The European organization for research and treatment of cancer — satisfaction with cancer care questionnaire: revision and extended application development

Abstract

Patient satisfaction is now recognized as an important indicator of care quality. It is also related to treatment adherence [1] and clinical outcomes [2], and facilitates monitoring initiatives for care improvement over time [3].With medical advances in oncology, new modalities of cancer care delivery have been implemented. For example, personalized and targeted therapies are increasingly being administered for extended periods of time in the outpatient setting. In addition to information about potential side effects, these treatments often require communication about more sophisticated (genetic, biological or clinical) information for shared decision-making, and to optimize tailored care. For patients with cancer, these medical innovations elicit novel experiences and raise new issues that need to be addressed adequately in order to meet care needs and expectations [4].Satisfaction with care generally implies judgments (ratings) on a number of care aspects pertaining to domains such as interpersonal manner, technical quality, accessibility/convenience, cost, continuity, physical environment and availability of care. With the recent developments in cancer care, ensuring care continuity and transition, accessibility and involvement of family/friends may be particularly relevant.

Measuring patient centeredness with German language Patient-Reported Experience Measures (PREM)–A systematic review and qualitative analysis according to COSMIN

“…There are two projects that should be mentioned in this context. First, the EORTC is currently developing and testing the PATSAT-33, a cancer-care specific PREM that will not only cover in-hospital patients, but also aspects of PC in out-patient settings as well as the transitional period [ 47 ]. A phase IV validation study in several European countries is underway including German-speaking countries.…”

Measuring patient centeredness with German language Patient-Reported Experience Measures (PREM) – a systematic review and qualitative analysis according to COSMIN

“…More research is needed in this field. There are two projects that should be mentioned in this context. First, the EORTC is currently developing and testing the PATSAT-33, a cancer-care specific PREM that will not only cover in-hospital patients, but also aspects of PC in out-patient settings as well as the transitional period [47]. A phase IV validation study in several European countries is underway including German-speaking countries.…”

Phase III study of the European Organisation for Research and Treatment of Cancer satisfaction with cancer care core questionnaire (EORTC PATSAT-C33) and specific complementary outpatient module (EORTC OUT-PATSAT7)

“…This study therefore involved a large panel of cancer centres from different geographical regions (Northern, Eastern, Southern Europe and Anglo‐Saxon Countries ‐ as well as Asia and South America). The earlier phases of developing these measures also included patients, professionals and a group of experts from a variety of geographical areas (Brédart et al., ). Special attention was given to the wording of items to ensure that the same concepts were understood similarly in different countries (Kuliś et al., ).…”

“…We have previously reported on the initial steps (EORTC questionnaire developmental phases I and II (Johnson et al., )) taken to generate a preliminary satisfaction with cancer care core questionnaire suitable for both the in‐ and outpatient care settings and a complementary cancer outpatient satisfaction with care module addressing aspects specifically important to the outpatient setting only (Brédart et al., ).…”