The Family Value of Information, Community Support, and Experience Study

Abstract

The Patient Protection and Affordable Care Act focuses on improving consumer engagement and patient-centered care. This article describes the design and rationale of a study targeting family engagement in pediatric mental health services. The study is a 90-day randomized trial of a telephone-delivered Family Navigator services versus usual care for parents of Medicaid-insured youth younger than 13 years with serious mental illness. Youth are identified through a pediatric antipsychotic medication preauthorization program. Family Navigators offer peer support to empower and engage parents in their child's recovery. Outcomes include parent report of empowerment, social support, satisfaction with child mental health services, and child functioning as well as claims-based measures of psychotherapy service utilization and antipsychotic medication dosage. The focus on "family-centered" care in this study is strongly supported by the active role of consumers in study design and implementation.

What’s known about implementing co-located paediatric integrated care: a scoping review

“…Although engagement appears to be improved with co-located models, non-engagement or non-adherence to full treatment protocols continues to be a problem in most settings. None of the studies sought to enhance treatment engagement through the inclusion of lay providers, who have played an important role in combating poor engagement and adherence in other chronic medical conditions (Carter et al, 2018) as well as in severe mental illness (Reeves et al, 2015) as well as maternal depression (Diaz-Linhart et al, 2016), and who have increasingly played an important role in the medical home model (Feinberg et al, 2016;Justvig et al, 2017). Godoy et al (2014) noted that younger patients were less likely to be referred to an integrated provider, even when controlling for child behavior, and were also less likely to attend an appointment if referred.…”