The Evolution of Hospice in America Toward Organizational Homogeneity

Paradis, Lenora Finn; Cummings, Scott

doi:10.2307/2136951

Cited by 44 publications

(19 citation statements)

References 24 publications

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“…Prior to the Medicare Hospice Benefit, "hospice" in the U.S. was a grassroots movement that lacked a uniform structure outside of its general meaning of "care for the dying" (Paradis and Cummings 1986). The very meaning of "hospice" varied from state to state, even hospice to hospice, as did the kinds of care that would be included under the "hospice" label.…”

Section: The Limits Of a Social Benefits Approachmentioning

confidence: 99%

“…This decentralized structure was itself a product of the lack of any standardized reimbursement mechanism for hospice services. Different hospices had to work within different reimbursement mechanisms, and these mechanisms influenced their own local conception of hospice care (Hoyer 1998;Paradis and Cummings 1986). It is thus debatable whether there was a uniform U.S. definition of hospice prior to the MHB's passage in 1982.…”

Section: The Limits Of a Social Benefits Approachmentioning

confidence: 99%

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From Disability Rights to the Rights of the Dying (and Back Again)

Braswell

2017

Laws

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This article argues for civil rights for dying people. The creation of such rights should be understood as complementary to, but distinct from, existing initiatives to provide dying people with social benefits. A basis for rights for terminally ill people can be found in the disability rights movement. Through an ethnographic case study of two dying individuals, I argue that terminally ill people can be subjected to disability discrimination as it is understood within the dominant theoretical framework of disability rights: the social model of disability. Nevertheless, while disability rights provides a theoretical basis for understanding discrimination against people who are dying, existing U.S. disability rights legislation largely does not recognize, nor address this discrimination. For this reason, it is necessary to develop a separate set of rights of the dying. I conclude by arguing that such "dying rights" are a logical extension of disability rights, and will bring ancillary benefits to both disabled people and the disability rights movement itself. There is thus a strong foundation for a legal and political alliance between disability rights advocates and advocates for people who are dying.

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Section: The Limits Of a Social Benefits Approachmentioning

confidence: 99%

Section: The Limits Of a Social Benefits Approachmentioning

confidence: 99%

From Disability Rights to the Rights of the Dying (and Back Again)

Braswell

2017

Laws

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“…Dans le cas du mouvement palliatif, il s'agit d'une part de dépasser les querelles de professionnels et les conflits de juridiction entre les organismes de santé (Finn-Paradis et Cummings, 1986), et d'autre part de rester disponible pour entendre ses « effets pervers », quels qu'ils soient. D'un côté, l'interrogation de la 87 haute technologie « dure », automatiquement appliquée à tous les malades, la démonstration qu'une sorte de compagnonnage par les proches est possible et une attention accrue de la part des étu-diants en sciences de la santé quant aux phénomènes entourant l'avant-mort : l'urgence de prendre soin des mourants peut ainsi voir se développer une nouvelle sensibilité à l'ensemble du processus de soins.…”

Section: De La Bonne à La Belle Mortunclassified

La belle, la (dé-)possédée, la digne, l’inouïe

Aulniers

2015

riac

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Quelques formes contemporaines de pratiques avant la mort sont analysées à la faveur d’un aperçu de l’histoire de la modélisation de la mort : quels rapports sociaux orientent les rapports vie-mort ? Comment ces derniers déterminent-ils les pratiques et les représentations successives et sédimentées d’une « bonne » mort et sont-ils illustrés par elles ? Quels acteurs jouent le rôle de définisseurs de cette bonne mort ? Quels sont la portée et les enjeux du mouvement d’intérêt à l’endroit du mourir, de la création d’unités de soins palliatifs, du testament de vie ? Comment agissent actuellement les premiers concernés ? De la bonne à la belle, puis de la dépossédée à la discourue, la « préparation » à la mort prend des formes qui se déplacent de l’événement de la mort comme telle à la présence de la maladie, voire au parcours de toute une vie. Le rite alors mis en place signale un nouveau rapport au temps, aux réseaux sociaux et à l’institution bio-médico-hospitalière, tout en s’axant sur de grands universaux.

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“…Accordingly, the focus of care is shifted from curative treatment, intended to halt or reverse natural disease progression with the goal of prolonging life, to palliative services, which are meant simply to provide pain management, emotional counseling, and social support in the final days before death (Finn Paradis & Cummings, 1986). Although initially slow to draw mainstream support, the growth of hospice services has been aided by a series of public 'and private initiatives designed both to encourage the development and determine the effects of hospice care (Abel, 1986).…”

Section: Background-mentioning

confidence: 99%

“…Five years later, attracted by the potential fiscal advantages and psychosocial benefits of hospice care, the Health Care Financing Administration (HCFA) made grants available to study the medical, emotional, and social problems associated with terminal illness and the cost of providing care to dying patients (Finn Paradis & Cummings, 1986). As part of this initiative, the National Hospice Study was commissioned in 1980, with joint funding from HCFA, the Robert Wood Johnson Foundation, and the John A. Hartford Foundation, to evaluate the feasibility of introducing hospice as an option for Medicare reimbursement of terminal care (Greer, 1985;Mor, Creer & Kastenbaum, 1988;Mor & Masterson-Allen, 1987).…”

Section: Background-mentioning

confidence: 99%

Hospice in Nursing Homes: A Facility-Level Analysis of the Distribution of Hospice Beneficiaries

Petrisek

Mor

1999

The Gerontologist

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Since 1989, the Medicare hospice benefit has been available to terminally ill individuals residing in nursing homes. We first describe the evolution and nature of hospice care for nursing home residents. We then utilize recent On-line Survey and Certification of Automated Records data on a national sample of Medicare/Medicaid certified nursing homes, merged with hospice Provider of Service and Area Resource File information, to examine the distribution of hospice beneficiaries in nursing homes. Bivariate analyses provide descriptive comparisons of homes with 0%, 0.1-4.9%, and 5%+ residents on the hospice benefit. Multinomial logistic regression reveals the influence of organizational, market, and environmental factors on the proportion of beneficiaries in nursing homes. Results indicate that significant numbers of homes have hospice patients and that these institutions may have strong incentives to convert residents to the Medicare hospice benefit.

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The Evolution of Hospice in America Toward Organizational Homogeneity

Cited by 44 publications

References 24 publications

From Disability Rights to the Rights of the Dying (and Back Again)

From Disability Rights to the Rights of the Dying (and Back Again)

La belle, la (dé-)possédée, la digne, l’inouïe

Hospice in Nursing Homes: A Facility-Level Analysis of the Distribution of Hospice Beneficiaries

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