The experiences of Turkish families caring for individuals with Schizophrenia: A qualitative inquiry

Özden, Seda Attepe; Tuncay, Tarık

doi:10.1177/0020764018779090

Cited by 20 publications

(26 citation statements)

References 41 publications

(46 reference statements)

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“…We’ve understood all of them , but do you know how I’ve understood them ? I was able to understand it in two to three years” [ 38 ] (p. 501).…”

Section: Resultsmentioning

confidence: 99%

“…However , indeed , we haven’t accepted it . We have questions in our minds at every moment” [ 38 ] (p. 500).…”

Section: Resultsmentioning

confidence: 99%

“…Content analysis 5 Attepe Ö zden and Tuncay (2018) [38] Turkey n = 31 (mixed first-degree relatives, female carer: 35% and male carer: 39%, for siblings their gender is not specified: 26%)…”

Section: Semistructured Interviewsmentioning

confidence: 99%

“…. (Talking about his daughter İlknur, who was diagnosed while working after university graduation)" [38] (p. 500).…”

Section: Plos Onementioning

confidence: 99%

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The experiences of family caregivers of people with severe mental illness in the Middle East: A systematic review and meta-synthesis of qualitative data

et al. 2021

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Background There is a wealth of literature exploring the experiences of family caregivers of people with severe mental illness (SMI) in western countries, however, this topic has been neglected in the Middle East, despite families being the main source of caregiving in this context. The purpose of this review was to conduct a systematic review and qualitative meta-synthesis to explore the experiences of family caregivers living in countries in the Middle East caring for a relative with severe mental illness. Methods A systematic review and meta-synthesis were conducted, to comprehensively gain a thorough and detailed overview of what is known about family caregivers’ experiences from published qualitative research in the Middle East geographical area from inception to May 2021. The review protocol was pre-registered with PROSPERO (Ref: CRD42020165519). Results The review identified twelve qualitative studies that explored caregivers’ experiences of caring for relatives with SMI in Middle East countries. Family caregivers’ experiences were captured under seven overarching themes. The participants across all studies reported negative consequences of providing care, increased burden and emotional distress. Many experienced issues with family/marital relationships and stigmatizing attitudes and behaviours from their communities. Caregivers expressed the need for increased support which was perceived to have a critical role in improving family caregivers’ experiences. Conclusions The meta-synthesis revealed many challenges and issues that affect caregivers of people with SMI in the Middle East. Family caregivers experienced distress and burden, and reported significant impact on their psychological well-being. Their experiences highlight the urgent need to provide more support for family caregivers in Middle East countries.

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“…We’ve understood all of them , but do you know how I’ve understood them ? I was able to understand it in two to three years” [ 38 ] (p. 501).…”

Section: Resultsmentioning

confidence: 99%

“…However , indeed , we haven’t accepted it . We have questions in our minds at every moment” [ 38 ] (p. 500).…”

Section: Resultsmentioning

confidence: 99%

Section: Semistructured Interviewsmentioning

confidence: 99%

“…. (Talking about his daughter İlknur, who was diagnosed while working after university graduation)" [38] (p. 500).…”

Section: Plos Onementioning

confidence: 99%

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The experiences of family caregivers of people with severe mental illness in the Middle East: A systematic review and meta-synthesis of qualitative data

et al. 2021

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“…It has established its efficacy and effectiveness as an evidenced-based practice in improving compliance, relapse prevention, and positive effect on symptoms of schizophrenia. [12345]…”

mentioning

confidence: 99%

Family psychoeducation with caregivers of schizophrenia patients: Impact on perceived quality of life

Verma¹,

Walia²,

Srivastava³

2019

Ind Psychiatry J

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Background:Schizophrenia is a devastating and chronic mental illness. Considering the nature of illness along with routine psychiatric care, various supportive therapies are recommended. Family psychoeducational approach has been developed to increase patients' as well as their caregivers' knowledge and insight into their illness. It is postulated that this increased knowledge and insight will enable people with schizophrenia and their caregivers to cope in a more effective way with the consequences of their illness, thereby improving prognosis.Aim:The aim of this study is to assess the efficacy of family psychoeducation intervention on the caregivers of schizophrenia patients with respect to their perceived quality of life.Materials and Methods:A total of 30 caregivers of male schizophrenia patients were selected through purposive sampling technique. Patients were divided into two groups, namely, experimental and control group. Family psychoeducation intervention was given on twice-monthly basis for 6 months to the experimental group caregivers. Baseline assessment was carried out with the help of WHO Quality of Life-BREF followed by intervention and then posttherapeutic assessment was done with same tool.Results:Most of the caregivers were above 40 years of age group, married, and male. Following family psychoeducation, significant improvement in overall quality of life scores was observed in experimental group caregivers compared to control group caregivers where no such intervention was provided.Conclusion:Family psychoeducation is feasible and useful in our clinical population.

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The effect of a psychoeducational intervention on mental health and anxiety in family caregivers of inpatient patients with schizophrenia: a randomized controlled trial

Bademli

Lök²,

Çinkılıç³

2022

Curr Psychol

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The experiences of Turkish families caring for individuals with Schizophrenia: A qualitative inquiry

Abstract: To reduce the burden, family therapies, education and psychological support should be provided for families, and job opportunities, long-term caregiving services and psychological support should be provided for individuals with schizophrenia.

Cited by 20 publications

References 41 publications

The experiences of family caregivers of people with severe mental illness in the Middle East: A systematic review and meta-synthesis of qualitative data

The experiences of family caregivers of people with severe mental illness in the Middle East: A systematic review and meta-synthesis of qualitative data

Family psychoeducation with caregivers of schizophrenia patients: Impact on perceived quality of life

The effect of a psychoeducational intervention on mental health and anxiety in family caregivers of inpatient patients with schizophrenia: a randomized controlled trial

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