The Financial Impact of a Hospital-Based Care Coordination Program for Children With Special Health Care Needs

Petitgout, Janine M.

doi:10.1016/j.pedhc.2017.06.003

Cited by 11 publications

(8 citation statements)

References 11 publications

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“…24,48 Consistent with prior literature, care coordination and peer support were emphasized by participants as particularly helpful. 18,32,70-73 Caregivers found peer support through connections with other CWT caregivers (eg, individual connections, groups, or via social media) to be beneficial. Our study is consistent with prior literature suggesting a need for more integrated understanding of the difficulties families of CMC, including CWT, face and the importance of the medical home and care coordination.…”

Section: Discussionmentioning

confidence: 99%

Identifying Caregiver Needs for Children With a Tracheostomy Living at Home

Mai

Davis

Hamilton

et al. 2020

Clin Pediatr (Phila)

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This study sought to understand caregiver needs of children with tracheostomies (CWT) living at home and inform development of standardized tracheostomy simulation training curricula. Long-term goals are decreasing hospital readmissions following tracheostomy placement and improving family experiences while implementing a medical home model. We recruited caregivers of CWT and conducted semistructured interviews, subsequently recorded, transcribed, and analyzed for emerging themes using NVivo. Demographic data were collected via quantitative surveys. Twenty-seven caregivers participated. Emerging themes included the following: (1) caregivers felt overwhelmed, sad, frightened when learning need for tracheostomy; (2) training described as adequate, but individualized training desired; (3) families felt prepared to go home, but transition was difficult; (4) home nursing care fraught with difficulty and yet essential for families of CWT. Families of CWT have specific needs related to discharge training, resources, support, and home nursing. Provider understanding of caregiver needs is essential for child well-being, patient-/family-centered care, and may improve health outcomes.

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Section: Discussionmentioning

confidence: 99%

Identifying Caregiver Needs for Children With a Tracheostomy Living at Home

Mai

Davis

Hamilton

et al. 2020

Clin Pediatr (Phila)

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“…International literature also highlights that care coordination programs -which establish continuous care management and favor access to social and care benefits -are broader than traditional discharge planning. These programs ensure that the child can stay as long as possible at home and serve as a central access point and as an educational resource for the families of CSHCN (25) .…”

Section: Discussionmentioning

confidence: 99%

Educational demands of family members of children with special health care needs in the transition from hospital to home

et al. 2020

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Objectives: to analyze the educational demands of family members of children with special health care needs in the transition from hospital to home Methods: qualitative research conducted between February and June 2018, using the handbook on creativity and sensitivity dynamics, from the sensitive creative method; the participants were nine family caregivers of children admitted to a public hospital in Rio de Janeiro; the data were subjected to French discourse analysis Results: the educational demands were clinical, centered on the categories complex and continuous care, technological care, modified habits, medication, development and mixed care, and social, related to the supplies and rights of children Final Considerations: the social educational demand has emerged as a new demand to be incorporated in the care of these children. The transition from hospital to home should be progressive and have the nurse as its coordinator, with the objective of providing participatory, safe, quality care, articulated within a social network

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“…The majority of models of care for improving the outcomes for CSHCN reported in the literature are hospital-based models (Berman et al, 2005;Gordon et al, 2007); fewer general pediatric, medical home-based models exist (Galligan et al, 2018;Lichstein et al, 2018;Petitgout, 2018). Practices have largely implemented "care coordination" elements through enhanced teams such as nurse practitionerphysician or social work-physician models (Ruggiero et al, 2019).…”

Section: Available Knowledgementioning

confidence: 99%