The experience and perspective of people with spinal cord injury about well-being interventions: a systematic review of qualitative studies

Abstract

Well-being determinants described in Hammell [50]Key elements of each well-being determinant, as identified in Hammel [50] and later qualitative research [22,[51][52][53][54][55][56][57][58][59]

Exploring well-being services from the perspective of people with SCI: A scoping review of qualitative research

“…People with SCI also reported improvements in relationships and a sense of belonging, as services enabled them to participate more in the community, provided new social contacts, and facilitated a sense of belonging. Perceived outcomes of a sub-set of the included studies are explored in more detail in a separate publication (Simpson et al, 2020 ).…”

“…The complex phenomenon of well-being appears to be influenced by a range of factors after SCI. Qualitative research has identified determinants that people with SCI perceive affecting their well-being (Bergmark et al, 2008 ; Clifton et al, 2018 ; Duggan et al, 2016 ; Geard et al, 2018 ; Hammell, 2007 ; Simpson et al, 2020 ). They report that their well-being is enhanced by the ability to engage in occupations, enjoy meaningful relationships, employ their strengths and values and take control of their daily life.…”

“…They also report that body problems, a sense of loss and environmental barriers negatively impact their well-being. Making changes to these determinants of well-being is within the scope of rehabilitation and disability services (Simpson et al, 2020 ), and improving well-being should be a focus of service design and evaluation for people with SCI.…”

“…Well-being is defined poorly (if at all) in disability and rehabilitation research (Dijkers, 2005 ; Hill et al, 2010 ; Post, 2014 ; Simpson et al, 2020 ). A range of terms are used somewhat interchangeably with well-being in this body of literature (Svensson & Hallberg, 2011 ), including quality of life (Hill et al, 2010 ; Post, 2014 ; Tate et al, 2002 ), subjective well-being (Fuhrer, 2000 ), flourishing (Clifton et al, 2018 ), wellness (Carroll et al, 2020 ; Hall et al, 2021 ) and life satisfaction (Dunnum, 1990 ).…”

“…Because well-being is a broad phenomenon influenced by a range of factors, it is possible that most services for people with SCI can influence well-being in some way. However, a more explicit focus on well-being may maximize the impact of these services, particularly when accompanied by efforts to measure their effectiveness (Hammell, 2006 , 2017 ; Pizzi & Richards, 2017 ; Simpson et al, 2020 ). Intentionally designing services to address well-being requires an in-depth understanding of this phenomenon.…”