The Experiences of Younger Individuals Living With Heart Failure

Walsh, Alison; Kitko, Lisa; Hupcey, Judith E.

doi:10.1097/jcn.0000000000000525

Cited by 11 publications

(9 citation statements)

References 16 publications

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“…Results showed that the intervention group had a decrease in fatigue and an improvement of QoL, whereas no significant changes were observed in the control group. Similarly, an exercise program significantly improves fatigue and QoL from baseline to 12 weeks later [41].…”

Section: Discussionmentioning

confidence: 99%

Fatigue in heart failure outpatients: levels, associated factors, and the impact on quality of life

Polikandrioti¹,

Kalafatakis²,

Κoutelekos³

et al. 2019

Arch Med Sci Atheroscler Dis

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Introduction Heart failure (HF) patients experience various psychosocial issues and physical symptoms such as fatigue, which adversely affect their quality of life (QoL). The aim of the study was to assess levels of fatigue in HF outpatients and the associated factors, as well as to explore the correlation between fatigue and QoL. Material and methods One hundred and thirty patients were enrolled in the study. Data collection was performed by the completion of “Minnesota Living With Heart Failure” questionnaire (MLHFQ) and the Greek version of the Modified Fatigue Impact Scale (MFIS-Greek). Data also included self-reported patients’ characteristics. Results Of the 130 HF outpatients, 50% scored above 69 (median) in total fatigue and above 41 and 29 (median) in physical and mental fatigue, respectively. Furthermore, 50% scored above 66 (median) in total QoL and above 32.5 and 13 (median) in the physical and mental state, respectively. These values indicate moderate to high impact of HF on fatigue and on patients’ QoL. Total fatigue was statistically significantly associated with NYHA stage ( p = 0.001), confidence to acknowledge health deteriorations ( p = 0.004), decrease in appetite ( p = 0.001), dyspnoea at night ( p = 0.001), oedema in lower limbs ( p = 0.023), relation with health professionals ( p = 0.031), and whether patients had limited daily activities ( p = 0.002), social contacts ( p = 0.014), and if they had financial worries ( p = 0.003). Finally, as the score of fatigue increased, so the QoL score also increased. Conclusions A broader understanding of this distressing symptom in HF may contribute to the development of suitable interventions with the ultimate goal of improving QoL.

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Section: Discussionmentioning

confidence: 99%

Fatigue in heart failure outpatients: levels, associated factors, and the impact on quality of life

Polikandrioti¹,

Kalafatakis²,

Κoutelekos³

et al. 2019

Arch Med Sci Atheroscler Dis

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“…Running Out of Batteries Bad Life Associated Symptoms Feeling Misunderstood HF Dickson et al 17 A A Gwaltney et al 18 A A A Hagglund et al 15 A A A A Holden et al 20 A A A Jones et al 23 A A A A Jurgens et al 19 A A A A Norberg et al 21 A A A A Walsh et al 22 A A A A MS Al-Sharman et al 24 A A A A Kayes et al 12 A A A Lohne et al 11 A A A A Moriya and Kutsumi 25 A A A A Newland et al 26 A A A A Barlow et al 27 A A A A Turpin et al 28 A A A A RA Connolly et al 29 A A A A Feldthusen et al 30 A A A A Minnock et al 31 A A A A Mortada et al 32 A A A Nikolaus et al 33 A A A A Repping-Wuts et al 34 A A A A Thomsen et al 4 A A A CKD Cox et al 36 A A A A Kazemi et al 37 A A A A Monaro et al 38 A A Picariello et al 41 A A A A Pugh-Clarke et al 42 A A A A Schipper et al 39 A A A A Yngman-Uhlin et al 40 A A A A COPD Kouijzer et al 43 A A A A Paap et al 44 A A A Stridsman et al 45 A A A A Wortz et al 46 A A A A Shalit et al 47 A A A HF ¼ heart failure; MS ¼ multiple sclerosis; RA ¼ rheumatoid arthritis; CKD ¼ chronic kidney disease; COPD ¼ chronic obstructive pulmonary disease. The symbol 'A' denotes third-order themes included in the study.…”

Section: Studies By Chronic Conditionmentioning

confidence: 99%

A Qualitative Metasynthesis of the Experience of Fatigue Across Five Chronic Conditions

Jaime-Lara

Koons

Matura

et al. 2020

Journal of Pain and Symptom Management

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Context. Fatigue is a symptom reported by patients with a variety of chronic conditions. However, it is unclear whether fatigue is similar across conditions. Better understanding its nature could provide important clues regarding the mechanisms underlying fatigue and aid in developing more effective therapeutic interventions to decrease fatigue and improve quality of life. Objectives. To better understand the nature of fatigue, we performed a qualitative metasynthesis exploring patients' experiences of fatigue across five chronic noninfectious conditions: heart failure, multiple sclerosis, rheumatoid arthritis, chronic kidney disease, and chronic obstructive pulmonary disease. Methods. We identified 34 qualitative studies written in the last 10 years describing fatigue in patients with one of the aforementioned conditions using three databases (Embase, PubMed, and CINAHL). Studies with patient quotes describing fatigue were synthesized, integrated, and interpreted. Results. Across conditions, patients consistently described fatigue as persistent overwhelming tiredness, severe lack of energy, and physical weakness that worsened over time. Four common themes emerged: running out of batteries, a bad life, associated symptoms (e.g., sleep disturbance, impaired cognition, and depression), and feeling misunderstood by others, with a fear of not being believed or being perceived negatively. Conclusion. In adults with heart failure, multiple sclerosis, rheumatoid arthritis, chronic kidney disease, and chronic obstructive pulmonary disease, we found that fatigue was characterized by severe energy depletion, which had negative impacts on patients' lives and caused associated symptoms that exacerbated fatigue. Yet, fatigue is commonly misunderstood and inadequately acknowledged.

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“…Specifically, younger patients may need greater support, because they face the challenge of balancing HF disease restriction with finding a job or remaining employed, establishing meaningful relationships, attending to family duties, and maintaining financial security. 88 Finally, this study found that anxiety was associated with both pain and a history of comorbid depression. The association between body pain and anxiety has not been previously reported in research focusing on hospitalized or community patients with HF.…”

Section: Discussionmentioning

confidence: 65%

Factors Associated With Depression and Anxiety for Community-Dwelling Patients With Heart Failure

et al. 2022

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Background: Depression and anxiety are common comorbidities in heart failure (HF) and are associated with adverse outcomes including unplanned hospitalization. However, there is insufficient evidence on the factors associated with depression and anxiety for community patients with HF to inform optimal assessment and treatment in this population. Aim: The aim of this study was to examine the prevalence of and factors associated with depression and anxiety in community-dwelling patients with HF. Methods: A retrospective cohort study of 302 adult patients given a diagnosis of HF referred to United Kingdom's largest specialist cardiac rehabilitation center, from June 2013 to November 2020. Main study outcomes were symptoms of depression using Patient Health Questionnaire-9 and anxiety using the General Anxiety Disorder 7-item scale. Explanatory variables included demographic and clinical characteristics and functional status from the Dartmouth COOP questionnaire: quality of life, pain, level of social activity and daily activities, and being bothered by emotional problems (feelings). Logistic regressions were performed to evaluate the association between demographic and clinical characteristics and depression and anxiety. Results: Of the sample, 26. 2% reported depression and 20.2% had anxiety. Higher depression and anxiety were associated with difficulty in performing daily activities (95% confidence interval, 1.11-6.46 and 1.13-8.09, respectively) and being bothered by feelings (95% confidence interval, 4. 06-21.77 and 4.25-22.46, respectively). Depression was associated with limitations in social activity (95% confidence interval, 1.06-6.34) and anxiety with distressing pain (95% confidence interval, 1.38-7.23). Conclusion: Findings indicate the importance of psychosocial interventions for patients with HF to minimize and manage depression and anxiety. Patients with HF may benefit from interventions targeted to maintain independence, promote participation in social activities, and optimally manage pain.

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The Experiences of Younger Individuals Living With Heart Failure

Cited by 11 publications

References 16 publications

Fatigue in heart failure outpatients: levels, associated factors, and the impact on quality of life

Fatigue in heart failure outpatients: levels, associated factors, and the impact on quality of life

A Qualitative Metasynthesis of the Experience of Fatigue Across Five Chronic Conditions

Factors Associated With Depression and Anxiety for Community-Dwelling Patients With Heart Failure

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