The Health and Economic Well‐Being of <scp>US</scp> Mothers with Intellectual Impairments

Powell, Robyn M.; Parish, Susan L.; Akobirshoev, Ilhom

doi:10.1111/jar.12308

Cited by 24 publications

(7 citation statements)

References 70 publications

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“…This includes not only working with them to modify their health behaviors to decrease perinatal risk but also supporting them more broadly in recognition that women with disabilities are marginalized in many ways (eg, low socioeconomic status, little social support, high rates of abuse, experiences of stigma and discrimination). 10,12,70,87 During the perinatal period, some women with disabilities may require close monitoring by their health care providers through more frequent and longer visits as well as specialized care. In addition to the perinatal complications examined herein, issues that are common in pregnancy such as fatigue, fluid retention, and urinary tract infections can be more pronounced in some women with disabilites, 67,71,81,84,88 and pregnancy may also have an impact on the course of the disability.…”

Section: Implications and Future Directionsmentioning

confidence: 99%

Maternal disability and risk for pregnancy, delivery, and postpartum complications: a systematic review and meta-analysis

Tarasoff

Ravindran

Malik

et al. 2020

American Journal of Obstetrics and Gynecology

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O ne in 10 women of reproductive age has a disability. 1 While disabilities vary in their etiology and impact, they can be classified broadly based on common activity limitations. 2,3 Physical disabilities, such as cerebral palsy and spinal cord injuries, are those associated with limits to mobility, flexibility, and dexterity; sensory disabilities include vision and hearing impairments; and intellectual and developmental disabilities, such as Down syndrome, autism spectrum disorder, and fetal alcohol spectrum disorder, are associated with limitations in cognitive and adaptive functioning. In the past, stigma associated with disability and sexuality and medical factors, including risks of medication use in pregnancy, limited childbearing in women with disabilities. 4,5 However, with greater recognition of the reproductive rights of persons with disabilities 6 and medical advances, more women with disabilities now experience pregnancy. In fact, the 2008e2012 US Medical Expenditure Panel Survey showed that similar proportions of

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Section: Implications and Future Directionsmentioning

confidence: 99%

Maternal disability and risk for pregnancy, delivery, and postpartum complications: a systematic review and meta-analysis

Tarasoff

Ravindran

Malik

et al. 2020

American Journal of Obstetrics and Gynecology

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“…Moreover, research has demonstrated high levels of contextual risk factors for caregiving and child developmental problems in the lives of families headed by parents with ID (Feldman & Aunos, 2020). For instance, parents with ID are often socioeconomically disadvantaged (Powell et al, 2017), and struggle with mental health problems (O’Keeffe & O’Hara, 2008), social isolation (Llewellyn & Hindmarsh, 2015), and parenting stress (Meppelder et al, 2015). Such risk factors are strongly linked to caregiving difficulties and negative child outcomes in the general population (e.g., Neppl et al, 2016; Plass-Christl et al, 2017; Stith et al, 2009).…”

mentioning

confidence: 99%

Experiences of Interpersonal Trauma Among Parents With Intellectual Disabilities: A Systematic Review

Hammarlund

Granqvist

Forslund

2022

Trauma, Violence, & Abuse

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Research has suggested highly elevated levels of interpersonal trauma (IPT) among parents with intellectual disabilities (ID), and that such experiences may contribute to the caregiving and child developmental problems often seen in this population. Conflicting results have however been reported, and there is no systematic review on this matter. This study therefore systematically reviewed the empirical evidence concerning (a) prevalence of IPT among parents with ID, and links with (b) caregiving-relevant and (c) child developmental outcomes, in accordance with the PRISMA 2020 guidelines. Searches were conducted in MEDLINE, CINAHL, PsycINFO, and PTSDpubs. Peer-reviewed empirical articles reporting exposure to any form of systematically assessed IPT (unspecified IPT, physical, sexual, and emotional abuse, neglect, prolonged childhood separations from caregivers, witnessing abuse in the family) among parents with ID were included, yielding a final selection of 20 studies. Findings consistently indicated markedly elevated levels of IPT among parents with ID, with a majority (>50%) having experienced some form of IPT. Estimates for both unspecified and specific forms were typically higher than corresponding estimates in other groups at elevated risk, and than meta-analytical general population estimates in comparable countries. Findings regarding caregiving-relevant outcomes were mixed but indicated links with adverse outcomes, particularly regarding parental mental health. Reports pertaining to child developmental outcomes were scant and inconsistent. We highlight important limitations in the extant literature and provide directions for future research and clinical practice.

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“…In this special issue, Lindberg, Fransson, Forslund, Springer, and Granqvist report substantial variation in the sensitivity of Swedish mothers with intellectual disabilities associated with the quality of care received or exposure to maltreatment in their own upbringing. The paper by Powell and Parish also highlights contextual factors. Analysing big data in the USA, they find that mothers with intellectual impairments are more likely to live in poverty, report serious health issues and have less instrumental support than mothers without intellectual impairments.…”

Section: Contextual Factorsmentioning

confidence: 98%

Parents and parenting with intellectual disabilities: An expanding field of research

McConnell

Feldman

Aunos

2017

Research Intellect Disabil

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The Health and Economic Well‐Being of US Mothers with Intellectual Impairments

Abstract: Findings from this study indicate the need for policies and programmes to support parents with intellectual impairments by addressing their health and economic needs.

Cited by 24 publications

References 70 publications

Maternal disability and risk for pregnancy, delivery, and postpartum complications: a systematic review and meta-analysis

Maternal disability and risk for pregnancy, delivery, and postpartum complications: a systematic review and meta-analysis

Experiences of Interpersonal Trauma Among Parents With Intellectual Disabilities: A Systematic Review

Parents and parenting with intellectual disabilities: An expanding field of research

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