The “extent of information desired”-scale in psychiatric in-patients: A behavioural approach

Zwaenepoel, Lieven; Hoorens, Vera; Laekeman, Gert

doi:10.1016/j.pec.2005.06.006

Cited by 7 publications

(7 citation statements)

References 27 publications

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“…Medical characteristics were collected from the FNCLCC-PACS04 trial database. Sociodemographic data, 'extent of information desired' (Zwaenepoel et al, 2006), and perception of the usefulness of being informed about the trial results were ascertained in the baseline questionnaire.…”

Section: Methodsmentioning

confidence: 99%

Participants’ uptake of clinical trial results: a randomised experiment

et al. 2010

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Background:Participants are showing great interest these days in obtaining the results of clinical trials. The aim of this study was to assess patients' uptake and understanding of the results of the trial in which they have participated and the impact of a letter offering patients the possibility of consulting the trial results on a specific website.Methods:Breast cancer patients participating in a trial on the efficacy of Trastuzumab were randomly subdivided into an Internet group (who received the letter of invitation) and a control group (who did not receive it). Among 115 HER2-positive women from 21 centres, 107 (93%) answered a self-administered questionnaire.Results:Most of the patients in both groups had access to the Internet (72.0%). The majority (97.2%) stated that receiving information about the trial results would be useful, and the oncologist was the most frequently preferred information provider. The Internet group's declared uptake of the trial results was only slightly higher (47.1% vs 33.9% P=0.166); however, they understood the results significantly more accurately (18.8% vs 5.6% P=0.039).Interpretation:Although Internet was not the respondents' preferred source of information, the possibility of using this source slightly increased the uptake and understanding of the results.

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Section: Methodsmentioning

confidence: 99%

Participants’ uptake of clinical trial results: a randomised experiment

et al. 2010

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“…Information‐seeking behaviour, that is the general wish for health‐related information, was assessed using the six‐item Extent of Information Desired (EID) scale …”

Section: Methodsmentioning

confidence: 99%

“…19 Information-seeking behaviour, that is the general wish for health-related information, was assessed using the six-item Extent of Information Desired (EID) scale. 20 Breast cancer risk perception was selfreported using a 5-point Likert scale ranging from 'null' to 'very high'.…”

Section: Psychological Characteristicsmentioning

confidence: 99%

Disclosure of research results: a randomized study on GENEPSO‐PS cohort participants

Mancini

Cozannet

Bouhnik

et al. 2015

Health Expectations

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BackgroundThere exist no recommendations as to how aggregate research results should best be disclosed to long‐term cohort participants.ObjectiveTo study the impact of cohort results disclosure documents of various kinds on participants’ satisfaction.DesignRandomized study with a 2x2 factorial design.Setting and participantsThe GENEPSO‐PS cohort is used to study the psychosocial characteristics and preventive behaviour of both BRCA1/2 carriers and non‐carriers; 235 participants wishing to receive ‘information about the survey results’ answered a self‐administered questionnaire.InterventionsThe impact of providing the following items in addition to a leaflet about aggregate psychosocial research results was investigated (i) an up‐to‐date medical information sheet about BRCA1/2 genetic topics, (ii) a photograph with the names of the researchers.Main outcome measuresSatisfaction profiles drawn up using cluster analysis methods.ResultsProviding additional medical and/or research team information had no significant effect on satisfaction. The patients attributed to the ‘poorly satisfied’ group (n = 60, 25.5%) differed significantly from those in the ‘highly satisfied’ group (n = 51, 21.7%): they were younger [odds ratio (OR) = 0.96, 95% confidence interval (0.92–0.99), P = 0.028], less often had a daughter [OR = 4.87 (1.80–13.20), P = 0.002], had reached a higher educational level [OR = 2.94 (1.24–6.95), P = 0.014] and more frequently carried a BRCA1/2 mutation [OR = 2.73 (1.20–6.23), P = 0.017].ConclusionsThis original approach to disclosing research results to cohort participants was welcomed by most of the participants, but less by the more educated and by BRCA1/2 carriers. Although an easily understandable document is necessary, it might also be worth providing some participants with more in‐depth information.

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“…Given our own experience in researching desire for information in psychiatric patients,8 9 a qualitative approach using semi-structured interviews in a convenience sample of psychiatric patients was chosen as an appropriate method to investigate the opinion of these patients on the provision of drug information.…”

Section: Methodsmentioning

confidence: 99%

Hospital pharmacists providing drug information to psychiatric inpatients: still a long way ahead

Desplenter

Zwaenepoel²,

Peuskens

et al. 2012

Eur J Hosp Pharm

Self Cite

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Study objective The aim of this study is to gain knowledge on the opinion of psychiatric patients about the provision of drug information so that the psychiatric hospital pharmacist can consider opportunities to be directly involved in patient care. Methods Qualitative interviews were performed in a convenience sample of psychiatric patients. The interviews were audio taped, transcribed verbatim and coded. The questions concerned the content and the format of information, the information provider and the possible role of the hospital pharmacist. Results The sample consisted of 16 patients. Nearly all topics covered by the summary of product characteristics, especially side effects, were considered. Patients were open to a wide variety of drug information formats. They spontaneously named the psychiatrist, general practitioner and nursing staff as the most appropriate people to provide drug information. The hospital pharmacist was not spontaneously mentioned. Conclusion Psychiatric patients did not identify the hospital pharmacist as being a partner in their treatment. This provides a challenge for the development of clinical psychiatric pharmacy.

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The “extent of information desired”-scale in psychiatric in-patients: A behavioural approach

Cited by 7 publications

References 27 publications

Participants’ uptake of clinical trial results: a randomised experiment

Participants’ uptake of clinical trial results: a randomised experiment

Disclosure of research results: a randomized study on GENEPSO‐PS cohort participants

Hospital pharmacists providing drug information to psychiatric inpatients: still a long way ahead

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