The expressed support needs of families of adults who have survived critical illness: A thematic synthesis

Millward, Kat; McGraw, Caroline; Aitken, Leanne M.

doi:10.1016/j.ijnurstu.2021.104048

Cited by 6 publications

(16 citation statements)

References 91 publications

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“…However, it could also be beneficial for healthcare professionals to inform families that they are not obligated to spend all their time at the hospital, despite that being an option. This is supported in the review by Millward et al (2021), who also highlight how families must balance being close and maintaining their own lives during the illness trajectory.…”

Section: Discussionmentioning

confidence: 79%

“…In our findings, the participants experienced a disruption to their family's expected future and strove for a safe ground for the whole family. Striving for a safe ground may be seen as a way of holding everything together, which is one of the five key family needs during the recovery continuum after critical illness, according to Millward et al (2021). While striving for a safe ground, the participants experienced their close one's dependency, acting as an advocate and supportive voice when the patients were unable to speak their minds or take care of themselves.…”

Section: Discussionmentioning

confidence: 99%

Section: What Does This Paper Contribute To the Wider Global Clinical...mentioning

confidence: 99%

“…In a recently published review on families of critical care patients support needs, Millward et al (2021) found five key needs, namely those for security, making sense of the situation, finding a balance, holding everything together and trust. Frivold et al (2016) found that a need to maintain control or adapt to changes was necessary in the everyday lives of relatives following a close one's critical illness.…”

Section: Introductionmentioning

confidence: 99%

“…To meet these challenges, Frivold et al (2016) suggested a better support system for family members in this situation. As noted, Millward et al (2021) illuminated five key family needs, as well as the different interventions which could be helpful for meeting them: Written information, care coordination and navigation, input from intensive care staff after discharge to support continuity and the provision of family support groups.…”

Section: Introductionmentioning

confidence: 99%

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Striving for a safe ground—A lifeworld approach of family members' experiences of the critical illness trajectory

Flinterud

Moi

Gjengedal

et al. 2023

Journal of Clinical Nursing

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Aims and ObjectivesTo explore the experiences of family members after they have lived through a close one's illness trajectory starting with critical illness and intensive care treatment, throughout hospitalisation and after their return home, and describe what was important and challenging for them during this time.BackgroundBeing family during and after critical illness and intensive care treatment may be traumatic and challenging. An in‐depth understanding of family members’ lifeworld throughout a close one's illness trajectory is needed.DesignA qualitative design with a phenomenological approach.MethodsWe held ten interviews with eleven next of kin, nine of which were individual and one with a parent couple. The interviews lasted 90 minutes, on average, and were transcribed verbatim. Giorgi's phenomenological method guided the analysis.ResultsThe overall structure was ‘striving for a safe ground for themselves and their close one’, which was dependent on the three constituents of ‘in need of care’, ‘to take on responsibility’ and ‘to create new understanding’. Throughout the illness trajectory, the family members required care to increase their feelings of safety in the context of their close one being unsafe. They described taking on responsibility for their close one—a responsibility that increased after hospital discharge—as demanding new knowledge which they were often unable to obtain.ConclusionsFamilies of critically ill patients need to be seen on their own behalf. Moreover, when taking on responsibility for their close one, they regularly need more knowledge than they get. There seems to be an absence of a support system for families with caring responsibilities after their relatives are discharged from hospitals.Relevance to Clinical PracticeThis study shows the importance of family carers being considered in their own right, as well as their individual needs throughout a close one's illness trajectory. There seems to be a gap in the knowledge of what family members require when their close one is discharged. Indeed, a better support system is essential for families following a hospital discharge.

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Section: Discussionmentioning

confidence: 79%

Section: Discussionmentioning

confidence: 99%

Section: What Does This Paper Contribute To the Wider Global Clinical...mentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 3 more Smart Citations

Striving for a safe ground—A lifeworld approach of family members' experiences of the critical illness trajectory

Flinterud

Moi

Gjengedal

et al. 2023

Journal of Clinical Nursing

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Close relatives' perspective of critical illness due to COVID‐19: Keeping in touch at a distance

Nordin,

Engström,

Strömbäck

et al. 2023

Nursing Open

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AimTo elucidate the meaning of being a close relative of a critically ill person cared for in intensive care during the initial phase of the COVID‐19 pandemic.DesignA narrative inquiry design following the COREQ guidelines.MethodsIndividual interviews with fifteen close relatives of patients critically ill with COVID‐19 were analysed using phenomenological hermeneutics.ResultsThe surreal existence of not being allowed to be near was emotionally difficult. While distancing due to restrictions was challenging, physicians' phone calls served as a connection to their relatives and brought a sense of security. Keeping notes helped them remember what happened and brought order to a chaotic situation.ConclusionClose relatives feel secure when they receive regular information about their critically ill relative, not just when their condition worsens. They wish to be physically near to their critically ill person; when this is impossible, digital technology can provide support, but further accessibility developments are needed.

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Recovery from Sepsis: Management beyond Acute Care

Andersen,

Herridge,

Fiest

2024

Semin Respir Crit Care Med

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Recovery from sepsis is a key global health issue, impacting 38 million sepsis survivors worldwide per year. Sepsis survivors face a wide range of physical, cognitive, and psychosocial sequelae. Readmissions to hospital following sepsis are an important driver of global healthcare utilization and cost. Family members of sepsis survivors also experience significant stressors related to their role as informal caregivers. Increasing recognition of the burdens of sepsis survivorship has led to the development of postsepsis recovery programs to better support survivors and their families, although optimal models of care remain uncertain. The goal of this article is to perform a narrative review of recovery from sepsis from the perspective of patients, families, and health systems.

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The expressed support needs of families of adults who have survived critical illness: A thematic synthesis

Cited by 6 publications

References 91 publications

Striving for a safe ground—A lifeworld approach of family members' experiences of the critical illness trajectory

Striving for a safe ground—A lifeworld approach of family members' experiences of the critical illness trajectory

Close relatives' perspective of critical illness due to COVID‐19: Keeping in touch at a distance

Recovery from Sepsis: Management beyond Acute Care

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