The extent and predictors of discrepancy between provider and recipient reports of informal caregiving

Urwin, Sean; Lau, Yiu-Shing; Grande, Gunn; Sutton, Matt

doi:10.1016/j.socscimed.2021.113890

Cited by 10 publications

(4 citation statements)

References 39 publications

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“…More pertinently, most studies of informal care, including ours, collect data from the carer rather than the care-recipient, and very few studies have reported comparisons of data collected from both actors [ 77 ]. Those that have indicate discrepancies between the actors in e.g., estimates of the level of care provided and the number of care domains for which support is required [ 78 ]. Thus, it should be remembered that the picture of informal care provided by the carer is not necessarily the same as that which would be obtained from the care-recipient [ 79 ].…”

Section: Discussionmentioning

confidence: 99%

Informal care provision among male and female working carers: Findings from a Swedish national survey

et al. 2022

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Introduction Informal carers in paid employment–working carers (WKCs)—have complex support needs. However, little is known about WKCs’ pattern of informal care provision, the support they receive, the impact providing care has on their employment, and how these vary between male and female WKCs. This study describes the pattern of informal care provision and received support among Swedish WKCs. Research method/Design The study was a cross-sectional questionnaire-based survey of a stratified random sample of the Swedish population aged 18 or over. The questionnaire addressed the type and extent of informal care provided, support received and the impact of care provision on employment. Of the 30,009 people who received the questionnaire, 11,168 (37.3%) responded, providing an analytic sample of 818 (7.32% of respondents) employed or self-employed informal carers. Findings A typical Swedish WKC was a middle-aged female, providing weekly or daily care to a non-cohabitant parent, who experiences care as sometimes demanding and receives no formal support as a carer. Female WKCs were more likely than males to care alone and with higher intensity, to report a need for help in meeting their care-recipient’s needs, and to experience care as demanding. Approximately 17% of WKCs reported their employment had been affected due to caring, 40% their ability to work, and 31% their career development opportunities. Female WKCs’ ability to work was affected more than males’, and they were more commonly prevented from applying for work. Conclusion Swedish female WKCs compared to males provide more hours of informal care, across more care domains, more often alone. This places them in a challenging situation when combining paid work and care. Greater recognition of the challenges faced by WKCs is required in Sweden and other countries, as are policies to reduce gender inequalities in informal care provision in this group.

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Section: Discussionmentioning

confidence: 99%

Informal care provision among male and female working carers: Findings from a Swedish national survey

et al. 2022

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“…Moreover, some individuals are not able, or not willing, to quantify precisely the volume of care provided by one or several of their caregivers. Finally, the use of proxy respondents might be associated with noise in the estimation of volume provided, since provider and recipient reports are not necessarily the same [ 40 ]. Appendix B.2 explores the difference between caregiver and recipient declaration on volume on a selected subsample of caregiver-recipient for whom both information are available.…”

Section: Discussionmentioning

confidence: 99%

Informal care at old age at home and in nursing homes: determinants and economic value

Roquebert

Tenand

2023

Eur J Health Econ

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This paper provides a comprehensive analysis of informal care receipt by the French individuals aged 60 or older. The literature has focused on the community, leaving informal care in residential care settings in the shadow. We leverage data from a representative survey (CARE) conducted in 2015–2016 on both community-dwelling individuals and nursing home residents. Focusing on the 60+ with activity restrictions, we show that 76% of nursing home residents receive help with the activities of daily living from relatives, against 55% in the community. The number of hours conditional on receipt is yet 3.5 times higher in the community. Informal care represents 186 million hours per month and a value equivalent to 1.1% of GDP at least, care in the community representing 95% of the total. We investigate the determinants of informal care receipt. Using an Oaxaca-type approach, we disentangle between two mechanisms explaining that nursing home residents are more likely to receive informal care, namely the differences in population composition (endowments) and the differences in the association of individual characteristics with informal care (coefficients). Both are found to have a similar contribution. Our results imply that private costs make up for the majority (76%) of the costs associated with long-term care provision once informal care is taken into account. They also highlight that informal care is extremely common for nursing home residents. Existing evidence on the determinants of informal care receipt in the community has, however, limited relevance to understand informal care behaviors in nursing homes.

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“…So, using this variable would capture only a subset of informal spouse caregivers. See also Urwin et al (2021), who document (1) discrepancies between caregiver and care receiver reports of informal care, (2) caregiver under reporting of caregiving, and (3) that (I/)ADL limitations strongly predict agreement in caregiver and care receiver reports of informal care.…”

Section: Sample Selectionmentioning

confidence: 99%

Formal home care use and spousal health outcomes

Gonçalves

Hafe²,

Filipe

2021

Social Science & Medicine

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The extent and predictors of discrepancy between provider and recipient reports of informal caregiving

Cited by 10 publications

References 39 publications

Informal care provision among male and female working carers: Findings from a Swedish national survey

Informal care provision among male and female working carers: Findings from a Swedish national survey

Informal care at old age at home and in nursing homes: determinants and economic value

Formal home care use and spousal health outcomes

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