The Highs and Lows of Caregiving for Chronically Ill Lesbian, Gay, and Bisexual Elders

Muraco, Anna; Fredriksen-Goldsen, Karen I.

doi:10.1080/01634372.2013.860652

Cited by 38 publications

(31 citation statements)

References 28 publications

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“…In contrast to the dominant literature, only 1 mentioned adult children. These findings also highlight the unique role friends—sometimes conceptualized as “chosen family”—can and do play in gay, bi, lesbian, and transgender (LGBT) social networks . Many men mentioned wanting a specific group for GBMPCa where they felt more shared experiences with the other members of the group.…”

Section: Discussionmentioning

confidence: 87%

Caregiving and social support for gay and bisexual men with prostate cancer

et al. 2016

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Objective Prostate cancer, the second most common cancer among men, typically onsets in middle or older age. Gay/bisexual men have different social networks and unique social support needs, particularly as it pertains to health care access and prostate side effects. Few studies have investigated the availability and provision of social support for gay and bisexual men with prostate cancer (GBMPCa). Methods This study used qualitative data from in-depth, semi-structured, one-on-one telephone interviews with 30 GBMPCa recruited from a national cancer support group network, Malecare. Inductive and deductive coding were used to identify themes about social support provided to GBMPCa during diagnosis and treatment. Results GBMPCa reported help from friends, family (parents, siblings), ex-partners, and paid caregivers. Men in relationships reported varying levels of reliance on their partners for support, in part due to relationship dynamics and living arrangements. Single men showed a theme of independence (“I turned down all help”, “my friends don’t want to be bothered”). After diagnosis, many men reported seeking informational and emotional support from prostate cancer support groups; most expressed wanting more support groups specifically for GBMPCa. During or after treatment, men reported receiving a range of instrumental support, largely a function of relationship status and treatment type. Conclusions GBMPCa received variable, but generally low, social support during diagnosis and treatment and from a diverse social network, including a prominence of friends and family. Clinicians should be aware of GBMPCa’s distinct patterns of social support needs and providers.

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Section: Discussionmentioning

confidence: 87%

Caregiving and social support for gay and bisexual men with prostate cancer

et al. 2016

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“…Among LGBTQ older adults, 20% indicated that they were currently providing informal care [80]; caregivers reported a strong sense of duty [38], but also love and commitment, particularly among caring spouses, partners, and close friends [48]. Relationship quality was protective against depression for both informal caregivers and those receiving care [62].…”

Section: Resultsmentioning

confidence: 99%

Iridescent Life Course: LGBTQ Aging Research and Blueprint for the Future – A Systematic Review

2019

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Background: LGBTQ* (lesbian, gay, bisexual, trans, and queer) older adults are demographically diverse and growing populations. In an earlier 25-year review of the literature on sexual orientation and aging, we identified four waves of research that addressed dispelling negative stereotypes, psychosocial adjustment to aging, identity development, and social and community-based support in the lives of LGBTQ older adults. Objectives: The current review was designed to develop an evidence base for the field of LGBTQ aging as well as to assess the strengths and limitations of the existing research and to articulate a blueprint for future research. Methods: Using a life course framework, we applied a systematic narrative analysis of research on LGBTQ aging. The review included 66 empirical peer-reviewed journal articles (2009–2016) focusing on LGBTQ adults aged 50 years and older, as well as age-based comparisons (50 years and older with those younger). Results: A recent wave of research on the health and well-being of LGBTQ older adults was identified. Since the prior review, the field has grown rapidly. Several findings were salient, including the increased application of theory (with critical theories most often used) and more varied research designs and methods. While existing life course theory provided a structure for the investigation of the social dimensions of LGBTQ aging, it was limited in its attention to intersectionality and the psychological, behavioral, and biological work emerging in the field. There were few studies addressing the oldest in these communities, bisexuals, gender non-binary older adults, intersex, older adults of color, and those living in poverty. Conclusions: The Iridescent Life Course framework highlights the interplay of light and environment, creating dynamic and fluid colors as perceived from different angles and perspectives over time. Such an approach incorporates both queering and trans-forming the life course, capturing intersectionality, fluidity over time, and the psychological, behavioral, and biological as well as social dimensions of LGBTQ aging. Work is needed that investigates trauma, differing configurations of risks and resources over the life course, inequities and opportunities in representation and capital as LGBTQ adults age, and greater attention to subgroups that remain largely invisible in existing research. More depth than breadth is imperative for the field, and multilevel, longitudinal, and global initiatives are needed.

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“…A 2015 report by the National Alliance for Caregiving and the American Association of Retired Persons (AARP) Public Policy Institute indicated that among approximately 1000 care receivers aged 50 years and older, about 63% suffer from long-term physical conditions and 34% have short-term physical conditions, as well as mental conditions necessitating care include memory problems (29%), emotional and mental health problems (19%), behavioral issues (5%), and developmental and intellectual disorders (3%). In addition, because friends also play significant roles in the informal caring system, they are frequently included in family caregiving studies (Fine, 2012;Himes & Reidy, 2000;Muraco & Fredriksen-Goldsen, 2014;Penning & Wu, 2015).…”

Section: Snapshot On Family Caregivingmentioning

confidence: 99%

Employment adjustment and mental health of employed family caregivers in Canada

Lee

2019

Aging & Mental Health

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In Canada, with the population aging, the need of family caregiving to older adults is increasing. Family caregivers make employment adjustment in order to fulfill caregiving responsibility. However, the studies on the family caregivers' mental health outcomes associated with employment adjustment are limited. Based on the role theory and stress process model, the current study examined the relationship between employment adjustment and mental health outcomes among family caregivers, and also tested the functions of family-to-work role conflict and workplace support in this relationship. Data were drawn from the 2012 Canada General Social Survey Cycle 26: Caregiving and Care Receiving, which provided a sample of 1,696 employed family caregivers. Hierarchical linear regression and conditional process analysis were used to examine the relationship among employment adjustment, mental health, family-to-work role conflict, and workplace support. The analysis results revealed that employment adjustment is significantly associated with negative mental health outcomes, including worse self-rated mental health, more psychological symptoms, and higher life and caregiving stress level. In addition, the mediating effect of familyto-work role conflict was confirmed, such that family-to-work role conflict mediates the association between employment adjustment and mental health outcomes. Furthermore, the moderating effect of workplace support was identified in the relationship between employment adjustment and family-to-work role conflict. Despite some limitations, current study contributes to the existing body of literature on the mental health outcomes of family caregivers by examining the function of employment adjustment, family-to-work role conflict and workplace support at the same time. The study iii results also call for greater attention to provide caregiver-friendly workplace support to family caregivers.

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The Highs and Lows of Caregiving for Chronically Ill Lesbian, Gay, and Bisexual Elders

Cited by 38 publications

References 28 publications

Caregiving and social support for gay and bisexual men with prostate cancer

Caregiving and social support for gay and bisexual men with prostate cancer

Iridescent Life Course: LGBTQ Aging Research and Blueprint for the Future – A Systematic Review

Employment adjustment and mental health of employed family caregivers in Canada

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