The HIV-infected child: Parental responses and psychosocial implications.

Wiener, Lori; Theut, Susan K.; Steinberg, Seth M.; Riekert, Kristin A.; Pizzo, Philip A.

doi:10.1037/h0079539

Cited by 40 publications

(23 citation statements)

References 9 publications

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“…5 It was also found that children suffering from chronic illnesses including malignancies were able to cope with the disease better with fewer psychosocial problems if they were appropriately informed. 6,7 Likewise HIV infected children who were disclosed of their infection status had higher self esteem, lesser depression and greater adherence to antiretroviral/ prophylactic therapy. 8 Hence, pediatricians should anticipate the need for eventual disclosure of the infection status when attending to HIV infected children.…”

mentioning

confidence: 98%

Disclosure of the HIV infection status in children

et al. 2009

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confidence: 98%

Disclosure of the HIV infection status in children

et al. 2009

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“…[22][23][24] HIV-infected children in industrialized countries fared well after disclosure, and better than children who were unaware of their HIV infection. 1,19,25,26 While studies have looked at correlates of disclosure, few have investigated the process of disclosure to HIV-infected children specifically, particularly in developing countries. This study was, therefore, exploratory and focused on the experiences of infected children in a comprehensive HIV pediatric care and treatment program in Kinshasa, the Democratic Republic of the Congo (DRC).…”

Section: Introductionmentioning

confidence: 99%

Telling Children They Have HIV: Lessons Learned from Findings of a Qualitative Study in Sub-Saharan Africa

Vaz

Eng

Maman

et al. 2010

AIDS Patient Care and STDs

169

260

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HIV-infected children in developing countries are living longer lives as they gain access to antiretroviral treatment programs. As they grow older, their parents=guardians are faced with the difficult decision of if, when, and how to inform their child of his=her HIV status. Both negative and positive social, psychological, and behavioral impacts of disclosure to children have been reported, including improved adherence to medication regimens. Understanding the disclosure process from the perspective of HIV positive children, therefore, is critical to developing these interventions. Through children's experiences we can learn about what works well, what needs to be strengthened, and what is missing in current disclosure practices. We conducted in-depth interviews with eight caregiver-child dyads in Kinshasa, Democratic Republic of the Congo. The children were in a comprehensive HIV pediatric care and treatment program and had already been told their HIV diagnosis. For the analysis we placed particular emphasis on children's reports of communication with their caregivers and health care providers about their illness. Patterns emerged of limited communication between children and their caregivers as well as their providers, before, during, and after disclosure. From the perspective of children in this study, disclosure was largely a discrete event rather than a process. Sociocultural contexts surrounding HIV=AIDS, as well as health status, variations in parent-child communication and the relationships between health providers and children under their care, should inform psychosocial interventions delivered alongside treatment programs.

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“…Children with a variety of chronic diseases, including those with cancer, have exhibited better coping skills and fewer psychosocial problems when appropriately informed about the nature and consequences of their illness. 5,6 Nevertheless, some parents and health care professionals are reluctant to inform children about their HIV infection status. Data from several centers indicate that between 25% and 90% of school-age children with HIV infection/AIDS have not been told they are infected.…”

mentioning

confidence: 99%

Disclosure of Illness Status to Children and Adolescents With HIV Infection

1999

Pediatrics

202

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The HIV-infected child: Parental responses and psychosocial implications.

Cited by 40 publications

References 9 publications

Disclosure of the HIV infection status in children

Disclosure of the HIV infection status in children

Telling Children They Have HIV: Lessons Learned from Findings of a Qualitative Study in Sub-Saharan Africa

Disclosure of Illness Status to Children and Adolescents With HIV Infection

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