The experiences of people with dementia and their carers participating in individual cognitive stimulation therapy

Leung, Phuong; Yates, Lauren; Orgeta, Vasiliki; Hamidi, Fara; Orrell, Martin

doi:10.1002/gps.4648

Cited by 23 publications

(71 citation statements)

References 38 publications

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“…Seven studies employed purely qualitative design (Aguirre, Spector, Streater, Burnell & Orrell, 2011;Bertrand et al 2018;Dickinson, Gibson, Gotts, Stobbart & Robinson, 2017;Leung, Yates, Orgeta, Hamidi & Orrell, 2017;Spector, Gardner & Orrell, 2011;Streater, 2015;Yates et al 2015). Three studies used mixed methodology (Bailey, Kingston, Alford, Taylor & Tolhurst, 2017;Kelly et al 2017;Wong, Yek, Zhang, Lum & Spector, 2018).…”

Section: Quality Analysismentioning

confidence: 99%

“…However, additional necessary resources were highlighted, including people, time, and physical resources such as equipment and rooms needed to run sessions (Dickinson et al 2017;Kelly et al 2017). Appropriate communication skills, and support from others was also seen as very important both by professionals and family carers delivering the intervention (Streater et al, 2015;Leung et al 2017). Further, carers wondered if iCST would be best delivered by professionals or an "outsider" (Yates et al 2015).…”

Section: Facilitators and Barriersmentioning

confidence: 99%

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Cognitive stimulation therapy (CST) for dementia: a systematic review of qualitative research

Gibbor

Yates

Volkmer

et al. 2020

Aging & Mental Health

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Introduction: Cognitive Stimulation Therapy (CST) is a well-established intervention for people with dementia shown to improve cognition and quality of life. Past research includes development of a longer term 'maintenance CST' and an individual CST programme. Previous reviews of CST have focused on quantitative outcomes or excluded certain formats of CST. This review aimed to fill this gap by evaluating how the voices of facilitators, carers and people with dementia in qualitative studies of CST can contribute to our understanding of its implementation and how it is experienced. Methods. The current systematic review explored the experience and perspectives of people with dementia, facilitators and carers. Thematic Analysis (Braun and Clarke, 2012) was used to analyse this data, alongside Thomas and Harden's (2008) guidance on synthesising qualitative findings. Results.A systematic literature search retrieved 10 relevant studies using qualitative methodology. Eighteen themes were generated, which were grouped into three categories: 'Acceptability and feasibility', 'Features of CST' and 'Key outcomes'. Conclusions.To our knowledge, this is the only review to explore solely qualitative studies of CST. Findings provided insight into the shared features, outcomes and factors affecting implementation, and suggested theories for discrepancies between quantitative and qualitative findings in the literature. Some of the common themes were also in keeping with past reviews.

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Section: Quality Analysismentioning

confidence: 99%

Section: Facilitators and Barriersmentioning

confidence: 99%

Cognitive stimulation therapy (CST) for dementia: a systematic review of qualitative research

Gibbor

Yates

Volkmer

et al. 2020

Aging & Mental Health

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“…Fidelity of delivery and engagement are complex behaviours with many underlying mechanisms. For example, environmental, organisational and individual characteristics have been found to influence fidelity of, and engagement with dementia interventions and interventions in general [9][10][11][12][13][14][15][16][17][18]. To understand how an intervention is implemented, the Medical Research Council (MRC) guidance [8], together with previous research [15,19] propose that mixed methods evaluations of interventions are needed to provide a detailed understanding of intervention functions.…”

Section: Introductionmentioning

confidence: 99%

Developing strategies to improve fidelity of delivery of, and engagement with, a complex intervention to improve independence in dementia: a mixed methods study

Walton

Spector

Roberts

et al. 2020

BMC Med Res Methodol

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Background: It is important to evaluate fidelity of delivery and engagement during feasibility trials. However, there is little guidance on how to systematically develop strategies to improve implementation if problems arise. We aimed to: 1) Assess fidelity of delivery and engagement, 2) Identify factors influencing fidelity of delivery and engagement, and 3) Develop strategies to improve fidelity of delivery of, and engagement with, a complex intervention to improve independence in dementia, within a feasibility trial. Methods: A mixed methods evaluation of an intervention that aimed to improve independence in dementia. To assess fidelity of delivery and engagement, observation and self-report methods were used: 60% of audio-recorded intervention sessions were transcribed and reliably rated for fidelity. Providers (n = 12) and people with dementia/ supporters (n = 34) were asked to complete checklists after each session. Descriptive statistics were used to analyse the data. To identify factors influencing fidelity and engagement, one-to-one semi-structured interviews were conducted with providers (n = 8), people with dementia (n = 7) and supporters (n = 7). Thematic analysis and content analysis were used to analyse data. To develop strategies, we followed four steps proposed by the authors of the Behaviour Change Wheel (1. Understanding the behaviour, 2. Identifying intervention functions, 3. Specifying intervention content, 4. Identifying mode of delivery).

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“…A recent randomized, controlled trial of iCST showed that iCST did not result in improved cognition or quality of life for the person living with dementia, however, participating in iCST did enhance the quality of the caregiving relationship and caregivers’ quality of life. 23 , 24 These findings are relevant here, as companions of people with PRD are reported to experience burden and a lower quality of life due to the responsibility of supporting the complex physical and cognitive needs of people with PRD. 25 We are aware of only one exploratory study 26 that has assessed the effectiveness of home-based CST in people with PRD using neuropsychological assessment and molecular analysis.…”

Section: Stage 1 – Summarize and Review (Existing Research)mentioning

confidence: 86%

Psychosocial therapy for Parkinson's-related dementia: intervention development

Vatter¹,

McDonald²,

Orgeta

et al. 2017

CIA

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BackgroundGroup-based psychosocial therapy, such as group Cognitive Stimulation Therapy, improves cognition and quality of life in people living with dementia. Neuropsychiatric symptoms and restricted mobility are common complications for people with Parkinson’s-related dementia (PRD) and may limit access to, and participation in, group activities. This study describes the development of a condition-specific, home-based psychosocial therapy for people with PRD ready to be trialled in a clinical population.MethodsBy means of a multistage process, a draft therapy manual was developed in an iterative manner through collaboration with medical experts, researchers and Patient and Public Involvement (PPI) representatives. In stage 1, an extensive literature search of psychosocial therapies for dementia with potential relevance for Parkinson’s disease (PD) was undertaken to select a candidate therapy for adaptation. In stage 2, qualitative feedback from stakeholders and intelligence regarding existing nonpharmacological therapies for cognitive impairment in PD was combined to produce a prototype therapy manual. In stage 3, the manual was field tested in: 1) a home-setting using a 25-item assessment tool; and 2) at a local PD support group with PPI representatives. Based on the feedback from this phase, final design modifications were implemented and a draft therapy manual produced.ResultsThe manual was developed in an iterative manner. Interview and focus group transcripts identified three enduring themes: manual form and content, therapy acceptability by people with PRD, and companion guidance and support. Major adaptations included: removal of discrete levels of task complexity, removal of images that were potentially hallucinogenic or lacked clarity, and updating of the content.ConclusionWe have successfully developed a Cognitive Stimulation Therapy-based psychosocial therapy specifically adapted for people with PRD. The therapy is ready to trial in a pilot randomized controlled study.

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The experiences of people with dementia and their carers participating in individual cognitive stimulation therapy

Cited by 23 publications

References 38 publications

Cognitive stimulation therapy (CST) for dementia: a systematic review of qualitative research

Cognitive stimulation therapy (CST) for dementia: a systematic review of qualitative research

Developing strategies to improve fidelity of delivery of, and engagement with, a complex intervention to improve independence in dementia: a mixed methods study

Psychosocial therapy for Parkinson's-related dementia: intervention development

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The experiences of people with dementia and their carers participating in individual cognitive stimulation therapy

Cited by 23 publications

References 38 publications

Cognitive stimulation therapy (CST) for dementia: a systematic review of qualitative research

Cognitive stimulation therapy (CST) for dementia: a systematic review of qualitative research

Developing strategies to improve fidelity of delivery of, and engagement with, a complex intervention to improve independence in dementia: a mixed methods study

Psychosocial therapy for Parkinson&#39;s-related dementia: intervention development

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Product

Resources

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Psychosocial therapy for Parkinson's-related dementia: intervention development