The impact of an adaptation course on health-related quality of life and functional capacity of patients with inflammatory bowel disease

Haapamäki, Johanna; Heikkinen, Erjastiina; Sipponen, Taina; Roine, Risto P.; Arkkila, Perttu

doi:10.1080/00365521.2018.1500639

Cited by 15 publications

(35 citation statements)

References 28 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…A critical point of about 2 years after diagnosis being the moment when coping with IBD becomes easier was noted. Indeed, accepting the diagnosis may offer benefits to patients -previous uncontrolled research demonstrated good efficacy of an IBD adaptation course on psychological well-being (Haapamaki et al, 2018). More studies exploring disease acceptance in IBD populations are needed.…”

Section: Discussionmentioning

confidence: 99%

Lived experience in people with inflammatory bowel disease and comorbid anxiety and depression in the United Kingdom and Australia

et al. 2020

View full text Add to dashboard Cite

This study explored the lived experience of people with inflammatory bowel disease and anxiety/depression. It utilised a deductive biopsychosocial framework. Overall, 24 patients and 20 healthcare professionals from two countries participated. In the United Kingdom, the main themes included (1) bidirectional relationship between inflammatory bowel disease and mental health, (2) the need for healthcare integration and (3) lack of awareness about the disease. In Australia, (1) the ‘vicious cycle’ of inflammatory bowel disease and psychosocial health, (2) the need for biopsychosocial healthcare integration and (3) the stigma of a hidden disease. Better communication around mental illness is essential in improving inflammatory bowel disease healthcare.

show abstract

Section: Discussionmentioning

confidence: 99%

Lived experience in people with inflammatory bowel disease and comorbid anxiety and depression in the United Kingdom and Australia

et al. 2020

View full text Add to dashboard Cite

show abstract

“…Social support, the sharing of concerns and experiences with family, friends and HCPs helps to maintain high levels of HRQoL (Lesage et al, 2011;Haapamäki et al, 2018).…”

Section: Discussionmentioning

confidence: 99%

The impact of Inflammatory Bowel Disease related fatigue on Health-Related Quality of Life: a qualitative semi-structured interview study

Radford

Moran

Czuber‐Dochan

2022

Journal of Research in Nursing

View full text Add to dashboard Cite

Background Fatigue is a frequently reported symptom of Inflammatory Bowel Disease (IBD), having a negative impact on Health-Related Quality of Life (HRQoL). Patients’ experiences of this have not been researched in IBD. Methods Semi-structured interviews were conducted with adults with Crohn’s Disease from out-patient clinics in the United Kingdom. Interviews were audio-recorded and transcribed verbatim, then analysed using thematic analysis. Results Fourteen participant interviews were conducted. Three key themes were identified: 1) ‘The new normal’ established through adaptation and acceptance; 2) ‘Energy as a resource’ describing attempts to better manage fatigue through planning and prioritising tasks; 3) ‘Keeping healthy’ encompasses participants’ beliefs that ‘good health’ allows better management of fatigue. Conclusion Participants establish a ‘new’ normality, through maintaining the same or similar level of employment/education activities. However, this is often at the expense of social activities. Further research is required to explore patient led self-management interventions in IBD fatigue.

show abstract

“…The interventions were delivered in IBD centres as either outpatient or inpatient service ( n = 8) [ 33 – 37 , 40 , 46 ], in a local community centre ( n = 1) [ 44 ], in summer residential camps ( n = 3) [ 41 , 42 , 45 ], within university settings ( n = 1) [ 39 ] or the specific setting was not specified ( n = 1) [ 44 ]. All were based in high-income (European countries, USA, New Zealand) or upper middle-income countries (Brazil, Chile, and China).…”

Section: Study Characteristicsmentioning

confidence: 99%

Peer support for carers and patients with inflammatory bowel disease: a systematic review

et al. 2022

View full text Add to dashboard Cite

Background The support provided by people with the same condition, including inflammatory bowel diseases (IBD), has the potential to improve a range of psychosocial outcomes by allowing people with the disease to receive emotional support as well as to learn coping strategies from more experienced peers. The aim of this systematic review was to summarise the evidence on peer support interventions and their effectiveness on people with IBD. Methods Bibliographic databases, conference proceedings, grey literature, and clinical trial registers were searched from inception to November 2021. Comparative and single-arm studies that evaluated interventions that were solely or contained in part peer support, for people with IBD and/or their carers of any age and in any setting were included. Effectiveness was evaluated using outcomes relating to physical and psychosocial function, disease control and healthcare utilisation. Data for each outcome were tabulated and presented in a narrative synthesis. Study design specific tools were used to assess risk of bias. Study selection and risk of bias assessment were undertaken by two reviewers independently. Results Fourteen completed studies and five ongoing studies met the inclusion criteria. Substantial heterogeneity was observed in the studies in relation to the intervention type and peer support was usually part of a wider intervention. All but one study analysed the total effect of the intervention, so it was not possible to fully isolate the effect of the peer support alone. The appropriateness of outcomes and outcome measurement tools for the assessment of effects was a further key issue. As such, overall, no significant evidence of beneficial effects of peer support interventions on quality of life and other psychosocial outcomes was found. Conclusions New randomised controlled trials designed to isolate the effects of peer support are needed to evaluate the (net) effects of peer support only. Agreement on the outcomes to be targeted, and the choice of reliable and validated measurement tools for standalone peer support interventions would provide a focus for further intervention design and evaluation. Systematic review registration The protocol was accepted in the international prospective register of systematic reviews (PROSPERO CRD42020168817).

show abstract

The impact of an adaptation course on health-related quality of life and functional capacity of patients with inflammatory bowel disease

Abstract: Adaptation training appears to have a positive impact on the psychological well-being of IBD patients. Peer support appears to be an important factor.

Cited by 15 publications

References 28 publications

Lived experience in people with inflammatory bowel disease and comorbid anxiety and depression in the United Kingdom and Australia

Lived experience in people with inflammatory bowel disease and comorbid anxiety and depression in the United Kingdom and Australia

The impact of Inflammatory Bowel Disease related fatigue on Health-Related Quality of Life: a qualitative semi-structured interview study

Peer support for carers and patients with inflammatory bowel disease: a systematic review

Contact Info

Product

Resources

About