The gap reversed: a review of site of death in the Top End

Waran, Eswaran; Zubair, Mohammad Yousuf; O’Connor, Niamh

doi:10.5694/mja17.00354

Cited by 3 publications

(4 citation statements)

References 4 publications

(8 reference statements)

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“…TPC provides services for inpatients (hospital and hospice) and an outpatient service for patients in the community. Top End TPC is the sole provider of palliative care services to NT's Top End [68]. The 12-bed stand-alone palliative care unit/hospice on the RDH campus opened in 2004 [69], and is co-located with the rural and remote palliative care team.…”

Section: Palliative Carementioning

confidence: 99%

“…Reasons for this include the importance of their connection to land and community, spending time with and being cared for by family and passing on sacred knowledge to family [71,72]. Finishing up on Country usually takes place in the patient's own home or the home of a relative or close community member who has assumed responsibility for their care [68].…”

Section: Palliative Carementioning

confidence: 99%

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Improving Access to Cancer Treatment Services in Australia’s Northern Territory—History and Progress

Taylor

Thackrah

Thompson

2022

IJERPH

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Cancer is the leading cause of death in the Northern Territory (NT), Australia’s most sparsely populated jurisdiction with the highest proportion of Aboriginal people. Providing cancer care to the NT’s diverse population has significant challenges, particularly related to large distances, limited resources and cultural differences. This paper describes the developments to improve cancer treatment services, screening and end-of-life care in the NT over the past two decades, with a particular focus on what this means for the NT’s Indigenous peoples. This overview of NT cancer services was collated from peer-reviewed literature, government reports, cabinet papers and personal communication with health service providers. The establishment of the Alan Walker Cancer Care Centre (AWCCC), which provides radiotherapy, chemotherapy and other specialist cancer services at Royal Darwin Hospital, and recent investment in a PET Scanner have reduced patients’ need to travel interstate for cancer diagnosis and treatment. The new chemotherapy day units at Alice Springs Hospital and Katherine Hospital and the rapid expansion of tele-oncology have also reduced patient travel within the NT. Access to palliative care facilities has also improved, with end-of-life care now available in Darwin, Alice Springs and Katherine. However, future efforts in the NT should focus on increasing and improving travel assistance and support and increasing the availability of appropriate accommodation; ongoing implementation of strategies to improve recruitment and retention of health professionals working in cancer care, particularly Indigenous health professionals; and expanding the use of telehealth as a means of delivering cancer care and treatment.

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Section: Palliative Carementioning

confidence: 99%

Section: Palliative Carementioning

confidence: 99%

Improving Access to Cancer Treatment Services in Australia’s Northern Territory—History and Progress

Taylor

Thackrah

Thompson

2022

IJERPH

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“…Two linguists bring their expertise to the question of improving clinical environments by delving into the nature of communication gaps and providing simple bridges to cross them, 7 and by reminding us of the rich solutions available from the arts, which is presented as the natural custodian of language and communication competence 8 . Waran and colleagues indicate that lessons can also be learned from Indigenous cultures, reporting that Indigenous Australians are much more likely to die in their home environment — undeniably preferable to dying in an institution — than non‐Indigenous people 9 …”

mentioning

confidence: 99%

“…8 Waran and colleagues indicate that lessons can also be learned from Indigenous cultures, reporting that Indigenous Australians are much more likely to die in their home environmentundeniably preferable to dying in an institutionthan non-Indigenous people. 9 In their insightful narrative review of cardiac care of Indigenous Australians, Walsh and Kangaharan provide a detailed guide on how to deliver quality care in settings constrained by social determinants. 10 They note that much of their approach is based not on formal analyses of practice, but is derived from the experience of a deep and long commitment to Indigenous clinical care.…”

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confidence: 99%

The health of Indigenous Australians

Thompson

Talley

Kong³

2017

Medical Journal of Australia

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Hospice care access inequalities: a systematic review and narrative synthesis

Tobin

Rogers

Winterburn

et al. 2021

BMJ Support Palliat Care

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BackgroundInequalities in access to hospice care is a source of considerable concern; white, middle-class, middle-aged patients with cancer have traditionally been over-represented in hospice populations.ObjectiveTo identify from the literature the demographic characteristics of those who access hospice care more often, focusing on: diagnosis, age, gender, marital status, ethnicity, geography and socioeconomic status.DesignSystematic literature review and narrative synthesis.MethodSearches of Medline, PsycINFO, CINAHL, Web of Science, Assia and Embase databases from January 1987 to end September 2019 were conducted. Inclusion criteria were peer-reviewed studies of adult patients in the UK, Australia, New Zealand and Canada, receiving inpatient, day, outpatient and community hospice care. Of the 45 937 titles retrieved, 130 met the inclusion criteria. Narrative synthesis of extracted data was conducted.ResultsAn extensive literature search demonstrates persistent inequalities in hospice care provision: patients without cancer, the oldest old, ethnic minorities and those living in rural or deprived areas are under-represented in hospice populations. The effect of gender and marital status is inconsistent. There is a limited literature concerning hospice service access for the LGBTQ+ community, homeless people and those living with HIV/AIDS, diabetes and cystic fibrosis.ConclusionBarriers of prognostic uncertainty, institutional cultures, particular needs of certain groups and lack of public awareness of hospice services remain substantial challenges to the hospice movement in ensuring equitable access for all.

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The gap reversed: a review of site of death in the Top End

Cited by 3 publications

References 4 publications

Improving Access to Cancer Treatment Services in Australia’s Northern Territory—History and Progress

Improving Access to Cancer Treatment Services in Australia’s Northern Territory—History and Progress

The health of Indigenous Australians

Hospice care access inequalities: a systematic review and narrative synthesis

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