The experience of health‐related quality of life in extended and permanent cancer survivors: A qualitative systematic review

Neris, Rhyquelle Rhibna; Nascimento, Lucila Castanheira; Leite, Ana Carolina Andrade Biaggi; Alvarenga, Willyane de Andrade; Polita, Naiara Barros; Zago, Márcia María Fontão

doi:10.1002/pon.5472

Cited by 9 publications

(5 citation statements)

References 60 publications

(437 reference statements)

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“…Very often, families become patients’ main sources of support ( Yağmur and Duman, 2016 ), reducing stress and increasing patients’ emotional wellbeing ( Spatuzzi et al, 2016 ). This source of support provides both emotional and physical benefits for patients, which have a positive impact on patients’ quality of life ( Neris et al, 2020 ). Cancer survivors often report the importance of emotional support from their partners for coping with the overall disease process, from the initial diagnosis to the treatment administered and the subsequent consequences ( Pfaendler et al, 2015 ).…”

Section: Discussionmentioning

confidence: 99%

“…Which source provides which type of support is key for patients to perceive such support as positive ( Thoits, 1982 ). Patients tend to perceive friends and family—including their partners—as main sources of support ( Doran et al, 2019 ; Ginter and Braun, 2019 ; Neris et al, 2020 ), and they consider support from these sources as essential to cope with the diagnosis and treatment ( Pfaendler et al, 2015 ). This means that patients perceive support from these sources as essential for their life ( Zhang et al, 2020 ).…”

Section: Introductionmentioning

confidence: 99%

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The Importance of Social Support, Optimism and Resilience on the Quality of Life of Cancer Patients

et al. 2022

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IntroductionThe aim of the present study is to carry out a multidimensional analysis on the relation between satisfaction with social support received, resilience and optimism in cancer patients and their quality of life.Materials and MethodsData were gathered through questionnaires fulfilled by 142 cancer patients. Data relate to sociodemographic, health, quality of life, social support, resilience and optimism.ResultsSatisfaction with the sources and types of support, resilience and optimism relates positively with quality of life. Predictive models show that informational support from friends is the variable that most increases patients’ general health, while emotional support from the partner is the one that best improves how patients cope with the disease. In the same line, emotional support from the partner, together with informational support from family are the ones that most contribute to reduce patients’ symptoms. Resilience improves general health and functioning, and reduces symptoms. Patients’ optimism and resilience also reduce symptoms. Gender differences were found, with females showing lower quality of life than males, mainly in how they cope with cancer. Patients in the stage of treatment showed lower quality of life and higher symptoms. Such increase was observed in patients who received hormonotherapy or chemotherapy.DiscussionImportant practical implications can be drawn from results, which could help improve cancer patients’ quality of life through intervention strategies aimed at increasing their resilience, optimism and the social support provided by their closer sources.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

The Importance of Social Support, Optimism and Resilience on the Quality of Life of Cancer Patients

et al. 2022

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“…In the context of childhood CI and cancer survival in adults and older people, two meta-syntheses showed similar results, in which study participants expected to experience normal life prior to diagnosis (Leite et al, 2019;Neris, et al, 2020). When they were not able to live an ordinary life, older people used hope as a driving force to achieve new goals.…”

Section: Discussionmentioning

confidence: 90%

“…Data extraction was performed according to a form developed by the authors, based on previously published reviews (Duggleby et al., 2012; Leite et al., 2019; Neris, et al., 2020). The results were analysed according to the thematic synthesis (Thomas & Harden, 2008), which comprised three stages.…”

Section: Methodsmentioning

confidence: 99%

Experience of hope in older people with chronic illness: A meta‐synthesis

Pinto,

Leite,

Neris

et al. 2023

Int J Older People Nursing

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BackgroundThe increase in life expectancy has contributed to an increase in the number of older people, but this population has to learn to live with at least one chronic illness. Thus, hope has become an important resource for the older adult to face the repercussions of chronic illness.ObjectiveTo synthesise qualitative evidence on the experience of hope in older people with chronic illness.MethodsThis meta‐synthesis included qualitative studies which present the experiences of hope in older people diagnosed with at least one chronic illness. The searches were made from six databases, guided by the SPIDER tool. The identified articles were then independently screened by two reviewers. The results were analysed according to the thematic synthesis approach.ResultsEighteen articles were included, and four analytical themes were constructed. The results allow us to understand that older people live with long‐term conditions and hope for an ordinary life. To react to new changes and to maintain hope, they create goals that motivate them in daily life. The treatment is initially seen as a salvation, but the information acquired with the evolution of the illness modifies this perception. In addition, the uncertainty about the success of the treatment creates conflict in their hope. In the support and care of older people in the new context of illness, meaningful relationships strengthen hope most of the time. There is still the hope of being reconciled with death, but there are times when suffering overcomes the hope of living.ConclusionsThis meta‐synthesis highlights that the experience of hope in older people is dynamic and influenced by the context of changes related to illness, treatment, significant relationships and proximity to death.Implications for PracticeA better understanding of the role and characteristics of hope in older people with chronic illness may help to develop more effective interventions to promote and maintain hope.

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“…3 Previous research has mainly investigated QoL in cancer survivors, patients with cancer, and their caregivers. 4 Lower short-term QoL has been found in bereaved family members of patients with cancer compared with controls. 5 6 However, there has been little research investigating QoL among cancer-bereaved parents in a long-term perspective compared with control parents.…”

Section: Introductionmentioning

confidence: 99%

Bereaved parents’ quality of life: resilience and professional support

Rasouli

Vegsund

Wallin

et al. 2021

BMJ Support Palliat Care

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ObjectivesThe study aimed to compare the quality of life (QoL) among cancer-bereaved parents with a control group and explore how resilience and support from healthcare professionals associated with QoL of parents 2–8 years after the loss of a child to cancer.MethodsThis nationwide, cross-sectional survey was administered among parents (n=161) who lost their child to cancer between 2009 and 2014, compared with a matched control parent group (n=77). A study-specific questionnaire, Resilience Scale for Adults (six factors: ‘Perception of self’, ‘Planned future’, ‘Social competence’, ‘Structured style’, ‘Family cohesion’ and ‘Social resources’), and a single-item measure of parents’ QoL were included for the study.ResultsThere was a lower QoL in both bereaved parents (mean=5.1) compared with the control parents (mean=5.8) (p<0.001). Two resilience factors, ‘Perception of self’ (OR=1.8, p=0.004) and ‘Planned future’ (OR=2.05, p<0.001), and given sufficient information during the child’s last month (OR=2.63, p=0.003) were positively associated with long-term QoL in cancer-bereaved parents.ConclusionThe findings indicate lower QoL among both fathers and mothers 2–8 years after losing a child to cancer. The study also highlights the positive role of resilience and the importance of informational support on long-term QoL in cancer-bereaved parents. Bereavement support should be tailored for supporting individual needs.

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The experience of health‐related quality of life in extended and permanent cancer survivors: A qualitative systematic review

Cited by 9 publications

References 60 publications

The Importance of Social Support, Optimism and Resilience on the Quality of Life of Cancer Patients

The Importance of Social Support, Optimism and Resilience on the Quality of Life of Cancer Patients

Experience of hope in older people with chronic illness: A meta‐synthesis

Bereaved parents’ quality of life: resilience and professional support

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