The Illness Management Survey: Identifying Adolescents' Perceptions of Barriers to Adherence

Logan, Deirdre E.; Zelikovsky, Nataliya; Labay, Larissa; Spergel, Jonathan M.

doi:10.1093/jpepsy/jsg028

Cited by 110 publications

(100 citation statements)

References 27 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…• Self-management support through tailored mailings and patient brochures based on stage of readiness • Staff trained to address patient needs and confidence and in behavior change counseling • Self-management tools (patient self-assessment, stage-of-readiness progress checklist, and personal action plan) reviewed and documented in medical record at each clinic visit • Reminders for influenza immunization, upcoming appointments, and need to make a follow-up appointment were sent as text messages • Patient illness management questionnaire to identify barriers to self-management 61 • Administration of the State/Trait Anxiety Inventory for Children 54 to patients whose asthma was not well controlled after $3 months in clinic; patients exceeding the tool' s threshold and possibly anxious or worried were referred to mental health services a self-management coach to conduct self-assessments, 61 set goals, and develop action plans. The coach also contacted patients between visits to assess progress.…”

Section: Self-management Supportmentioning

confidence: 99%

Improving Outcomes for Underserved Adolescents With Asthma

et al. 2014

View full text Add to dashboard Cite

BACKGROUND AND OBJECTIVE: Asthma is the most common chronic disease of childhood. Treatment adherence by adolescents is often poor, and their outcomes are worse than those of younger patients. We conducted a quality improvement initiative to improve asthma control and outcomes for high-risk adolescents treated in a primary care setting. METHODS:Interventions were guided by the Chronic Care Model and focused on standardized and evidence-based care, care coordination and active outreach, self-management support, and community connections. RESULTS:Patients with optimally well-controlled asthma increased from ∼10% to 30%. Patients receiving the evidence-based care bundle (condition/severity characterized in chart and, for patients with persistent asthma, an action plan and controller medications at the most recent visit) increased from 38% to at or near 100%. Patients receiving the required self-management bundle (patient selfassessment, stage-of-readiness tool, and personal action plan) increased from 0% to ∼90%. Patients and parents who were confident in their ability to manage their or their adolescent' s asthma increased from 70% to ∼85%. Patient satisfaction and the mean proportion of patients with asthma-related emergency department visits or hospitalizations remained stable at desirable levels.CONCLUSIONS: Implementing interventions focused on standardized and evidence-based care, self-management support, care coordination and active outreach, linkage to community resources, and enhanced followup for patients with chronically not-well-controlled asthma resulted in sustained improvement in asthma control in adolescent patients. Additional interventions are likely needed for patients with chronically poor asthma control. Pediatrics 2014;133:e418-e427 Drs Britto and Byczkowski conceptualized and designed the project, contributed to the acquisition of the data and analysis and interpretation of the results, and drafted the initial manuscript; Ms Vockell, Ms Munafo, Ms Wimberg, and Mr Pruett contributed to the conception and design the project, the acquisition of the data, and analysis and interpretation of the results; Ms Schoettker contributed to the analysis and interpretation of the results and drafted the initial manuscript; Dr Yi contributed to the conception and design of the project and helped to draft the initial manuscript; and all authors approved the final manuscript as submitted.www.pediatrics.org/cgi

show abstract

Section: Self-management Supportmentioning

confidence: 99%

Improving Outcomes for Underserved Adolescents With Asthma

et al. 2014

View full text Add to dashboard Cite

show abstract

“…1 Medication non-adherence is increasing among the pediatric patient population, particularly among adolescents as they begin taking more responsibility in medication management from their parents. [2][3][4][5][6][7] Effective child-provider communication is a potential strategy for addressing medication and health-related problems. 8,9 The National Council on Patient Information and Education (NCPIE) has also recognized that the improper use of prescription medicines in children is a national health problem that spans all ethnic and socioeconomic groups.…”

Section: Introductionmentioning

confidence: 99%

Identifying Barriers and Facilitators at Affect Community Pharmacists' Ability to Engage Children in Medication Counseling: A Pilot Study

Abraham

Alexander

Schleiden

et al. 2017

The Journal of Pediatric Pharmacology and Therapeutics

View full text Add to dashboard Cite

OBJECTIVESThis study aimed to describe the barriers and facilitators that influence community pharmacists' ability to provide medication counseling to pediatric patients.METHODS Semistructured interviews (n = 16) were conducted with pharmacy staff at 3 community pharmacies in 2 Eastern states. The interview guide elicited pharmacy staff experiences interacting with children and their perceived barriers and facilitators to providing medication counseling. Transcripts were reviewed for accuracy and a codebook was developed for data analysis. NVivo 10 was used for content analysis and identifying relevant themes.RESULTS Ten pharmacists and 6 pharmacy technicians were interviewed. Most participants were female (69%), aged 30 to 49 years (56%), with ≥5 years of pharmacy practice experience. Eight themes emerged as barriers to pharmacists' engaging children in medication counseling, the most prevalent being the child's absence during medication pickup, the child appearing to be distracted or uninterested, and having an unconducive pharmacy environment. Pharmacy staff noted 7 common facilitators to engaging children, most importantly, availability of demonstrative and interactive devices/technology, pharmacist demeanor and communication approach, and having child-friendly educational materials.CONCLUSIONS Findings suggest that pharmacy personnel are rarely able to engage children in medication counseling because of the patient's absence during medication pickup; however, having child-friendly materials could facilitate interactions when the child is present. These findings can inform programs and interventions aimed at addressing the barriers pharmacists encounter while educating children about safe and appropriate use of medicines.

show abstract

“…Approximately 63% of children and adolescents who have a chronic illness are prescribed medication, 22 but 50% to 88% of children and adolescents are non-adherent to their prescribed regimens. [23][24][25] As in adult samples, pediatric non-adherence may be a modifiable predictor of health care use and resulting health care costs. For example, an adolescent who has asthma may require hospitalization after failing to take his controller medication for several days and suffering an exacerbation.…”

mentioning

confidence: 99%

Medication Adherence and Health Care Utilization in Pediatric Chronic Illness: A Systematic Review

2013

View full text Add to dashboard Cite

BACKGROUND AND OBJECTIVE: Advanced understanding of modifiable predictors of health care use in pediatric chronic illness is critical to reducing health care costs. We examined the relationship between medication non-adherence and health care use in children and adolescents who have a chronic medical condition. METHODS:A systematic review of articles by using PubMed, PsycINFO, and CINAHL was conducted. Additional studies were identified by searching reference sections of relevant manuscripts. Studies that tested the relationship between medication non-adherence and health care use (ie, hospitalizations, emergency department visits, outpatient visits) or cost in children and adolescents (mean age #18 years) who have a chronic medical condition were included. Extraction of articles was completed by using predefined data fields. RESULTS:Ten studies met our inclusion criteria. Nine of the 10 studies reviewed (90%) demonstrated a relationship between medication nonadherence and increased health care use. The directionality of this relationship varied depending on the outcome variable of interest. FUNDING:The design and conduct of the study; collection, management, analysis, and interpretation of the data; and preparation of the manuscript were supported in part by grant T32HD068223 for Dr McGrady. Dr Hommel is funded in part by R01HD067174. Funded by the National Institutes of Health (NIH). POTENTIAL CONFLICT OF INTEREST:The authors have indicated they have no potential conflicts of interest to disclose. 730McGRADY and HOMMEL by guest on May 11, 2018 http://pediatrics.aappublications.org/ Downloaded from In 2010, the United States spent $2.6 trillion on health care, an increase of 3.9% from 2009, and 17.9% of its gross domestic product. 1 Hospital care and physician and clinical services (ie, emergency department [ED] visits, hospitalizations, and office visits, hereafter defined as "health care use") are the 2 largest components of health care spending, 2,3 and accounted for over 50% of the growth in health care spending from 2009 to 2010. 1 Continued rising health care costs despite the recession, the increasing US national deficit, and the increasing percentage of US health spending financed by the government ($1.2 trillion, 45% of all US health spending) have prompted investigation of modifiable factors to reduce health care use and associated costs. 4 Although there is no single strategy for effectively controlling costs, researchers have begun to focus on the 83% of health care resources consumed by individuals who have a chronic medical condition. 4,5 The number of children and adolescents diagnosed with a chronic medical condition has been steadily increasing over the past 20 years, 6 driven in part by increases in the prevalence of obesity 7 and asthma 8 as well as advances in medical care that increase survival (eg, cystic fibrosis, kidney transplant). 9,10 Increases in the prevalence of chronic medical conditions have only increased the already disproportionate health care expenses accounted for...

show abstract

The Illness Management Survey: Identifying Adolescents' Perceptions of Barriers to Adherence

Abstract: Preliminary data indicate that the IMS reliably and validly assesses perceived barriers to adherence within this sample of adolescents with asthma. It shows promise as a tool for identifying subgroups of nonadherent adolescents.

Cited by 110 publications

References 27 publications

Improving Outcomes for Underserved Adolescents With Asthma

Improving Outcomes for Underserved Adolescents With Asthma

Identifying Barriers and Facilitators at Affect Community Pharmacists' Ability to Engage Children in Medication Counseling: A Pilot Study

Medication Adherence and Health Care Utilization in Pediatric Chronic Illness: A Systematic Review

Contact Info

Product

Resources

About