The ethics of responsibility and ownership in decision-making about treatment for breast cancer: Triangulation of consultation with patient and surgeon perspectives

Mendick, Nicola; Young, Bridget; Holcombe, Christopher; Salmon, Peter

doi:10.1016/j.socscimed.2009.12.039

Cited by 74 publications

(95 citation statements)

References 38 publications

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“…These findings sit comfortably with research from other clinical contexts in suggesting that interactivity is not synonymous with involvement, and that it is the opportunity, not the obligation, to be involved that is important, [144][145][146][147] alongside the sense of being free to accept or decline the practitioner's invitation. 134 Our findings also echo the experience of adult diabetic patients who described associating a sense of 'involvement' with the 'friendly and welcoming' 'feel' of consultations and the 'interested and respectful' manner of practitioners. 148 However, previous research on communication about trials has suggested that face-to-face trial discussions have an important role in improving participants' understanding, 149 and that efforts by practitioners to facilitate patient interactivity may be important in helping patients to understand trials.…”

Section: Comparison With Existing Evidence: What Does This Study Add?supporting

confidence: 81%

See 1 more Smart Citation

Processes in recruitment to randomised controlled trials of medicines for children (RECRUIT): a qualitative study

Shilling

Williamson²,

Hickey³

et al. 2011

Health Technol Assess

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How to obtain copies of this and other HTA programme reports An electronic version of this title, in Adobe Acrobat format, is available for downloading free of charge for personal use from the HTA website (www.hta.ac.uk). A fully searchable DVD is also available (see below).Printed copies of HTA journal series issues cost £20 each (post and packing free in the UK) to both public and private sector purchasers from our despatch agents.Non-UK purchasers will have to pay a small fee for post and packing. For European countries the cost is £2 per issue and for the rest of the world £3 per issue. How to order:-fax (with credit card details) -post (with credit card details or cheque) -phone during office hours (credit card only).Additionally the HTA website allows you to either print out your order or download a blank order form. Contact details are as follows:Synergie UK (HTA Department) Digital House, The Loddon Centre Wade Road Basingstoke Hants RG24 8QW Email: orders@hta.ac.uk Tel: 0845 812 4000 -ask for 'HTA Payment Services' (out-of-hours answer-phone service) Fax: 0845 812 4001 -put 'HTA Order' on the fax header Payment methods Paying by chequeIf you pay by cheque, the cheque must be in pounds sterling, made payable to University of Southampton and drawn on a bank with a UK address.Paying by credit card You can order using your credit card by phone, fax or post. SubscriptionsNHS libraries can subscribe free of charge. Public libraries can subscribe at a reduced cost of £100 for each volume (normally comprising 40-50 titles). The commercial subscription rate is £400 per volume (addresses within the UK) and £600 per volume (addresses outside the UK). Please see our website for details. Subscriptions can be purchased only for the current or forthcoming volume.How do I get a copy of HTA on DVD?Please use the form on the HTA website (www.hta.ac.uk/htacd/index.shtml). HTA on DVD is currently free of charge worldwide.The website also provides information about the HTA programme and lists the membership of the various committees. HTAProcesses in recruitment to randomised controlled trials of medicines for children (RECRUIT): a qualitative study NIHR Health Technology Assessment programmeThe Health Technology Assessment (HTA) programme, part of the National Institute for Health Research (NIHR), was set up in 1993. It produces high-quality research information on the effectiveness, costs and broader impact of health technologies for those who use, manage and provide care in the NHS. 'Health technologies' are broadly defined as all interventions used to promote health, prevent and treat disease, and improve rehabilitation and long-term care. The research findings from the HTA programme directly influence decision-making bodies such as the National Institute for Health and Clinical Excellence (NICE) and the National Screening Committee (NSC). HTA findings also help to improve the quality of clinical practice in the NHS indirectly in that they form a key component of the 'National Knowledge Service' . The HTA programme is n...

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Section: Comparison With Existing Evidence: What Does This Study Add?supporting

confidence: 81%

“…134 That is, communication can 'look' and 'feel' very different. Previous studies that have used observational or qualitative interview data to study recruitment cannot take account of this difference.…”

Section: Parents' and Practitioners' Experiences Of The Trial Approachmentioning

confidence: 99%

Processes in recruitment to randomised controlled trials of medicines for children (RECRUIT): a qualitative study

Shilling

Williamson²,

Hickey³

et al. 2011

Health Technol Assess

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“…Recognizing that information, deliberation, and decisions often occur within relationships, health professionals and social scientists have called for richer conceptualizations of autonomy and decisionmaking processes. [1][2][3][4][5][6][7][8][9][10][11][12][13][14] In this article, we explore how relationships can inform decision-making in clinical practice, considering how information, emotions, values, and autonomy are shared among patients, family members, and health professionals. Providing high-quality information about disease-related factors has been the focus of many efforts to improve decision making, yet we know little about how information is used by patients and their families.…”

Section: Introductionmentioning

confidence: 99%

Shared Mind: Communication, Decision Making, and Autonomy in Serious Illness

Epstein¹,

Street²

2011

The Annals of Family Medicine

207

160

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In the context of serious illness, individuals usually rely on others to help them think and feel their way through diffi cult decisions. To help us to understand why, when, and how individuals involve trusted others in sharing information, deliberation, and decision making, we offer the concept of shared mindways in which new ideas and perspectives can emerge through the sharing of thoughts, feelings, perceptions, meanings, and intentions among 2 or more people. We consider how shared mind manifests in relationships and organizations in general, building on studies of collaborative cognition, attunement, and sensemaking. Then, we explore how shared mind might be promoted through communication, when appropriate, and the implications of shared mind for decision making and patient autonomy. Next, we consider a continuum of patient-centered approaches to patient-clinician interactions. At one end of the continuum, an interactional approach promotes knowing the patient as a person, tailoring information, constructing preferences, achieving consensus, and promoting relational autonomy. At the other end, a transactional approach focuses on knowledge about the patient, information-as-commodity, negotiation, consent, and individual autonomy. Finally, we propose that autonomy and decision making should consider not only the individual perspectives of patients, their families, and members of the health care team, but also the perspectives that emerge from the interactions among them. By drawing attention to shared mind, clinicians can observe in what ways they can promote it through bidirectional sharing of information and engaging in shared deliberation.

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“…Ledere anses for at vaere i en position, hvor de kan sikre de rammer, der understøtter de sundhedsprofessionelle og patienterne i at påtage sig de (nye) roller som henholdsvis facilitator og aktiv patient (Entwistle et al 2010;Mendick et al 2010;Anderson 2005Anderson , 2010, følge op med gentaenkning af arbejdsorganisering (Rangachari et al 2011;Mendick et al 2010Mendick et al , 2011, ressourceallokering og problemløsning (Wagner et al 2001) og eventuelle efteruddannelsestilbud til personalet (Navne, Nielsen & Jacobsen 2011). I den empiriske undersøgelse af ledelse af brugerinddragelse, som vi gennemførte i 2012-2013, ses ledelsen som havende en vigtig rolle som dem, der saetter mål for brugerinddragelse, definerer brugerinddragelse som en arbejdsopgave, skaber de nødvendige rammer, herunder for kompetenceudvikling og selv går foran som rollemodeller (Holm-Petersen & Navne 2013).…”

Section: Indledningunclassified

Hvad er ledelse af brugerinddragelse? En gennemgang af mål og tre individuelle brugerinddragelsesmodeller

Holm-Petersen¹,

Navne²

2015

TFSS

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Brugerinddragelse i det danske sundhedsvæsen står højt på den politiske dagsorden, men det er stadig en udfordring at implementere visionen i klinisk praksis. Ledelse af brugerinddragelse bliver aktuelt udpeget som en central nøgle til at føre visionen ud i livet. Samtidig er der kun relativt lidt forskning om ledelse af brugerinddragelse i sundhedsvæsenet og på det empiriske plan er det uklart, hvad det er lederne skal implementere. Artiklen identificerer syv forskellige italesatte mål med brugerinddragelse, hvoraf nogle potentielt kan være i konflikt med hinanden. Herudover peges der på, at brugerinddragelse skal implementeres i en verden, hvor der allerede er en række andre mål tilstede. En central ledelsesudfordring er derfor, at nogle af målene med brugerinddragelse forudsætter nye måder at organisere ikke bare arbejdet og kompetencer på, men også relationer til patienter og pårørende. En væsentlig opgave i ledelse af brugerinddragelse vil derfor være at fremme en gentænkning af de etablerede roller og identiteter i sundhedsvæsenet. Artiklen opstiller tre forskellige inddragelsesmodeller, der hver organiserer relationer mellem sundhedsprofessionelle og sundhedsvæsenets brugere på forskellige måder.Artiklen bygger dels på en gennemgang af dansk og international litteratur og policy dokumenter, dels på en empirisk best practice undersøgelse af ledelse af brugerinddragelse, som i perioden 2012-2013 blev gennemført på tre danske hospitalsafdelinger.

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The ethics of responsibility and ownership in decision-making about treatment for breast cancer: Triangulation of consultation with patient and surgeon perspectives

Cited by 74 publications

References 38 publications

Processes in recruitment to randomised controlled trials of medicines for children (RECRUIT): a qualitative study

Processes in recruitment to randomised controlled trials of medicines for children (RECRUIT): a qualitative study

Shared Mind: Communication, Decision Making, and Autonomy in Serious Illness

Hvad er ledelse af brugerinddragelse? En gennemgang af mål og tre individuelle brugerinddragelsesmodeller

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