The experience of being a parent with an acquired brain injury (ABI) as an inpatient at a neuro-rehabilitation centre, 0–2 years post-injury

Abstract

The results indicated that the participants experienced an oscillation between experiencing the multiple losses of their parental role and attempting to adapt and adjust to these changes. These findings are discussed in relation to clinical and theoretical implications for parents who are inpatients with an ABI up to 2 years post-injury.

A qualitative exploration of fatherhood after acquired brain injury (ABI)

“…The examples fathers gave highlighted where they felt they had failed themselves and others through their inaction or inability, their rumination, and managing emotions like guilt and shame. This supports the findings of embarrassment and shame reported in MacQueen et al (2020) study, although less reported in previous research around masculine identity (Freeman et al, 2015) or parenting after brain injury (Edwards et al, 2014;Morriss et al, 2013). Additionally, the fathers reported feelings of loss and isolation about their fathering role and spread across other roles and areas of their lives.…”

“…The findings here demonstrate a constant interplay between pre-and postinjury comparisons of self and social identities as seen in the study by Muenchberger et al (2008). The theme of hope and aspiration noted in the study of Edwards et al (2014) and the theme of re-evaluating life and values in MacQueen et al's (2020) study is also supported through this study. Nochi (1998) noted that individuals at a most fundamental level must change the appearance of the past and future, revising self-narratives in recovering self-identity after TBI.…”

“…This mirrors what Simpson et al (2000) reported, that individuals reported experiences of social isolation and stigma after ABI. The fathers here shared experiences like the oscillatory movements in adapting and adjusting to their parent role described by Edwards et al (2014).…”

“…Inhibition and impairments of selfmonitoring, noise intolerance, impulsivity and other cognitive deficits may also affect parenting (Smith & Godfrey, 1995). Edwards et al (2014) researched parenting across genders after ABI and found themes of; multiple losses, resignation and uncertainty, family support and hopes for parents after ABI.…”

Daily management of attention dysfunction two–four years after brain injury and early cognitive rehabilitation with attention process training: a qualitative study

“…In our study, as in those of Schacter and Prigatano (1991) and Bandura and Locke (2003), insight is described as a continuum whereby individuals may show awareness in some areas but not in others. Gaining insight is an active, oscillatory process and specific to a situation and time, as reported in other studies (Edwards, Daisley, & Newby, 2014).…”