The Going to Stay at Home program: combining dementia caregiver training and residential respite care

Gresham, Meredith; Heffernan, Megan; Brodaty, Henry

doi:10.1017/s1041610218000686

Cited by 23 publications

(40 citation statements)

References 27 publications

(40 reference statements)

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“…Family carer-focussed interventions Have reduced carer burden and increased time lived at home by care recipients [36][37][38], probably because carers who are less stressed and burdened are more able to continue in supporting roles. UK Admiral Nursing Services work specifically with dementia family carers in some localities, but service content depends on local requirements and commissioning [39].…”

Section: Strategies For Delivering Carementioning

confidence: 99%

Developing the New Interventions for independence in Dementia Study (NIDUS) theoretical model for supporting people to live well with dementia at home for longer: a systematic review of theoretical models and Randomised Controlled Trial evidence

Lord

Beresford‐Dent

Rapaport

et al. 2019

Soc Psychiatry Psychiatr Epidemiol

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Purpose To build an evidence-informed theoretical model describing how to support people with dementia to live well or for longer at home. Methods We searched electronic databases to August 2018 for papers meeting predetermined inclusion criteria in two reviews that informed our model. We scoped literature for theoretical models of how to enable people with dementia to live at home independently, with good life quality or for longer. We systematically reviewed Randomised Controlled Trials (RCTs) reporting psychosocial intervention effects on time lived with dementia at home. Two researchers independently rated risk of bias. We developed our theoretical model through discussions with experts by personal, clinical and academic experiences, informed by this evidence base. Results Our scoping review included 52 studies. We divided models identified into: values and approaches (relational and recovery models; optimising environment and activities; family carer skills and support); care strategies (family carer-focused; needs and goal-based; self-management); and service models (case management; integrated; consumer-directed). The 11 RCTs included in our systematic review, all judged at low risk of bias, described only two interventions that increased time people with dementia lived in their own homes. These collectively encompassed all these components except for consumerdirected and integrated care. We developed and revised our model, using review evidence and expert consultation to define the final model. Conclusions Our theoretical model describes values, care strategies and service models that can be used in the design of interventions to enable people with dementia to live well and for longer at home. Trial registration PROSPERO 2018 registration number: CRD42018099693 (scoping review). PROSPERO 2018 registration number: CRD42018099200 (RCT systematic review).

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Section: Strategies For Delivering Carementioning

confidence: 99%

Developing the New Interventions for independence in Dementia Study (NIDUS) theoretical model for supporting people to live well with dementia at home for longer: a systematic review of theoretical models and Randomised Controlled Trial evidence

Lord

Beresford‐Dent

Rapaport

et al. 2019

Soc Psychiatry Psychiatr Epidemiol

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“…12 The qualitative outcomes further supported the positive effects on self-reported needs in the "Going to stay at Home" program on which this intervention was based. 21 Moreover, the findings emphasize the importance of using a mixedmethods approach when considering psychosocial interventions if we are to avoid the limitations of randomized controlled trials that rely solely on quantitative data.…”

Section: Discussionmentioning

confidence: 94%

“…This program included psychological and educational themes and was delivered in informally structured group sessions with educational elements, group work, modeling, and role-play. 20,21 The results of a randomized controlled trial comparing waiting and control groups (respite care) showed that the training program effectively delayed nursing home admission, reduced mortality, reduced psychological morbidity, and lowered care costs. 20,[22][23][24] An extension study using a pre-post design in another setting produced comparable results.…”

Section: Introductionmentioning

confidence: 99%

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Effects of caregiver dementia training in caregiver‐patient dyads: A randomized controlled study

Birkenhäger-Gillesse

Achterberg

Janus

et al. 2020

Int J Geriat Psychiatry

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Objectives: Caregivers for people with dementia (PWD) have reported needing emotional and social support, improved coping strategies, and better information about the illness and available support services. In this study, we aimed to determine the effectiveness of an Australian multicomponent community-based training program that we adapted and implemented in a non-medical Dutch health care setting. Methods and design: A randomized controlled trial was performed: 142 dyads of cohabiting caregivers and PwD were randomized to control (care as usual) or intervention (training program) groups and outcomes were compared. Programs lasted 1 week, comprised 14 sessions, and were delivered by specialist staff. We included 16 groups of two to six caregivers. The primary outcome was care-related quality of life (CarerQol-7D) at 3 months. The main secondary outcomes for caregivers were self-rated burden, health and mood symptoms, and for PwD were neuropsychiatric symptoms, quality of life, and agitation. Results: No significant difference was observed for the primary outcome. However, caregivers experienced fewer role limitations due to physical function (adjusted mean difference, 13.04; 95% confidence interval [95%CI], 3.15-22.93), emotional function (13.52; 95%CI, 3.76-23.28), and pain reduction (9.43; 95%CI, 1.00-17.86). Positive outcomes identified by qualitative analysis included better acceptance and coping and improved knowledge of dementia and available community services and facilities. Conclusion: Quantitative analysis showed that the multicomponent course did not affect care-related quality of life but did have a positive effect on experienced role limitations and pain. Qualitative analysis showed that the course met the needs of participating dyads.

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“…1 Their study was based on the Australian residential multicomponent training program which helped to heuristically and clinically explain caregiver strain. 2 Although previous studies have reported caregiver anxiety and depression as primary outcomes, 3 Birkenhäger-Gillesse et al reported that the primary outcome of their study was care-related QoL. We are interested to know why the primary outcome was changed.…”

mentioning

confidence: 98%

Effects of caregiver dementia training in caregiver‐patient dyads

Kajiwara

Kako

Kobayashi

et al. 2020

Int J Geriat Psychiatry

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The Going to Stay at Home program: combining dementia caregiver training and residential respite care

Cited by 23 publications

References 27 publications

Developing the New Interventions for independence in Dementia Study (NIDUS) theoretical model for supporting people to live well with dementia at home for longer: a systematic review of theoretical models and Randomised Controlled Trial evidence

Developing the New Interventions for independence in Dementia Study (NIDUS) theoretical model for supporting people to live well with dementia at home for longer: a systematic review of theoretical models and Randomised Controlled Trial evidence

Effects of caregiver dementia training in caregiver‐patient dyads: A randomized controlled study

Effects of caregiver dementia training in caregiver‐patient dyads

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