2001
DOI: 10.1046/j.1365-2702.2001.00539.x
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'The everlasting trial of strength and patience': transitions in home care nursing as narrated by patients and family members

Abstract: The aim of this study was to describe and interpret patients' and their family members' lived experiences of caring at home. Twelve tape-recorded narratives, with seven patients and five family members, were interpreted in accordance with a phenomenological-hermeneutic method inspired by Ricoeur. The findings revealed life situations where natural caring was changed into patient-care-giver relations and the home became a public room. The patients had to deal with decreased abilities and the family members with… Show more

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Cited by 30 publications
(43 citation statements)
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“…As already mentioned in the introduction, when nursing researchers have been researching and analysing phenomena, lived experiences and human nature, they have been inspired by Ricoeur's theory of interpretation, but in quite different ways. When researching lived experiences, nursing researchers have used narratives in many parts of the research process: in data collection (Pedersen 1999; Efraimsson, Hoglund and Sandman 2001 among others), in the interpretation (Pedersen 1999; Rasmussen, Jansson and Norberg 2000; Lindahl, Sandman and Rasmussen 2003; Lindseth and Norberg 2004; Delmar et al. 2006 among others), and as a way of presenting data (Wiklund, Lindholm and Lindstrom 2002 among others).…”
Section: Discussionmentioning
confidence: 99%
“…As already mentioned in the introduction, when nursing researchers have been researching and analysing phenomena, lived experiences and human nature, they have been inspired by Ricoeur's theory of interpretation, but in quite different ways. When researching lived experiences, nursing researchers have used narratives in many parts of the research process: in data collection (Pedersen 1999; Efraimsson, Hoglund and Sandman 2001 among others), in the interpretation (Pedersen 1999; Rasmussen, Jansson and Norberg 2000; Lindahl, Sandman and Rasmussen 2003; Lindseth and Norberg 2004; Delmar et al. 2006 among others), and as a way of presenting data (Wiklund, Lindholm and Lindstrom 2002 among others).…”
Section: Discussionmentioning
confidence: 99%
“…, 2002). When older people become dependent on such care, they face many new situations; their private home becomes a public room and they must accept encounters with unknown individuals (Efraimsson et al. , 2001).…”
Section: Introductionmentioning
confidence: 99%
“…According to Strandberg and Jansson (2003), being dependent on care means a miserable loss of self‐determination and self‐esteem, and being exposed to caregivers’ decisions and power. Studies have shown that older people receiving care in their homes were not involved in planning and decisions concerning their own care (Efraimsson et al. , 2001; Millard et al.…”
Section: Introductionmentioning
confidence: 99%
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“…Faith in care and treatment is one factor that gives rise to feelings of security among women with chronic heart failure (Burström, Brännström, Boman, & Strandberg, 2011). Patients feel secure when formal caregivers are punctual and skilled, but on the other hand insecure when they received less help than needed (Efraimsson, Höglund, & Sandman, 2001). In our study, the oldest old women felt secure because of received care when necessary and being able to call as needed.…”
Section: Discussionmentioning
confidence: 99%