The Experiences of the Registered Nurse Caring for the Person Dying of Cancer in a Nursing Home

Irvin, Susan C.

doi:10.1016/s1322-7696(08)60388-1

Cited by 31 publications

(45 citation statements)

References 11 publications

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“…Minimum nurse staffi ng standards are identifi ed as overcoming chronic understaffi ng and a high staff turnover that results in neglect of residents in nursing homes (Kuokkanen & Leino-Kilpi, 2000, 2001Marquis et al, 2004;Tonuma & Winbolt, 2000;Wells, 2004). Studies identify a direct correlation between staffi ng levels and the quality of care provided, and between staffi ng levels and the optimal care able to be provided (Courtney & Spencer, 2000;Irvin, 2000;Venturato, Kellett, & Windsor, 2007).…”

Section: Unethical Discourses and Practicesmentioning

confidence: 99%

“…Limited human resources in aged care facilities contributes to a rushed and hurried provision of nursing care in Australia to the detriment of nursing and resident outcomes (CofA, 2002b(CofA, , 2002c(CofA, , 2002dIrvin, 2000;Moyle, Iselin, Baeslack-Smith, & Fleming, 2005;Parmelee, 2004;Richardson & Martin, 2004;Wylie, Madjar, & Walton, 2002). This environment of time, assessment is imperative to appropriate interventions, but this was not undertaken in this facility because of the structures in place for monitoring determined by the system and the staff resources.…”

Section: Unethical Discourses and Practicesmentioning

confidence: 99%

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Opinion Piece

Bellis

2010

Contemporary Nurse

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The Australian government and aged care industry uphold the standard of care for persons who require high care and reside in residential aged care facilities. The residential aged care system is extremely complex and through research conducted at the micro level it is argued that the macro level of policy can be exposed for the effects on the ground. A case study methodology in the qualitative paradigm used a discourse analysis of the nursing care for three highly dependent residents in one accredited aged care facility. Detailed data were collected through interviews, non-participant observations and document analyses concerning the nursing care these residents received. A comparative analysis of the discourses revealed this facility to be functioning in an environment of neglect. Nursing care provision was rushed and untimely and the residents were at risk of unsafe practices and negligence. The documentation of nursing care was found to be fraudulent, demeaning and out of date. Environmental considerations, continence management and the social and activity needs of residents were contradictory to their quality of life. The autonomy of the residents and advocacy by relatives were misinterpreted and unethical discourses were apparent with relatives having to be constantly vigilant. The nursing care provided by nurses (and non-nurses) failed to meet professional nursing standards and competencies, which adversely affected the residents' health compromising their safety. This situation is attributed to residential aged care policies, whereby nurses and nursing practice have been silenced and made invisible resulting in a substandard level of nursing care provision in this accredited facility that may be transferable to other facilities.

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Section: Unethical Discourses and Practicesmentioning

confidence: 99%

Section: Unethical Discourses and Practicesmentioning

confidence: 99%

Opinion Piece

Bellis

2010

Contemporary Nurse

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“…14 Although the FATCOD conceptualizes a single dimension (positive-negative attitudes), a Japanese validation study by Nakai et al 15 found evidence of 2 independent dimensions: positive attitude toward caring for the dying patient (FATCOD I) and perception of patient-and family-centered care (FATCOD II). 20 Also, medical students with personal experience of the death of a close relative or professional experience in caring for dying patients were more likely to have positive attitudes about physicians' responsibility and ability to care for dying patients and their families and were less likely to report negative emotional reactions to end-of-life care. 16,17 The FATCOD scale has been used in Sweden in the original English version among nurses and nursing students, 18,19 but to our knowledge, it has not previously been translated or validated for use in Sweden.…”

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confidence: 99%

The Swedish Version of the Frommelt Attitude Toward Care of the Dying Scale

et al. 2014

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“…In our narratives, it becomes clear that this confirmation goes both ways—patients and relatives also confirm the nurse. According to Irvin (2000) and Pavlish and Ceronsky (2009) among others, the relationship is characterized by an engagement that passes on to a more social mould where the parties are close to each other in a way that is not common in traditional nursing care, a relationship which is more familiar than professional to its character (Barnard, Hollingum, & Hartfield, 2006). Sandgren, Thulesius, Fridlund, and Petersson (2006) emphasize that it is necessary for the nurse to be personal in the relation with the severely ill or palliative patient, personal without being private.…”

Section: Discussionmentioning

confidence: 99%

When expressions make impressions—Nurses’ narratives about meeting severely ill patients in home nursing care: A phenomenological-hermeneutic approach to understanding

Devik

Enmarker

2013

International Journal of Qualitative Studies on Health and Well

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Registered nurses (RNs) working in homecare encounter severely ill and palliative patients whose expressions may cause ethical challenges and influence their daily work. The aim of this qualitative study was to illuminate and interpret the meaning of nurses’ lived experiences when meeting these patients. Narrative interviews were conducted with 10 RNs working in home nursing care. These interviews were audiotaped and transcribed verbatim to a text and interpreted by a phenomenological-hermeneutic method inspired by Ricoeur. The meaning of the RNs’ lived experience of patients’ expressions was formulated into four themes. The first theme, Being open for the presence of the Other, includes two subthemes: “Sensing vulnerability” and “Empathizing with.” The second theme, Being satisfied, entails the subthemes, “Feeling exceptional” and “Being trusted.” The third theme, Being frustrated, contains the subthemes, “Being disappointed” and “Being angry.” The fourth and final theme, Being ambivalent, includes one subtheme: “Being generous or reserved.” Patients’ expressions that make impressions on nurses create emotional waves. Expressions leave impressions that call upon the nurse, and confront her with taking the risk of letting intuition and pre-reflexive feelings gain entry to her care. Allowing for the Other's presence is seen as a precondition, which means facing humanity and sensing a vulnerability in herself as well as in the Other. Understanding and balancing this emotional dimension in care seems to cause confusion and distress within the nurses. Realizing how their feelings may lead to either generosity or aloofness towards the patient is upsetting. Our interpretation suggests that these impressions echo confusion according to the role of being a professional nurse. There is a need to pay more attention to how the emotional dimension in care is understood and impacts the way nurses perform their professional role.

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The Experiences of the Registered Nurse Caring for the Person Dying of Cancer in a Nursing Home

Cited by 31 publications

References 11 publications

Opinion Piece

Opinion Piece

The Swedish Version of the Frommelt Attitude Toward Care of the Dying Scale

When expressions make impressions—Nurses’ narratives about meeting severely ill patients in home nursing care: A phenomenological-hermeneutic approach to understanding

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