The family of a child with cancer - changes within the family system

Siemińska, Maria J; Greszta, Elżbieta

doi:10.2478/v10059-008-0023-6

Cited by 3 publications

(1 citation statement)

References 45 publications

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“…It is assumed that the more strategies a family uses in difficult situations, the better their ability to cope with a family crisis. The questionnaire diagnoses 5 strategies of action [15]:…”

Section: Family Crisis Oriented Evaluation Scales (F-copes)mentioning

confidence: 99%

The Influence of Family Crisis Coping Strategies on Family Quality of Life in the Assessment of Patients with Idiopathic Scoliosis

Cyran-Grzebyk

Perenc

Wyszyńska

et al. 2023

IJERPH

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The aim of the study was to assess the impact of the strategies of coping with the family crisis in children and adolescents with idiopathic scoliosis on the level of their family’s quality of life (FQOL). The study group consisted of 100 adolescents (girls 83%, boys 17% of the entire main group) with an average age of 14 (13.83 ± 1.92). The control group consisted of the same number of people as the study group (girls 78%, boys 22% of the entire control group) with an average age of 14 (14.09 ± 2.16). The FQOL scale was used to assess the family’s quality of life, and the F-COPES scale was used to assess the problem-solving strategies used by the family (individual members) in a difficult life situation. Statistical analysis showed significant differences between the two compared groups. While dealing with a crisis situation in their families, adolescents treated for idiopathic scoliosis were using the spiritual support strategy (M ± SD 5.12 ± 2.07) significantly more often, while their healthy peers much more willingly and more often benefited from other possible strategies (F-COPES). Additionally, statistically significant differences were observed in the assessment of children and adolescents from both groups that the usage of different strategies available on the F-COPES scale correlated and affected the areas of the FQOL level of their families. Gaining spiritual support had a negative impact on the area of physical and financial well-being of FQOL, as assessed by juveniles with SI (R = −0.254, p = 0.011). However, in the opinion of healthy peers, the strategy of gaining social support (F-COPES) resulted in a higher level of FQOL in the area of disability problems (p = 0.005). A long process of SI treatment can cause crisis situations for patients and their families and affect both the physical and mental health of patients by changing the FQOL level of their families.

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Section: Family Crisis Oriented Evaluation Scales (F-copes)mentioning

confidence: 99%

The Influence of Family Crisis Coping Strategies on Family Quality of Life in the Assessment of Patients with Idiopathic Scoliosis

Cyran-Grzebyk

Perenc

Wyszyńska

et al. 2023

IJERPH

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Multiple losses in families of children with cancer: A retrospective sociological analysis

Guseva

Жуковская

Lebed

2023

Sociology of Medicine

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BACKGROUND: Current advances in medicine determine the higher survival rate of children with various nosological forms of malignant tumors, which shifts the focus of attention of specialists from the development of treatment protocols to the study of early and long-term effects of antitumor therapy in children and their families. One of the urgent problems of psychological and social rehabilitation in pediatric oncology is the analysis of the psycho-traumatic factors of treatment and the long-term medical and social consequences for the childs family when developing a strategy for effective psychological support for this observation group at the treatment stage. OBJECTIVE: We aimed to study the specifics of living with losses in families raising a child with oncopathology and the features of the childs re-adaptation and resocialization after overcoming an oncological disease (at the remission stage). MATERIALS AND METHODS: A retrospective analysis of data obtained in the course of a sociological study of parents (n=1298) whose children completed treatment for various malignant tumors is presented. The study, carried out by a questionnaire survey of mothers (n=1131) and fathers (n=167) living in 78 regions of Russia, made it possible to qualify the problems of family members of a child with cancer in terms of multiple loss and grief and substantiate the strategy of psychological assistance to this group. RESULTS: During the establishment of the oncological diagnosis of the child and their antitumor treatment, the family experiences some traumatic events associated with drastic changes in their lives. According to the findings of the study, the deterioration in normal life concerns health (in total, a third of the respondents: 12.9% of mothers noted a deterioration in their general health and in 15.2% of women, serious reproductive health disorders); work (leaving and dismissal from work affected 25.3% of mothers and 2% of fathers, 11.4% of mothers and 9.6% of fathers were forced to change their job or place of work); and a drop in the level of family income (the proportion of low-income families in the sample was significantly higher than in the Russian population as a whole 41.8 and 31.4%, respectively, social benefits and pensions accounted for a significant share of income in 57.3% of female respondents and 26.3% of men, and there were changes in life prospects due to graduation, relocation, divorce, and severance of relations with relatives and friends). Each of these events is perceived as stress/loss and triggers a grieving process in family members (primarily parents) that requires the professional help of a clinical psychologist. In general, the range of events triggering the grieving process in the families of the study group is much wider, but the quality and volume of psychological care in domestic cancer hospitals are still extremely low. CONCLUSION: The dynamics of the development of psychological and social rehabilitation in domestic pediatric oncology determine the need to develop strategies and methods of psychological support for family members of a sick child at the treatment stage, taking into account the early and long-term medical and social consequences of antitumor therapy.

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Use of religious coping in Polish parents of children with cancer

Çaksen

2024

Prog Health Sci

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The authors presented the role of religion coping Polish parents of children with cancer. They emphasized that religion is the very life of life, its light and its basis in many cultures around the world, as in Poland. The religious coping is often used by Polish parents of children with cancer; however, the results are inconsistent. The authors suggest that comprehensive, randomized, controlled and multidisciplinary studies including oncologists, psychiatrists, psychologists, social workers, and theologies should be conducted about the effects of religious coping on physical, social, mental and spiritual health of both children with cancer and their parents.

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The family of a child with cancer - changes within the family system

Cited by 3 publications

References 45 publications

The Influence of Family Crisis Coping Strategies on Family Quality of Life in the Assessment of Patients with Idiopathic Scoliosis

The Influence of Family Crisis Coping Strategies on Family Quality of Life in the Assessment of Patients with Idiopathic Scoliosis

Multiple losses in families of children with cancer: A retrospective sociological analysis

Use of religious coping in Polish parents of children with cancer

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