The Experiences and Quality of Life of Informal Caregivers

Herrman, Helen; Schofield, Hilary; Murphy, Beth S.; Singh, Bruce

doi:10.1007/978-3-642-79123-9_10

Cited by 5 publications

(6 citation statements)

References 45 publications

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“…On the one hand, the findings reveal that both family income and severity of disability are significant predictors of mothers' satisfaction with their FQOL, which supports our assumption. The results are consistent with those of Scorgie, Wilgosh, and McDonald (1998);Vickers (1994); and Willoughby and Glidden (1995) regarding income and with those of Herman, Schofield, Murphy, and Singh (1994) and Smith, Innocenti, Boyce, and Smith (1993) regarding severity of disability. Thus, this study con- firmed the negative association between severity of disability and mothers' satisfaction with FQOL and the positive association between family income and mothers' satisfaction with FQOL.…”

Section: Family Income and Severity Of Child's Disability As Significsupporting

confidence: 93%

Severity of Disability and Income as Predictors of Parents' Satisfaction with Their Family Quality of Life during Early Childhood Years

Wang

Turnbull

Summers

et al. 2004

Research and Practice for Persons with Severe Disabilities

104

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The field of early intervention has recognized a growing need to study contributing factors of family outcomes such as family quality of life (FQOL). This study of 130 fathers and 234 mothers of families in early childhood programs explores the associations between family income and severity of disability, and fathers' and mothers' satisfaction with their FQOL. The results reveal that severity of disability is a significant predictor of fathers' and mothers' satisfaction ratings of FQOL; that family income is a significant predictor of mothers' satisfaction ratings of their FQOL, but not of fathers; and that there is no interaction effect of family income and severity of disability with respect to fathers' and mothers' satisfaction ratings of FQOL. DESCRIPTORS: parents' satisfaction, family quality of life, income, predictors, early childhood Measuring FQOL Based on a national survey exploring valued outcomes of service coordination, early intervention, and natural environments, Dunst and Bruder (2002) reported that family satisfaction and improved FQOL were the most valued outcomes as determined by practitioners, administrators, and parents. However, Bailey et al. (1998) noted that efforts to measure FQOL present a "formidable challenge" (p. 323) to the field, given that FQOL studies are still in their infancy. Especially in echoing the concerns of Heal and Sigelman (1990), Bailey et al. (1998) pointed out, "Variables that could threaten validity or reliability of quality of life measures include how the data are collected, how questions are phrased, characteristics of the interviewer, and characteristics of the respondents" (p. 323).

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Section: Family Income and Severity Of Child's Disability As Significsupporting

confidence: 93%

Severity of Disability and Income as Predictors of Parents' Satisfaction with Their Family Quality of Life during Early Childhood Years

Wang

Turnbull

Summers

et al. 2004

Research and Practice for Persons with Severe Disabilities

104

View full text Add to dashboard Cite

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“…Other data relating to carer well-being and demographic characteristics were collected during the telephone survey. Measures of well-being (care overload, negative aect, perceived social support and life satisfaction (combined to create an index of emotional well-being), self-rated health and major health problems are described elsewhere (Herrman et al, 1994).…”

Section: Methodsmentioning

confidence: 99%

Home-Based Assessment for Family Carers: A Preventative Strategy to Identify and Meet Service Needs

Nankervis

Schofield

Herrman

et al. 1997

Int. J. Geriat. Psychiatry

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Objective. To identify unmet need for services among family carers and their frail or disabled relatives and to facilitate links to services. Design. Intervention study with a subgroup of carer dyads from a random statewide survey of family carers, followed by telephone 2 months post intervention. Setting. Carer dyads in general community; urban and rural Victoria. Participants. All 186 identified carers were approached. One‐third of the dyads were ineligible; of the remainder, 67 (53%) participated, matching refusals on sociodemographic characteristics. Carers were typically married, middle‐aged women looking after parents or spouses. Almost half of the care recipients were aged ≥80; most had multiple disorders and impairments. Follow‐up rate was 94%. Intervention. One off, multidisciplinary home‐based assessment of dyad by research team and regional aged care assessment service (ACAT). Main outcome measures. ‘Unmet need’: % dyads recommended new services; number services per dyad via ACAT; increases in service range; extension of pre‐existing services. Service linkage: % dyads linked to new services; perceived usefulness of linkages. Main results. Dyads recommended a new service (93%); increased range (73%); extensions (41%). Average two services requiring ACAT implementation; commonly respite care, aids and paramedical services. Recommendations related to impairment severity and carer stress. ACAT implemented recommendations (90% relevant dyads); links rated useful (75% relevant dyads). Three‐quarters of the carers rated intervention as helpful. Conclusion. A preventative programme of needs assessment for carer dyads has considerable potential; (a) identifying needs and engaging new services; (b) providing emotional support. © 1997 John Wiley & Sons, Ltd.

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“…Depression, poor health, or feelings of suband serious mental illness, and more recently, those with cancer and other chronic medical illness [2][3][4][5][6][7][8]. However, stantial burden are just some of the more common reactions to caregiving [15]. Some families show little or no issues identified by caregivers of these groups have some generalizability to other caregiving populations, such as negative impact and may even report benefits from caregiving.…”

mentioning

confidence: 99%

The Impact of Pituitary Disease on the Family Caregiver and Overall Family Functioning

Weitzner

Knutzen²

1998

Psychother Psychosom

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Chronic medical illness not only affects the patient but the entire family. The family system undergoes a tremendous change in focus during the acute illness, with members marshaling their resources to help the ill member. This inward focus is costly, producing profound stress. Often, family communication styles change to protect the family system and prior functioning. When the stress of caring for an ill member becomes chronic, as is seen in pituitary disease, the initially adaptive changes in family functioning may become problematic even in those families with previously healthy coping. Those families with previously less healthy functioning become even more dysfunctional. Each family identifies a caregiver for their ill member. This caregiver also experiences significant stress related to caregiving demands. Caregiver adaptation to the stress depends on how the stress is perceived, as well as the caregiver’s coping patterns and availability of and satisfaction with social support. These elements comprise a stress process model of caregiving, which has been well-validated in dementia caregiving research. Although the majority of research has focused on dementia and cancer caregiving, identified issues have applicability to caregiving and family issues related to pituitary disease. This report will review: (1) the field of caregiving research, focusing on a stress process model; (2) those issues identified in prior caregiving research which have applicability in caregiving for patients with pituitary disease; (3) stresses on the family system; (4) assessment of family functioning, and (5) interventions for caregivers and areas for future research.

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The Experiences and Quality of Life of Informal Caregivers

Cited by 5 publications

References 45 publications

Severity of Disability and Income as Predictors of Parents' Satisfaction with Their Family Quality of Life during Early Childhood Years

Severity of Disability and Income as Predictors of Parents' Satisfaction with Their Family Quality of Life during Early Childhood Years

Home-Based Assessment for Family Carers: A Preventative Strategy to Identify and Meet Service Needs

The Impact of Pituitary Disease on the Family Caregiver and Overall Family Functioning

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