The Gudaga Study: establishing an Aboriginal birth cohort in an urban community

Comino, Elizabeth; Craig, Pippa; Harris, Elizabeth; McDermott, Dennis; Harris, Mark; Henry, Richard L.; Pulver, Lisa Jackson; Kemp, Lynn; Knight, Joseph F.

doi:10.1111/j.1753-6405.2010.00546.x

Cited by 41 publications

(50 citation statements)

References 24 publications

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“…Mothers admitted to the maternity ward were invited to participate in a survey that systematically identified Aboriginal infants, the details of which have been published elsewhere. 5 During recruitment, 178 aboriginal infants were identified, either by the survey (155 infants) or through other networks (23 infants). Of the 1953 non-Aboriginal infants identified from the ward survey, we randomly selected two non-Aboriginal infants for every one Aboriginal infant and matched on sex and date of birth.…”

Section: Study Populationmentioning

confidence: 99%

“…2 This study was built upon the Gudaga Study, an established Aboriginal A birth cohort study based in Macarthur region, which is on the outer south-west fringes of Sydney, NSW. 5 The aim of the Gudaga Study is to describe the health, development and health service use of Aboriginal infants and children in the region. This is the first time such a study has been undertaken on the east coast of Australia and provides a unique opportunity to examine how families with Aboriginal infants engage in a wide range of health services, including the universal health home visiting (UHHV) program, which was introduced into the region in 2001.…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Universal for whom? Evaluating an urban Aboriginal population's access to a mainstream universal health home visiting program

Widdup¹,

Comino²,

Webster³

et al. 2012

Aust. Health Review

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Objective. To investigate access to a Universal Health Home Visit program for families of Aboriginal and nonAboriginal infants and the effect of a one-off home visit on subsequent health service utilisation.Methods. A case-control study was undertaken drawing 175 Aboriginal infants from an Aboriginal birth cohort study and 352 matched non-Aboriginal infants. A structured file audit extracted data from child and family health nurse records. Receipt of home visit and effect on ongoing use of child and family nurses services was compared for Aboriginal and nonAboriginal infants.Results. Of the 527 infants, 279 (53.0%) were visited at home within 2 weeks. This is below NSW Health benchmarks. Significantly fewer Aboriginal infants (42.9%) compared to non-Aboriginal infants (58.0%) received a home visit within 2 weeks (P < 0.01). Receipt of a single home visit did not affect future service use or the number of child health checks infants received.Conclusion. This study highlights the challenges of ensuring equitable access to a universal post-natal home visiting program. Assessing ways in which universal services are delivered to ensure equity of access may help to re-evaluate target expectations, reduce demand on nursing staff, improve targeting of vulnerable infants and help in further developing and implementing effective health policy.What is known about the topic? The rate of home visits within NSW is 45%, which is well below the recommended target rate of 65%. Aboriginal families utilise health services differently than non-Aboriginal families. What does this paper add? Inequalities in accessing a home visit within 2 weeks were found, with families of Aboriginal infants being less likely than families of non-Aboriginal infants to receive a home visit within 2 weeks. Factors such as being a young mother, an unpartnered mother, a mother with psychosocial risks identified antenatally, or residing in a disadvantaged suburb were associated with not receiving a visit within 2 weeks. Receipt of a home visit did not, despite the program's aim, affect further health service use. What are the implications for practitioners? Practitioners and managers need to be aware of the challenges in providing equitable access within a universal post-natal home visiting program.

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Section: Study Populationmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Universal for whom? Evaluating an urban Aboriginal population's access to a mainstream universal health home visiting program

Widdup¹,

Comino²,

Webster³

et al. 2012

Aust. Health Review

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show abstract

“…The study is describing the birth outcomes, health, development and health services use of children and their mothers. The cohort was recruited using a maternity ward survey of mothers between October 2005 and May 2007 (Comino et al 2009). All mothers participating in the study gave their informed written consent.…”

Section: Aimmentioning

confidence: 99%

Indigenous Research: A Commitment to Walking the Talk. The Gudaga Study—an Australian Case Study

Knight¹,

Comino²,

Harris³

et al. 2009

Bioethical Inquiry

Self Cite

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“…Data on Aboriginal and Torres Strait Islander children with a disability are limited, particularly in urban populations and this inhibits adequate service planning [30]. Although over half of the Aboriginal and Torres Strait Islander population live in urban or regional areas, most of the research on Aboriginal and Torres Strait Islander childhood disability is on rural or remote populations [24, 31–33].…”

Section: Introductionmentioning

confidence: 99%

Navigating the journey of Aboriginal childhood disability: a qualitative study of carers’ interface with services

Gréen

Abbott

Delaney

et al. 2016

BMC Health Serv Res

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BackgroundThe disadvantage experienced by Aboriginal and Torres Strait Islander children with a disability is well recognized. The long term consequences of failing to address disability on health, education and employment underlies the importance of early intervention. Caregivers experience a disproportionate burden and have challenges accessing services. The aim of this study was to describe the carer journey of accessing support and services.MethodsWe conducted in-depth semi-structured interviews with nineteen parents and carers of Aboriginal children aged 0–8 years. The children were patients at a child developmental clinic at a metropolitan area Aboriginal health service in Eastern Australia. Interpretive phenomenological analysis was applied to transcribed verbatim accounts.ResultsFour themes were developed using the ‘journey’ metaphor to describe the carer pathway of accessing support and services at the community, service and policy levels. Themes included 1) the need for increased signage within communities via community education, information and awareness, 2) wrong way signs, roundabouts and roadblocks encountered when accessing services, 3) alternate routes can facilitate the journey, and 4) incompatibility of inflexible bureaucratic road rules and lived realities.ConclusionsThe challenges of caring for a child with a disability are indisputable and these can be compounded for people experiencing socio-economic disadvantage and marginalisation. Overcoming challenges to service access faced by carers of Aboriginal children with a disability will require investment in community, services and policy to tailor culturally appropriate models of care.Electronic supplementary materialThe online version of this article (doi:10.1186/s12913-016-1926-0) contains supplementary material, which is available to authorized users.

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The Gudaga Study: establishing an Aboriginal birth cohort in an urban community

Cited by 41 publications

References 24 publications

Universal for whom? Evaluating an urban Aboriginal population's access to a mainstream universal health home visiting program

Universal for whom? Evaluating an urban Aboriginal population's access to a mainstream universal health home visiting program

Indigenous Research: A Commitment to Walking the Talk. The Gudaga Study—an Australian Case Study

Navigating the journey of Aboriginal childhood disability: a qualitative study of carers’ interface with services

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