning

confidence: 99%

Factors influencing palliative care in advanced dementia: a systematic review

Mataqi

Aslanpour

2019

BMJ Support Palliat Care

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“…Those that were aware of their prognosis had a significantly higher score on a Good Death Inventory, especially in the components of control over their future and maintaining hope and pleasure. 43 In a cohort of 127 Taiwanese cancer patients some were told their prognosis and some were not.…”

Section: Can We Use Hope Research To Break Bad News Better?mentioning

confidence: 99%

Inspiring hope—A physician's responsibility, translating the science into clinical practice

Temple

2017

Journal of Surgical Oncology

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Giving hope to patients is our responsibility. It is the essence of a meaningful practice in medicine. Science now allows us to understand this complex and multidimensional human dynamic, and translate it into clinical practice. Quantitative research has shown hope is strong even in terminal illness. Through qualitative methodology hope fostering strategies and hope hindering behaviors have been identified. This exciting new knowledge facilitates the challenging task of disclosure of bad news while enabling hope.

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“…Accurate prognostic awareness is a cornerstone of preference‐based end‐of‐life (EOL) care decision‐making for terminally ill cancer patients , thus promoting optimal quality of care at EOL . Indeed, accurate prognostic awareness facilitates patients’ receiving fewer futile treatments at EOL , being prepared for death , and having better quality of life . However, Taiwanese physicians commonly do not disclose the prognosis to terminally ill cancer patients , which may lead to inaccurate prognostic awareness .…”

Section: Introductionmentioning

confidence: 99%

“…Accurate prognostic awareness is a cornerstone of preferencebased end-of-life (EOL) care decision-making for terminally ill cancer patients [1], thus promoting optimal quality of care at EOL [2][3][4][5]. Indeed, accurate prognostic awareness facilitates patients' receiving fewer futile treatments at EOL [2], being prepared for death [3], and having better quality of life [4,5].…”

Section: Introductionmentioning

confidence: 99%

Transitions in Prognostic Awareness Among Terminally Ill Cancer Patients in Their Last 6 Months of Life Examined by Multi-State Markov Modeling

et al. 2017

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Terminally ill Taiwanese cancer patients' prognostic awareness generally remained stable, with a tendency toward developing higher states of awareness. Health care professionals should appropriately assess patients' readiness for prognostic information and respect patients' reluctance to confront their poor prognosis if they are not ready to know, but sensitively coach them to cultivate their accurate prognostic awareness, provide desired and understandable prognostic information for those who are ready to know, and give direct and honest prognostic information to clarify any misunderstandings for those with inaccurate awareness, thus ensuring that they develop accurate and realistic prognostic knowledge in time to make end-of-life care decisions.

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The impact of awareness of terminal illness on quality of death and care decision making: a prospective nationwide survey of bereaved family members of advanced cancer patients

Abstract: Awareness of the terminal illness had beneficial effect on the harmonious decision making, patient autonomy, and patient's quality of death. Disclosure of terminal illness should be encouraged.

Cited by 29 publications

References 36 publications

Factors influencing palliative care in advanced dementia: a systematic review

Factors influencing palliative care in advanced dementia: a systematic review

Inspiring hope—A physician's responsibility, translating the science into clinical practice

Transitions in Prognostic Awareness Among Terminally Ill Cancer Patients in Their Last 6 Months of Life Examined by Multi-State Markov Modeling

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