The hidden cost of informal care: An empirical study on female caregivers' subjective well-being

Chen, Lu; Fan, Hongli; Chu, Lanlan

doi:10.1016/j.socscimed.2019.01.051

Cited by 47 publications

(33 citation statements)

References 33 publications

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“…These associations, estimated using FE modelling in which each person is their own control, were also robust to inclusion of timevarying socio-demographic and health covariates which might confound the relationship between providing care and quality of life. The findings provide additional support for prior research which found negative impacts on carer wellbeing and quality of life of caregiving (Chen et al 2019;Pinquart and Sörensen 2003;van den Berg et al 2014). That in none of the analyses, even with this large sample, were we able to show that providing informal care was positive for carer quality of life counters recent claims about potential benefits of caregiving.…”

Section: Discussionsupporting

confidence: 75%

“…Turning to population-based studies examining wellbeing and quality of life, the picture is mixed, including negative impacts of caregiving (Broek and Grundy 2018;Chen et al 2019;Hirst 2005;van den Berg et al 2014;Verbakel et al 2017Verbakel et al , 2018, no significant effects (McMunn et al 2009;Wahrendorf and Siegrist 2010), negative effects only for specific subgroups (Hansen et al 2013;Lacey et al 2019;Zaninotto et al 2013), or even positive effects (Hansen et al 2013;McMunn et al 2009). One reason for such heterogeneity might be differences in study design, in particular the degree to which selection into caregiving has been controlled for.…”

Section: Potential Impact Of Caregiving Upon Quality Of Lifementioning

confidence: 99%

“…Another possible source of discordance among studies is few studies have distinguished levels of intensity of care. Carers providing more intensive care tend to have lower life satisfaction and health than non-carers; low-intensity carers are often indistinguishable from non-carers (Borg and Hallberg 2006;Chen et al 2019;Ross et al 2008, p. 44;van den Berg et al 2014).…”

Section: Intensity Of Caregiving and Carer Burdenmentioning

confidence: 99%

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Informal caregiving and quality of life among older adults: Prospective analyses from the Swedish Longitudinal Occupational Survey of Health (SLOSH)

Sacco

König

Westerlund

et al. 2020

Preprint

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Providing unpaid informal care to someone who is ill or disabled is a common experience in later life. While a supportive and potentially rewarding role, informal care can become a time and emotionally demanding activity, which may hinder older adults’ quality of life. In a context of rising demand for informal carers, we investigated how caregiving states and transitions are linked to overall levels and changes in quality of life, and how the relationship varies according to care intensity and burden. We used fixed effects and change analyses to examine six-wave panel data (2008–2018) from the Swedish Longitudinal Occupational Survey of Health (SLOSH, n=5076; ages 50–74). The CASP-19 scale is used to assess both positive and negative aspects of older adults’ quality of life. Caregiving was related with lower levels of quality of life in a graded manner, with those providing more weekly hours and reporting greater burden experiencing larger declines. Two-year transitions corresponding to starting, ceasing and continuing care provision were associated with lower levels of quality of life, compared to continuously not caregiving. Starting and ceasing caregiving were associated with negative and positive changes in quality of life score, respectively, suggesting that cessation of care leads to improvements despite persistent lower overall levels of quality of life. Measures to reduce care burden or time spent providing informal care are likely to improve the quality of life of older people.

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Section: Discussionsupporting

confidence: 75%

Section: Potential Impact Of Caregiving Upon Quality Of Lifementioning

confidence: 99%

Section: Intensity Of Caregiving and Carer Burdenmentioning

confidence: 99%

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Informal caregiving and quality of life among older adults: Prospective analyses from the Swedish Longitudinal Occupational Survey of Health (SLOSH)

Sacco

König

Westerlund

et al. 2020

Preprint

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show abstract

“…Nurse, whose marital status is married/cohabitation, may receive more material and spiritual support from their partners to help them cope with life pressure and negative emotions, which leads to higher SWB (Chen and van Ours, 2018). As the previous study presented, with long weekly work time and heavy workload, caregivers are prone to negative emotions, which may impair mental health, decrease the level of SWB (Chen et al, 2019). More than 50% of nurses had weekly work time over 40 h, which exceeded the domestic standard in China.…”

Section: Discussionmentioning

confidence: 99%

“…Zhou et al (2015) found the association between higher educational level, being married/cohabitation and higher level of SWB. Another study reported working too many hours per week reduced SWB of Chinese female caregivers (Chen et al, 2019). The influence of income on SWB was also demonstrated (Zhang et al, 2008).…”

Section: Introductionmentioning

confidence: 99%

Moderating Role of Self-Esteem Between Perceived Organizational Support and Subjective Well-Being in Chinese Nurses: A Cross-Sectional Study

Yang

Qiu

et al. 2019

Front. Psychol.

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PurposeNurses are undertaking tremendous physical and psychological pressure, which may reduce their subjective well-being (SWB). This study is aimed to identify the relationship among perceived organizational support (POS), self-esteem, and SWB, and to further explore whether self-esteem could be a moderator in the association between POS and SWB in Chinese nurses.Materials and MethodsThis study was conducted in Liaoning Province in China, in 2018. 606 valid questionnaires were collected. Demographic factors, job conditions, the Index of Well-Being, Survey of Perceived Organizational Support (SPOS), and Rosenberg’s Self Esteem Scale (RSES) were included in each questionnaire. The association among POS, self-esteem, and POS × self-esteem interaction with SWB were examined by hierarchical multiple regression analysis. The interaction was visualized by using simple slope analysis.ResultsAverage score of SWB in Chinese nurses was 8.27 ± 2.64. Being married was positively related to SWB, while having longer work time per week, having night shift and dissatisfied with nurse-patient relationship were correlated with lower SWB. POS and self-esteem were important factors for SWB. Self-esteem could moderate the relationship between POS and SWB. When self-esteem was higher, POS had a greater effect on SWB.ConclusionSubjective well-being of nurses in the study was at a low level. Self-esteem could moderate the association between POS and SWB. More interventions related to POS and self-esteem will be helpful to improve SWB among nurses.

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Informal caregiving, time use and experienced wellbeing

et al. 2022

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Informal carers report lower evaluative wellbeing than non-carers. In contrast to this literature and our own analysis of evaluative wellbeing, we find carers have a small but higher level of experienced wellbeing than non-carers do. To investigate why, we use decomposition analysis which separates explanatory factors into how time is used and how those uses of time are experienced. We analyze activities and associated experienced wellbeing measured in ten-minute intervals over two days by 4817 adults from the 2014/15 UK Time Use Survey. We use entropy balancing to compare carers with a re-weighted counterfactual non-carer group and then apply Oaxaca-Blinder decomposition. The experienced wellbeing gap of 0.066 is the net result of several substantial competing effects of time use. Carers experienced wellbeing would be higher by 0.188 if they had the same patterns and returns to time use as non-carers which is driven by sleep, time stress and alternative characteristics of time use. However, leisure and non-market activities serve to dampen this increase in experienced wellbeing. Initiatives to improve and assess carer wellbeing should pay close attention to how carers spend their time.

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The hidden cost of informal care: An empirical study on female caregivers' subjective well-being

Cited by 47 publications

References 33 publications

Informal caregiving and quality of life among older adults: Prospective analyses from the Swedish Longitudinal Occupational Survey of Health (SLOSH)

Informal caregiving and quality of life among older adults: Prospective analyses from the Swedish Longitudinal Occupational Survey of Health (SLOSH)

Moderating Role of Self-Esteem Between Perceived Organizational Support and Subjective Well-Being in Chinese Nurses: A Cross-Sectional Study

Informal caregiving, time use and experienced wellbeing

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