The feasibility of daily monitoring in adolescents and young adults with mild intellectual disability or borderline intellectual functioning

Abstract

Background It is unclear whether the limitations of young persons with a mild intellectual disability or borderline intellectual functioning preclude feasibility of the daily diary method. Method For 60 consecutive days, 50 participants (Mage = 21.4, 56% male) who receive care in an ambulatory, residential, or juvenile detention setting, self‐rated both standardised and personalised diary questions through an app. Diary entries were used for feedback in treatment. Interviews were used to explore acceptability. Results Average compliance was 70.4%, while 26% of participants dropped out. Compliance was good in ambulatory (88.9%) and residential care (75.6%), but not in the juvenile detention setting (19.4%). The content of self‐selected diary items varied widely. Participants deemed the method acceptable. Conclusions Daily monitoring is feasible for individuals with a mild intellectual disability or borderline intellectual functioning receiving ambulatory or residential care, and can provide scientists and practitioners with important insights into day‐to‐day behavioural patterns.

Accessibility and feasibility of experience sampling methods for mental health research with people with intellectual disability: Scoping of research and stakeholder views

“…In two studies (Hulsmans et al, 2023;Wilson et al, 2020), the acceptability and feasibility of experience sampling were the target outcomes. In the other studies, experience sampling was used to investigate social and/or psychological outcomes.…”

“…In the other studies, experience sampling was used to investigate social and/or psychological outcomes. Compliance rates to the beeps were reported by five studies (Feller et al, 2021;Gosens et al, 2023;Hulsmans et al, 2023;Schneider et al, 2020;Wilson et al, 2020) and ranged between 34% (Wilson et al, 2020) and 71% (Gosens et al, 2023). Feller et al (2021 reported that the researchers sent personalised messages to the participants every other day to encourage them and to verify study compliance, and that the researchers were available for support throughout the experience sampling procedure.…”

“…Findings regarding the acceptability and feasibility of experience sampling were reported by three studies (Hulsmans et al, 2023;Schneider et al, 2020;Wilson et al, 2020). Hulsmans et al (2023) concluded that daily experience sampling is feasible for adolescents and young adults with mild intellectual disability and borderline intellectual functioning, based on compliance (70%) and drop-out (26%) rates. Based on interviews, they further concluded that experience sampling is acceptable for this population.…”

“…Sixteen studies were initially screened based on the full-text, of which six studies fit the inclusion criteria (Feller et al, 2021Hyde et al, 2021;Schneider et al, 2020;Wilson et al, 2020). The search was updated towards the end of the scoping review, which yielded one additional study that fit the criteria (Hulsmans et al, 2023). Another eligible study was found using snowballing (Gosens et al, 2023).…”

“…The studies were published between 2015 and 2023. In four of the studies (Feller et al, 2021Hyde et al, 2021;Schneider et al, 2020), people with 22q11.2 deletion syndrome were the target population and in three studies, the target population were people with mild intellectual disability (Wilson et al, 2020) or mild intellectual disability/borderline intellectual functioning (Gosens et al, 2023;Hulsmans et al, 2023). Sample sizes of the included studies ranged between 12 and 107 participants.…”